Avery’s Army

Avery’s Army Welcome to Avery’s page where you can follow our journey with Morquio Syndrome!

We have lift off people!! This girl never ceases to amaze me. 😭🩷
10/26/2025

We have lift off people!! This girl never ceases to amaze me. 😭🩷

Cast off ✔️ Pants ✔️ Natural grind ✔️ Sitting upright to watch TV ✔️ Next up, physical therapy on Friday. 👏🏻
10/22/2025

Cast off ✔️
Pants ✔️
Natural grind ✔️
Sitting upright to watch TV ✔️

Next up, physical therapy on Friday. 👏🏻

09/28/2025

Avery wanted to give everyone a video update on how she’s doing! She’s loving all the gifts and crafts from her classmates and friends! Cast is set to come off October 22nd…not like she’s counting down or anything. 😆

We are so happy to be home!
09/15/2025

We are so happy to be home!

Ice cream for the win! 💛
09/12/2025

Ice cream for the win! 💛

09/11/2025

Avery had a decent night of sleep! She is comfortable and resting. When she’s awake she’s demanding foot rubs and sugar toast. Glad to have our spunky girl on the mend of this long road of recovery! 💜

09/10/2025

He just came out and said Avery’s surgery could not have gone better. She is getting some nerve blocks to help with pain and her cast on in the OR. We are hopeful to see her in the next hour and a half. 💜

09/10/2025

Halfway through update. She is doing well! Dr. Mackenzie came out to talk and just let us know he does think she will need that shelf built in her hips. By doing this, it gives her femoral head more coverage and help her later in life. This means she will need the cast. She requested rainbow earlier in the week, so rainbow she gets! Thank you everyone for your continued prayers.

09/10/2025

She just went back to the OR. The surgery itself is 6-8 hours, however by the time we get a room and settled it will be longer. Thank you all for your support today! 💜

09/09/2025

Yesterday went really well for Avery! We had a lot of appointments lined up and she held up like a champ, per usual.

We met with Dr. Mackenzie to go over her surgery. He is unsure on if she will need the cast or not, and he won’t know for sure until he is in there to see how much bone he has to work with. Her surgery is 6-8 hours so I will update when she is heading back.

She did really well under anesthesia yesterday for her imaging. The whole crew loved her and an anesthesia student even asked if she could be in on her surgery just to be with her. Avery has that affect on people. 🩷

Today we meet with neurosurgery to go over her imaging then we are off to the zoo to have some fun before the big day. We are asking everyone to wear your Avery’s Army gear or purple tomorrow! We need big support and big prayers tomorrow. 💜 Thank you, all!!

09/07/2025

We made it to Delaware! Tomorrow we have a full day of appointments. Avery will be sedated for some updated MRIs of her spine and a CT of her chest. More appointments Tuesday and surgery Wednesday. Prayers are always appreciated 🫶🏻💜

Wear your Avery shirt or purple tomorrow! Tag us in your pics. 😊
05/14/2025

Wear your Avery shirt or purple tomorrow! Tag us in your pics. 😊

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Parkersburg, IA
50665

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