What are the opening hours?

Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm Saturday 12pm - 4pm Sunday 12pm - 7pm

http://MEAction.net/, https://linktr.ee/meactnet

The #MEAction Network, Princeton, NJ (2026)

03/15/2026

To honor Long COVID Awareness Day, we’ve once again joined forces Open Medicine Foundation, Solve MECFS Initiative, and Bateman Horne Center as . We gathered a set of resources from our organizations designed to inform and empower people with ME/CFS and Long COVID, their caregivers, and allies!

These materials include:
- Easy-to-understand summaries of the latest research
- Clinical care guides dedicated to Long COVID and related conditions
- Resources for patients and caregivers navigating life with chronic illness
- Links to webinars featuring Long Covid researchers and other experts in the field

Whether you are living with Long COVID, supporting someone who is, or simply want to learn more, we invite you to explore and share these resources. https://bit.ly/3Na4mX4

We encourage you to follow other Long COVID organizations and check out the stories being shared by those living with Long COVID. You might want to check out the hashtags or keywords:

Our organizations will be sharing and amplifying from the wider ME/CFS and Long COVID community all week! Feel free to give us a tag in what you are sharing.

03/13/2026

We must protect voting rights for people with disabilities and all citizens! The Save AMERICA Act will be brought before the Senate NEXT WEEK.

The president has said he will not sign other legislation until this passes putting more pressure on the senate.

Sample script and email to contact your senator are provided here by The Autistic Self Advocacy Network (ASAN): https://autisticadvocacy.org/2026/02/save-act/

If you need a simpler email action, the one we shared previously is in comments.

We have previously shared about the SAVE Act and the SAVE America Act and the concerns that it will limit registration and voting for disabled folks and other citizens. Time is critical now.

As shared by the National Coalition on Accessible Voting:
“If passed, these bills would:
• Limit vote-by-mail
• Limit who can give help to voters with disabilities
• Require hard-to-get documents, such as passports or birth certificates, to register to vote.

Millions of voters will face new barriers when trying to vote, including:
• Disabled people
• Older adults
• People with limited transportation
• People with limited access to documents

There is NO EVIDENCE that election fraud by noncitizens is a widespread problem.

However, there is clear evidence that these policies would block people (who ARE legally eligible) from voting. These policies would conflict with protections under the Americans with Disabilities Act and the Voting Rights Act that have been around for many years.”

03/12/2026

's state advocacy teams will be at the heart of the fight to protect Medicaid this year since states are responsible for carrying out Medicaid work requirements.

To drive this work, we are excited to welcome Therese Russo as our new Advocacy Manager. Therese will work directly with our state teams and chapters to plan, organize, and take action. Together, they will educate communities and push state Medicaid directors and lawmakers to protect Medicaid for people with ME, Long Covid, and other chronic illnesses.

Therese is a disability and chronic illness rights advocate, public health analyst, and community organizer with over a decade of experience in nonprofit and government administration. She has researched Medicaid policy and managed health equity programs across New York City's 22 public hospitals.

As a longtime volunteer, she has represented us in advisory and advocacy roles with the NYC Department of Health, the CDC, and the NIH. Therese lives with ME/CFS, POTS, MCAS, and EDS+, and she is committed to building campaigns that work for people with fluctuating, energy-limiting illnesses. She lives in Portland, Oregon with her rabbit and loves spy dramas.

Help us welcome Therese!

03/12/2026

We have an update to share in our fight to protect Medicaid for our community - and finally get the recognition that ME/CFS and Long COVID are “serious or complex medical conditions.”

has sent a letter to State Medicaid Directors in 42 states and the District of Columbia explaining why ME/CFS and Long COVID are serious, complex medical conditions – and should be exempt from the new onerous work requirement. (The other 8 states did not expand Medicaid and therefore are not subject to work requirements.)

New Medicaid rules will require recipients to work 80 hours per month or lose their health insurance – unless they can prove they are “medically frail” or have a serious or complex medical condition.”

At the end of the day, this is a fight BOTH to protect health insurance for our most vulnerable, and for our State governments to finally recognize the severity and nature of ME/CFS and Long COVID - and to take these diseases seriously.

Read the letter here: https://ow.ly/UmlA50YsAzf

Don’t forget to SIGN OUR LETTER to the HHS SECRETARY! The HHS Secretary will issue guidance by June 1st that shapes how states decide who counts as "medically frail." We are urging the HHS Sec to recognize people with ME/CFS and Long COVID as “medically frail” so that their access to Medicaid is protected.

Sign the letter! https://ow.ly/YU8350YsAzg

03/11/2026

In case you missed it! This year, Solve MECFS Initiative & The Network are partnering on a medical education initiative for Advocacy Week 2026. Register here: https://forms.gle/PUA8tgvG6xrjDbrV8

It's time for ME/CFS to be part of every medical provider’s education.

