Common Variable immunodeficiency -cvid; Starting the Journey.

Common Variable immunodeficiency -cvid; Starting the Journey. I finally have a name for my invisible illness, after struggling for some 20+ years.

In between infusions, I spend my time talking to other people about infusions ;)

So beautiful- love these late-Autumn sunset colors.
11/14/2025

So beautiful- love these late-Autumn sunset colors.

11/08/2025

Starting a new brand- Gammaguard- fingers crossed. 🤞

11/03/2025

Well... i'm supposed to be changing IGG brands and this decision was made with my doctor. So naturally the new order comes in (after waiting for the approval from Insurance) for my next scheduled infusion… And the brand did not get changed. 🤦‍♀️ From. The. Doctor. 🤷🏼‍♀️
I just... can't...even.

10/28/2025

Severe reactions happening, brands listed. Share with people who need to know. I have a theory that it is due to the influx of Covid antibodies from multiple sources, including different vaccines, different viral infections of different variations. For myself, I am finding the symptoms I already had are much worse, and I'm gaining more symptoms. I have also been researching this science on Covid, long Covid, and the immune system, as well as my own genome and what I am prone to.

Another day at the office  💕🥰        &co
10/22/2025

Another day at the office 💕🥰
&co

Autumn has been beautiful! 
10/22/2025

Autumn has been beautiful! 

10/22/2025

Is this driving you nuts? (Obviously Portlanders only)

10/22/2025

10/16/2025

do you know that antifa means "anti-fascist?

10/15/2025

Suki

Address

Portland, OR

Website

Alerts

Be the first to know and let us send you an email when Common Variable immunodeficiency -cvid; Starting the Journey. posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram