SCI Research Studies near Philadelphia

07/29/2024

We are actively recruiting people with a SCI for the below study. Please reach out if you are interested or scan the QR code for more information!

07/11/2024

We are actively recruiting for ongoing studies at Thomas Jefferson University for people with SCI. If you or someone you know is a person living with a SCI the link below provides a detailed description of one of our studies and is a great starting point. Please reach out for more information!

Departments, Divisions, & Programs Center for Outcomes & Measurement Current Projects Remote Testing of Physical Function in Spinal Cord Injury Current Projects Center for Outcomes & Measurement Toggle sub-menu Core Functions & Services Education Toggle sub-menu Coaching in Context Coaching in Conte...

10/03/2023

Spinal Cord Injury incidence increases by 18,000 new cases per year. What does this mean? Through increased access to care we can improve quality of life in AT LEAST 18,000 people annually. This art depicts a combination of our scoring sheets, methods, participants, raters, and images of our remote processes used to do just that: increase access to health care, impact lives, and change the world. This collage of research is laid upon an MRI of this researchers/artists brain to show how research is truly within the heart and mind of those who work within.

09/15/2023

We are looking for people with spinal cord injury to help us with a new assessment Thomas Jefferson is creating! Contact us for more information :)

08/14/2023

Why do we need remote assessments?

The successful validation of remote assessments can allow people with SCI that live far from research centers or SCI Model Systems to engage with research, locally and globally. The videoconferencing technology that has become ubiquitous and expanded opportunities for employment, socialization, and telemedicine for people with SCI, can be leveraged for research. Longitudinal assessments over time for physical function can benefit people with SCI for ongoing rehabilitation care if the assessments could be done remotely. It could also enable SCI Model Systems to partner with local clinics to capture high-quality data from people living in rural communities without placing the burden of data collection on individual clinics and providers. Further, people with SCI and their care partners can benefit from having the choice to be able to do in-person or remote assessments, granting them the flexibility, ease of access, and reduced travel burden.

06/28/2023

The Center for Outcomes and Measurement at Thomas Jefferson University is completing a research study to evaluate how trained coaches conduct sessions called Coaching in Context (CIC). We are looking to determine if principles of coaching are followed during a CIC session, this is called fidelity. Coaching in Context uses conversations with clients to work towards creating solutions to challenges that interfere with activities that clients desire to do, need to do, or are expected to do. The goal of coaching is for clients to figure out what strategies they feel best meet their needs to overcome these challenges, versus the coach directly providing ideas. Coaching has been shown to be highly effective for individuals with and caregivers of individuals with other chronic conditions. If you are interested, then you would receive up to 10 coaching sessions (free of charge) that would last approximately 30-45 minutes long. As part of the study, you would also meet with the study coordinator before starting coaching and after coaching is completed to answer questionnaires about your well-being.

06/28/2023

Study Description:
The study tests the validity of three assessments used in spinal cord injury (SCI), Spinal Cord Independence Measure (SCIM-III), Graded Refined Assessment of Strength, Sensation, and Prehension (GRASSP) and SCI Movement Index (SCI-MI). The tests will be administered in 3 sessions: 1 in-person and 2 times remotely over videoconferencing to see if we can validate the assessments to be completed remotely to increase access to healthcare for people with SCI and their care partners.

Qualifications:
Ages of 18-75 years
9 months from SCI injury or disease
Access to either a smart phone/tablet/computer/laptop
Willing to engage in end of study interview

Exclusion:
Progressive diseases
Ventilator support
Pre-existing neurologic disorder
Orthopedic issues in last 6 months
Poor overall health
Other physical, psychiatric, or cognitive issues limiting participation

06/14/2023

Are you a person living with a spinal cord injury? You could be eligible to receive free coaching services to help you reach your desired goals! Our coaches are trained professionals ready to help you reach your potential!

06/14/2023

Are you a person living with a Spinal Cord Injury near the greater Philadelphia area? You could be eligible to participate in a paid study near you. Chat us to learn more!

06/14/2023