Seize the Bag: Life After Colostomy

Seize the Bag: Life After Colostomy Thoughts on living with a colonostomy, resources and recommendations for supplies. Author also suffers from fibromyalgia, COPD, sleep apnea, and arthritis.

Sharing resources and equipment recommendations for all these conditions.

Tomorrow is World Lymphedema Day. I’m “celebrating” by getting back on schedule with my pumps. It’s kind of a Catch-22. ...
03/06/2026

Tomorrow is World Lymphedema Day. I’m “celebrating” by getting back on schedule with my pumps. It’s kind of a Catch-22. I’m not supposed to use it if I have open wounds on my legs. The scratches (claw marks really) on my legs heal; I use the pumps; the fluids exits, some through my bladder, some through my pores; the fluids exits makes my legs itch unbearably; I scratch and claw them at night; I wake up with open wounds on my legs; I wait for them to heal; I use my pumps . . . They don’t prepare you for crap like this.

I apologize for the lapse in posts. I have had a combination of the flu and a new strain of Covid and it took a while to...
03/04/2026

I apologize for the lapse in posts. I have had a combination of the flu and a new strain of Covid and it took a while to get over it. Life is good again because God remains GREAT all the time.

Sorry for the lapse in posts. Today is day 6 in my war with the flu. I’ve never had the flu. This strain I’ve been told,...
02/16/2026

Sorry for the lapse in posts. Today is day 6 in my war with the flu. I’ve never had the flu. This strain I’ve been told, is way stronger and lasts longer. Oh joy. Hopefully I’ll be back to normal posting soon.

I tried really hard to stay clear of the germs, but I failed miserably. I have the flu.
02/13/2026

I tried really hard to stay clear of the germs, but I failed miserably. I have the flu.

02/09/2026

TGIF! We made it ☕️😅

Random thoughts:-I keep Febreeze in the bathroom because odor from changing my bag lingers.-When you have more than one ...
02/06/2026

Random thoughts:
-I keep Febreeze in the bathroom because odor from changing my bag lingers.
-When you have more than one chronic condition, pinpointing the culprit can prove quite difficult.
-Your colon regulates so many things. When you lose part if your colon, you lose a LOT of control over other parts and systems of your body.
-If at all possible, only see your stoma nurse or your surgeon about stoma issues. I went to the ER over the weekend and they literally did sn sll call over the hospital intercom system looking for a nurse with stoma experience. Finding none, they sent me home and told me to follow up with my surgeon on Monday.
-i dont have arthritis becsuse im overweight, I am overweight because the arthritis pain prevents mefrom getting sny exercise.
-Fibromyalgia, ostomy, COPD, Hashimoto’s disease, chronic kidney disease, high blood pressure, and osteoarthritis make horrible bed fellows.

Just saying

Warning: gross details coming.When I had my emergency colon surgery, I went to a physical rehab place after my hospital ...
02/03/2026

Warning: gross details coming.
When I had my emergency colon surgery, I went to a physical rehab place after my hospital stay. The nurses there kept telling me to watch for mucus from my butt because when the colon gets rerouted to the stoma, mucus may build up and then your body pushes it out. Well, it took two years, but it finally happened. So weird! I had no control over it at all; it just came out. So glad I was home alone! And SO GLAD that’s over! And so glad the rehab nurses warned me; otherwise I probably would’ve freaked out. Still a little freaky that it took nearly 3 years (surgery was March of 23)!

The latest to arrive at the chronic illness party is Hashimoto’s disease. Treatment for now is dietary. I’ll post relev...
01/27/2026

The latest to arrive at the chronic illness party is Hashimoto’s disease.
Treatment for now is dietary. I’ll post relevant updates as they come.

One of the worst things about surviving a chronic illness is surviving the chronic illness. You fight the latest attack ...
01/24/2026

One of the worst things about surviving a chronic illness is surviving the chronic illness. You fight the latest attack for days, you get past it and decide to give it a go and then out of the blue some tiny little thing hits you and you’re completely overwhelmed.

I made the mistake of stating out loud that I’d about run out of body parts for Datan to attack or surgeons to replace. ...
01/24/2026

I made the mistake of stating out loud that I’d about run out of body parts for Datan to attack or surgeons to replace. The next day at my regularly scheduled check up, my doctor informed me I have Hashimoto’s Disease, an autoimmune disease where your immune system attacks your thyroid. I’ve had hypothyroidism for years now; so this is like round two of Satan’s attack on my thyroid. More lab work ordered before they determine a treatment plan.

Latest glitch with my bag is a recurring problem. Leaks around the opening due to “bumps” forming around the stoma. Thes...
01/19/2026

Latest glitch with my bag is a recurring problem. Leaks around the opening due to “bumps” forming around the stoma. These ostomy rings are very flexible and just the right thickness to create a leakproof barrier around my stoma.

01/12/2026

They may not happen all the time, but I treasure these moments. ♥️ ~ Nanea

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