ME/CFS affects millions of people — but it's still not part of standard clinical training. Too many people with ME/CFS and Long COVID spend years being undiagnosed, misdiagnosed, and bounced between specialists. Not because the clinical knowledge isn't there, but because it simply isn't included in medical school curricula.

This Advocacy Week (March 23–27), we are reaching out to the agencies who inform medical boards about patient safety and regulatory issues. We're asking them to partner with us by signing on to letters to State Medical Boards and State Health Leadership to ask them to share ME/CFS information and to support adding ME/CFS questions to national medical qualifying exams.

By ensuring ME/CFS is on medical exams, we de facto change what must be taught in medical schools about ME/CFS.

Here's what the week looks like:
Mon: Kickoff & training
Tue: Letter writing to patient safety & regulatory agencies
Wed: Federal Social Media Advocacy Day (toolkit provided)
Thu: Outreach to State Health Leadership & Chief Medical Officers

03/11/2026

We have NEWS to share about our fight to secure funding for the ME/CFS Research Roadmap - the NIH’s most comprehensive, strategic plan for ME/CFS research to-date.

The Network, Notjustfatigue, and Solve MECFS Initiative have sent a joint letter to the Senate Appropriations Subcommittees asking for dedicated funding of no less than $50 million to start implementing the ME/CFS Research Roadmap in the FY27 Labor HHS appropriations bill.

Read our full article including letter here: https://www.meaction.net/post/meaction-sends-joint-letter-asking-senate-to-appropriate-50-million-to-me-cfs-research

Our request for dedicated funding from Congress builds on our Congressional advocacy work in partnership with . state chapter members and advocates attended meetings with congressional offices to explain the importance of ME/CFS research funding, helping to make this directive in the L-HHS come to fruition: the NIH is “to provide a detailed implementation plan [for the ME/CFS Research Roadmap] to the Committee within 180 days of enactment.”

Meanwhile, is continuing to pursue a funding commitment directly from the NIH Office of the Director. The NIH Director has agreed to meet with us to discuss the letter we sent last month requesting that the NIH Office of the Director allocate $50 million to execute the ME/CFS Research Roadmap.

has also signed onto a letter along with 66 organizations - that asks the Senate Appropriations Committee to increase the National Institutes of Health (NIH) budget by 8.7%, and to allocate $7.15 billion for the National Institute of Allergy and Infectious Diseases within the NIH. Healthy reserves at the NIH also improves our chances of securing funding for the ME/CFS Research Roadmap.

We know that the ME/CFS Research Roadmap could drastically improve the lives of people with ME/CFS and Long COVID, and finally lead us towards the clinical trials and treatments we so desperately need.

03/10/2026

Social media volunteers wanted!

We have two different but very important social media volunteer needs! Apply here: https://www.meaction.net/volunteer

1. We need more moderators for our online support groups. We have active and growing groups but any groups without active moderations have been paused. We believe it is very important to provide safe, supportive spaces - and moderators are key to being able to do this. We provide a take at your own pace training. We then offer a private MEAction moderator group so we can support one another as we take on moderation duties.

2. We need volunteers to join our social media working group. We gather once a week (only join in when you feel up to it!) online to discuss upcoming social media needs. We brainstorm together and create content for MEAction. We also have a channel in Slack so you can stay up-to-date on upcoming social media needs and join in however you are able. This can include boosting our content, creating content for us to use, creating content for use on your channels with our content ideas in mind, and giving feedback on current issues.

We are incredibly grateful to our volunteers and for all the ways you step in to care for and grow this community!

03/08/2026

For those of us in the US and Canada that just sprang forward, how are you? Is this a positive change for you with extra daylight? Or does it throw you off for a while?

Today, I am trying to embrace the attitude of the caterpillar/butterfly from the poem in the Pillow Writers anthology that I shared on Friday. “For how can I worry about tomorrow’s tomorrow when today’s sunshine is so beautiful?”

It is not an attitude we can have always but it is on to embrace occasionally to find joy and rest...then know we come together to continue the fight soon.

Let's kick off the extra daylight and loss of one hour with some art! The Pillow Writers have two amazing anthologies available! We also have truly powerful work available on our site from Severe ME Day. Share something you are finding joy in today if able.

And know that if joy is out of reach today that we as a community are holding each other close and holding space for the pain and hurt happening now.

Tomorrow, it is back to taking action together! Today, let's take action by taking care!

For those who are wondering if they were supposed to spring forward- UK/Europe etc is later this month!

03/06/2026

Depending on where you live, signs of spring might be happening outside your windows. Many of us do not get to see the change of seasons or if we do we might get a peek here and there.

