Common Variable immunodeficiency -cvid; Starting the Journey.

Common Variable immunodeficiency -cvid; Starting the Journey. I finally have a name for my invisible illness, after struggling for some 20+ years.

In between infusions, I spend my time talking to other people about infusions ;)

10/28/2025

Severe reactions happening, brands listed. Share with people who need to know. I have a theory that it is due to the influx of Covid antibodies from multiple sources, including different vaccines, different viral infections of different variations. For myself, I am finding the symptoms I already had are much worse, and I'm gaining more symptoms. I have also been researching this science on Covid, long Covid, and the immune system, as well as my own genome and what I am prone to.

Another day at the office  💕🥰        &co
10/22/2025

Another day at the office 💕🥰
&co

Autumn has been beautiful! 
10/22/2025

Autumn has been beautiful! 

10/22/2025

Is this driving you nuts? (Obviously Portlanders only)

10/22/2025

10/16/2025

do you know that antifa means "anti-fascist?

10/15/2025

Suki

Having a good laugh as Portland shows there is no war here… At least not being caused by us. Would be nice if those on t...
10/13/2025

Having a good laugh as Portland shows there is no war here… At least not being caused by us. Would be nice if those on the roof would stop hitting people with pepper balls and spraying people in the face with pepper spray. Surely there are more important things for them to attend to. (Like maybe going back to Washington and telling them to rehire the people at the CDC with people that actually know how to control disease. That's important to me. )

10/13/2025

I gained 23 followers, created 12 posts and received 8 reactions in the past 90 days! Thank you all for your continued support. I could not have done it without you. 🙏🤗🎉

A personal reminder to hydrate well before your infusions. I didn't, even though I know better, and I'm really paying fo...
10/12/2025

A personal reminder to hydrate well before your infusions. I didn't, even though I know better, and I'm really paying for it today! I started pounding water last night at 7 PM, with liquid IV in it. Today we had to stop the infusion and add a small bag of fluid. Today I've been working on another 32 ounces of water / liquid IV and I haven't quite finished it yet. Still have 400 mL to go. That I didn't throw up that was a big win today. It was scheduled last minute and I was in a funk the day before so I didn't bother. Never a good choice! Take my word for it. After a five hour nap I am finally ready to try some food.

10/10/2025

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Portland, OR

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