12/12/2025
" brought light to my life through community, art, and connection. There were years I thought I would never be able to draw again. literally gave me a purpose to work on drawing and design.
In May I was able to participate in in Washington DC, both in person and with my artwork. My painting was used in posters and posts for the event, which filled me with immeasurable gratitude and joy! This event and this piece were highlights of a very dark year. In September I helped create custom designs for clothing and merchandise, which I now wear proudly (especially during PEM flares!). I’m delighted to think of other people with ME wearing my messages of power and inspiration.
gave me encouragement to continue to create and to continue to participate in a vibrant community that also understood and respected my limitations. In my darkest, most immobile times, I remember these triumphs and know I will be able to create again, as long as I rest, tend to my needs, and listen to my body. was truly a beacon in my long dark journey of isolation, leading me to connection and community through art."
Jess Kaushansky @ JessNeedstoRest.
We are so honored and humbled to share what means to Jess and we hope that you will let Jess know how much we appreciate her volunteer efforts with us! We also hope you sincerely take a minute to think about what MEAction means to you and how you can help make sure we are there for this community next week, next, month, and next year.
Jess shared her amazing artwork to share with you here!
Image description: artwork that shows a young woman with pink hair lying in bed holding a heart-shaped pillow. Text on the blanket:" You are not alone" Signed Jessica Kaushansky