Penn FTD Center

Penn FTD Center The Penn FTD Center is home to an energetic team dedicated to the investigation and treatment of FTD

The Penn Frontotemporal Degeneration Center brings together an energetic team of creative clinicians and researchers dedicated to the investigation and treatment of early onset neurodegenerative conditions. Our Center members include neurologists, neuropathologists, neuroscientists, geneticists, genetic counselors, neuropsychologists, nurses, social workers, and clinical research coordinators, all targeting a cure for Frontotemporal degeneration . Intellectual diversity, creativity and strong collaborative partnerships uniquely position the Penn Frontotemporal Degeneration Center to deliver the highest quality of care to our patients, conduct translational research to improve diagnostic and prognostic accuracy, improve understanding of the biological basis of Frontotemporal degeneration spectrum disorders, and train the next generation of physicians and researchers as we move toward a cure.

FTD Fact Friday: An estimated one-third of FTD cases are inherited, meaning the genetic variant is passed from parent to...
01/16/2026

FTD Fact Friday: An estimated one-third of FTD cases are inherited, meaning the genetic variant is passed from parent to child.

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?Make sure you are ...
01/14/2026

📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?

Make sure you are following the Penn FTD Center on all your social platforms.

Apply today to become an FTD CRLI Research Ambassador!The FTD Clinical Research Learning Institute is a virtual program ...
01/12/2026

Apply today to become an FTD CRLI Research Ambassador!

The FTD Clinical Research Learning Institute is a virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research by educating them on the clinical research process. Applications close February 13th, 2026.

Check out our website to complete the application!

Penn FTD Center Staff Highlight 🌟Ashlyn O’Halloran is a Clinical Research Coordinator at the Penn FTD Center. Ashlyn wor...
01/12/2026

Penn FTD Center Staff Highlight 🌟

Ashlyn O’Halloran is a Clinical Research Coordinator at the Penn FTD Center. Ashlyn works on the center’s observational repository study UNICORN where she collects data on individuals with a neurodegenerative disease in hopes to help future generations of everyone who is impacted by these diseases.

📍Read more details on Ashlyn and wish her a happy birthday in the blog post found on our website!

FTD Fact Friday: People living with FTD may have difficulty with basic work skills, such as organizing, planning, and fo...
01/09/2026

FTD Fact Friday: People living with FTD may have difficulty with basic work skills, such as organizing, planning, and following through on tasks.

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

Interested in becoming an FTD Research Ambassador? The Penn FTD Center and Association for Frontotemporal Degeneration w...
01/08/2026

Interested in becoming an FTD Research Ambassador? The Penn FTD Center and Association for Frontotemporal Degeneration will host the 2026 FTD Clinical Research Learning Institute!

Applications to be an FTD CRLI Research Ambassador will open on Monday, January 12th. For more information, check out our website!

Registration is open for the sixth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on W...
01/07/2026

Registration is open for the sixth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wednesday, February 25, 2026, from 1:00PM-4:00PM EST.

Register now at our website!

12/19/2025

Recap the highlights of 2025 with the Penn FTD Center!

We are wishing you and your loved ones a wonderful holiday season and can't wait to see what 2026 brings!

📰 Are you subscribed to the Penn FTD Center newsletter?Subscribe on our website to stay up to date on our latest updates...
12/15/2025

📰 Are you subscribed to the Penn FTD Center newsletter?

Subscribe on our website to stay up to date on our latest updates, educational events, and research advancements!

Penn FTD Center Staff Highlight 🌟Emily Xie is the Penn FTD Center Clinical Research Project Manager. Emily’s focus lies ...
12/10/2025

Penn FTD Center Staff Highlight 🌟

Emily Xie is the Penn FTD Center Clinical Research Project Manager. Emily’s focus lies in coordinating observational research operations to support both participants and research team throughout their time at the center.

📍Read more details on Emily in the blog post found on our website!

In our December blog, Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director Dahlia Kamel,...
12/09/2025

In our December blog, Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director Dahlia Kamel, MS provides some helpful tips for navigating the holiday season when a loved one is living with FTD.

Our latest blog post can be found at our website!

FTD Fact Friday: FTD that runs in a family is often related to variants (permanent changes) in certain genes. The Penn F...
12/05/2025

FTD Fact Friday: FTD that runs in a family is often related to variants (permanent changes) in certain genes. The Penn FTD Center is here to help!

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

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Philadelphia, PA
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+12153495863

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