Penn FTD Center

Penn FTD Center The Penn FTD Center is home to an energetic team dedicated to the investigation and treatment of FTD

The Penn Frontotemporal Degeneration Center brings together an energetic team of creative clinicians and researchers dedicated to the investigation and treatment of early onset neurodegenerative conditions. Our Center members include neurologists, neuropathologists, neuroscientists, geneticists, genetic counselors, neuropsychologists, nurses, social workers, and clinical research coordinators, all

targeting a cure for Frontotemporal degeneration . Intellectual diversity, creativity and strong collaborative partnerships uniquely position the Penn Frontotemporal Degeneration Center to deliver the highest quality of care to our patients, conduct translational research to improve diagnostic and prognostic accuracy, improve understanding of the biological basis of Frontotemporal degeneration spectrum disorders, and train the next generation of physicians and researchers as we move toward a cure.

Thanks to Penn FTD Center Co-Director David Irwin, MD and Assistant Professor Allison Snyder, MD on their participation ...
04/28/2026

Thanks to Penn FTD Center Co-Director David Irwin, MD and Assistant Professor Allison Snyder, MD on their participation and presentation on FTD at the American Academy of Neurology 2026 Annual Meeting!

FTD Fact Friday: The temporal lobes, located below and to the side of each frontal lobe on the right and left sides of t...
04/24/2026

FTD Fact Friday: The temporal lobes, located below and to the side of each frontal lobe on the right and left sides of the brain, contain essential areas for memory and play a major role in language and emotions.

đź“Ť Check out our Support & Resources tab for helpful tools and links.
đź“° Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

Penn FTD Center Staff Highlight 🌟Jordana Woodford, MA, Ed.S is a Senior Clinical Research Coordinator at the Penn FTD Ce...
04/20/2026

Penn FTD Center Staff Highlight 🌟

Jordana Woodford, MA, Ed.S is a Senior Clinical Research Coordinator at the Penn FTD Center. Jordana has worked on several studies and currently works on the UNICORN study, P01 study, and the ALLFTD team.

đź“ŤRead more details on Jordana in our blog post found on our website!

đź“° Are you subscribed to the Penn FTD Center newsletter? Stay up to date on our latest updates, educational events, and r...
04/15/2026

đź“° Are you subscribed to the Penn FTD Center newsletter?

Stay up to date on our latest updates, educational events, and research advancements by signing up on our website!

FTD Fact Friday: The most common genetic causes of FTD are variants in the C9orf72, MAPT, and GRN genes, but mutations i...
04/10/2026

FTD Fact Friday: The most common genetic causes of FTD are variants in the C9orf72, MAPT, and GRN genes, but mutations in over 30 genes have been found to be able to cause FTD and/or ALS.

đź“Ť Check out our Support & Resources tab for helpful tools and links.
đź“° Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

This spring, we are encouraging healthy and engaging habits. April is the perfect time to enjoy the beautiful weather wi...
04/06/2026

This spring, we are encouraging healthy and engaging habits. April is the perfect time to enjoy the beautiful weather with outdoor hobbies, such as bird watching!

đź“ŤCheck out our website for more information on Support & Resources

FTD Fact Friday: Frontotemporal disorders are not a single brain disease but rather a family of neurodegenerative diseas...
04/03/2026

FTD Fact Friday: Frontotemporal disorders are not a single brain disease but rather a family of neurodegenerative diseases.

đź“Ť Check out our Support & Resources tab for helpful tools and links.
đź“° Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

The Philly NeuroArts Network is a newly established group expanding access to arts programming for individuals living wi...
03/30/2026

The Philly NeuroArts Network is a newly established group expanding access to arts programming for individuals living with neurologic illness or injury. We believe the arts are a powerful pathway to connection, healing, and self-expression. By sharing resources, supporting inclusive programming, and hosting interactive gatherings, we create spaces where individuals, families, artists, clinicians, and therapists can inspire one another, build community, and celebrate the creativity that lives in all of us!

📆 Saturday May 2nd, 2026
⏲ 10am-2pm
đź“ŚJordan Center for Medical Education
5th floor of the Perelman Center
3400 Civic Center Blvd, Philadelphia, PA 19104

This event is free to attend but advanced registration is required. Find out more and register here: phillyneuroartsnetwork.com

FTD Fact Friday: Uncharacteristic personality changes, apathy, difficulty with decision making, difficulty with movement...
03/27/2026

FTD Fact Friday: Uncharacteristic personality changes, apathy, difficulty with decision making, difficulty with movement, speaking, or comprehension are some of the most common symptoms of FTD.

đź“Ť Check out our Support & Resources tab for helpful tools and links.
đź“° Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

Dementia with Lewy bodies (DLB) is the second most common type of dementia after Alzheimer’s disease, and typically incl...
03/26/2026

Dementia with Lewy bodies (DLB) is the second most common type of dementia after Alzheimer’s disease, and typically includes movement issues such as parkinsonism. To date, there has been limited research about the genetics of DLB. But did you know that parkinsonism occurs in up to 40% of people with a pathogenic C9orf72 expansion?

Penn FTD Center Co-Director David Irwin, MD, and colleagues recently published a case of C9orf72-related parkinsonism:

Resident & Fellow SectionMarch 17, 2026Free AccessVideoTeaching Video NeuroImage: C9orf72-Related ParkinsonismMegan Super, Rachel A. Paul https://orcid.org/0009-0001-3793-6326, David J. Irwin https://orcid.org/0000-0002-5599-5098, and Whitley W. Aamodt https://orcid.org/0000-0001-8130-2809Authors In...

📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?Make sure you are ...
03/10/2026

📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?

Make sure you are following the Penn FTD Center on all your social platforms.

đź“ŤAll of our social media accounts can be found at the link in our bio!

FTD Fact Friday: Because of its young onset age, FTD can have a substantially greater impact on work, family, and financ...
03/06/2026

FTD Fact Friday: Because of its young onset age, FTD can have a substantially greater impact on work, family, and finances than Alzheimer’s disease.

đź“Ť Check out our Support & Resources tab for helpful tools and links.
đź“° Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

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Philadelphia, PA
19104

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+12153495863

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