Penn FTD Center

04/06/2026

This spring, we are encouraging healthy and engaging habits. April is the perfect time to enjoy the beautiful weather with outdoor hobbies, such as bird watching!

📍Check out our website for more information on Support & Resources

04/03/2026

FTD Fact Friday: Frontotemporal disorders are not a single brain disease but rather a family of neurodegenerative diseases.

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

03/30/2026

The Philly NeuroArts Network is a newly established group expanding access to arts programming for individuals living with neurologic illness or injury. We believe the arts are a powerful pathway to connection, healing, and self-expression. By sharing resources, supporting inclusive programming, and hosting interactive gatherings, we create spaces where individuals, families, artists, clinicians, and therapists can inspire one another, build community, and celebrate the creativity that lives in all of us!

📆 Saturday May 2nd, 2026
⏲ 10am-2pm
📌Jordan Center for Medical Education
5th floor of the Perelman Center
3400 Civic Center Blvd, Philadelphia, PA 19104

This event is free to attend but advanced registration is required. Find out more and register here: phillyneuroartsnetwork.com

03/27/2026

FTD Fact Friday: Uncharacteristic personality changes, apathy, difficulty with decision making, difficulty with movement, speaking, or comprehension are some of the most common symptoms of FTD.

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

03/26/2026

Dementia with Lewy bodies (DLB) is the second most common type of dementia after Alzheimer’s disease, and typically includes movement issues such as parkinsonism. To date, there has been limited research about the genetics of DLB. But did you know that parkinsonism occurs in up to 40% of people with a pathogenic C9orf72 expansion?

Penn FTD Center Co-Director David Irwin, MD, and colleagues recently published a case of C9orf72-related parkinsonism:

Resident & Fellow SectionMarch 17, 2026Free AccessVideoTeaching Video NeuroImage: C9orf72-Related ParkinsonismMegan Super, Rachel A. Paul https://orcid.org/0009-0001-3793-6326, David J. Irwin https://orcid.org/0000-0002-5599-5098, and Whitley W. Aamodt https://orcid.org/0000-0001-8130-2809Authors In...

03/10/2026

📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?

Make sure you are following the Penn FTD Center on all your social platforms.

📍All of our social media accounts can be found at the link in our bio!

03/06/2026

FTD Fact Friday: Because of its young onset age, FTD can have a substantially greater impact on work, family, and finances than Alzheimer’s disease.

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

03/02/2026

We understand that care management can be tough. At the Penn FTD Center, we are committed to provide practical, useful tips for care management.

The first Monday of every month, we will be sharing tips on care management for those living with FTD. In National Nutrition Month we wanted to highlight information on the link between healthy diets and healthy brains.

📍Check out our website for more information on Support & Resources

02/20/2026

FTD Fact Friday: FTD is frequently misdiagnosed as Alzheimer’s disease, depression, Parkinson’s disease, or a psychiatric condition.

📍 Check out our Support & Resources tab for helpful tools and links.
📰 Read our monthly blog in the Latest News tab.
🔎 Interested in Observational Research or Clinical Trials? Click the links to learn more about the participation in studies.

Find more information on the Penn FTD Center website!

02/18/2026

In our blog post, Clinical Research Coordinator Ashlyn O'Halloran outlines the UNICORN study experience and activities.

Read now at our website!

02/17/2026

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Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!

02/16/2026

Emma Rhodes, PhD, Penn FTD Center’s Neuropsychologist & Assistant Professor has been inducted to the International Neuropsychological Society (INS) their inaugural class of fellows (FINS). The FINS fellowship honors members of the INS who have demonstrated meaningful and sustained contributions to the society over time.

Congratulations, Emma! 🎉