02/11/2022
We don’t need a special occasion to advocate for autistic communities of color, but it’s an appropriate time to amplify the black autistic community.
While autism research itself is abundant and increasing, representation of ethnic groups is underreported and under-acknowledged. According to an article from Spectrum News, “in 2016, Jason Travers and his colleagues analyzed 408 peer-reviewed, published studies of evidence-based autism treatments. Only 73 of them, or 17.9 percent, reported the race, ethnicity or nationality of participants. Of the nearly 2,500 participants in the 73 studies, fewer than one in five reported their race — and 63.5 percent of those were white.” The goal of this post is not to highlight the disparities through under-diagnosing or diagnosing at later ages (thereby requiring longer, more intensive intervention), underreporting of demographic diagnostic and health metrics, lacking research representation, and the disproportionate rates of disability in the African American community, despite the rate of autism being the same across racial groups (Gourdine et al, 2011).
The point is to create space and room for advocacy, access to services and information, acceptance, and inclusion. We must start systemically and use our platforms to amplify these important voices and perspectives- black clinicians, BCBAs, physicians, researchers, and awareness of scientific studies requiring black representation.
The ultimate long term goal is equity.
Also, be mindful and remember, while we want to hear and amplify Black autistic voices and perspectives, it’s not the job of the Black community to teach us how to be proper allies. We must do the work and take the responsibility that is uniquely ours.