This poem seemed a lovely way to start the weekend and bring a touch of spring to us all. May we all borrow just a moment of joy from the butterfly who shares, “For how can I worry about tomorrow’s tomorrow when today’s sunshine is so beautiful?”

We will still work together on “tomorrow” but maybe for a moment today we will find some joy. If you are able to find some joy today, we would love to hear about it! Share with us!

“To The Caterpillar” by Trish Loehrer is included in the amazing Pillow Writers’ 2nd Anthology. Both anthologies are available at links in our bio and your purchase helps support MEAction!

Trish describes herself as one of the Millions Missing and dedicated this poem to her son who is also one of the Millions Missing.*

The Pillow Writers are an international ME/CFS writing community. Pillow Meetings are completely free and open to anyone with ME/CFS or Long Covid. We are so honored to partner with Bobbi Ausebel to host Pillow Writers and to watch how they have grown!

*If you are not familiar with the hashtag , it was coined by a community member to represent the millions of people missing from their lives due to myalgic encephalomyelitis (M.E.) – missing from their careers, missing from time spent with family and friends, missing simple pleasures like sitting in the sun or taking a walk. We are missing because our governments have chosen to neglect us. We are missing millions of research dollars; we are missing educated clinicians; we are missing care and compassion; we are missing an urgent response from our governments.

Video description: A person with light skin and short hair with amazing teal blue streaks wearing a denim jacket and dark shirt reads a poem aloud with a background of a tree and grass.

03/05/2026

How are you? I know so much is going on and when you are here on social media, you have a lot of information coming at you. This is your reminder to stop a moment and take care of you - in an ME- friendly way. So let us breathe together and take a moment to be kind to ourselves.

If the three steps feel too much to do- just take 3 deep breaths and say something kind to yourself. Be as encouraging to yourself as you would to a friend.

Feel free to share the kind thing you said to yourself or share some kindness for others in the comments below!

On a personal note from me, you are amazing and I am glad you are in this world. Your unique self is needed. You are worthy of care. After I took a few moments to breathe and made myself say something kind to me (yes I felt a little silly but it does matter!), I took a few moments to send out love and peace and hope to whomever might come across this.

This is Holly, the Community Engagement and Social Media Manager here. I am a person with ME and co-morbidities. And this community rocks. I love you truly and am so honored to bear witness to your power, vulnerability, and wisdom regularly.

ID: Text based graphic with soft soothing colors or creams and light greens. Text: Reminder to take care of yourself! Step 1: Close your eyes. Take 3 deep breaths. You can put your hand on your chest and feel the movement. Step 2: Take a few minutes (or however long works for you) and breathe in for 4 and out for 6. Step 3: Say something kind to yourself.

03/04/2026

Thanks so much for joining in to learn more about Medicaid so we can prepare for the upcoming changes!

One of the upcoming changes to Medicaid is mandatory work requirements. While it is falsely made to sound simple- hey people with disabilities are excluded from that right? - in reality it will be anything but simple.

Here are some very important facts to help understand the issues.

1. A majority of people on Medicaid who self-identify as having a disability are not enrolled through the disability pathway. That means that many people with Medicaid with a disability could be forced to work 80 hours per month or lose their Medicaid - which includes people with ME/CFS and Long COVID.

2. Changes are coming- a trillion dollars in benefits cut, at least 10.5 million people eliminated from Medicaid/CHIP, states will cut services, and proof of work will be required.

“Research shows that when federal funding for Medicaid decreases, states tend to cut optional benefits such as home- and community-based (HCBS) first. It is nearly impossible to carve out a specific population, such as disabled people or elderly people, because the cuts to Medicaid funding will affect everyone due to hospital closures and health care workforce layoffs” AP

“The OBBBA requires individuals to prove that they are working, engaging in community service, or receiving work training for at least 80 hours per month...That includes at least more than 2.6 million adults with disabilities who don’t have SSI or SSDI and have difficulty working due to disability or illness.” AP

3. Before states start enforcing the new work rules, the HHS Secretary must issue guidance that will shape how states decide who counts as "medically frail."

- The bill requires that the Secretary of HHS provide implementation guidance to states by June 1, 2026, including definitions and clarifications of standards mentioned in the bill text. (CHCS)

Some initial guidance has come out but much more needs to be done. We are busily preparing the next step and we will share that soon!

Meanwhile, please sign our letter to the HHS secretary regarding the guidance he must issue if you have not! Link in comments!

03/04/2026

This year, Solve MECFS Initiative & The Network are partnering on a medical education initiative for Advocacy Week 2026. Register here: https://forms.gle/PUA8tgvG6xrjDbrV8

It's time for ME/CFS to be part of every medical provider’s education.

ME/CFS affects millions of people — but it's still not part of standard clinical training. Too many people with ME/CFS and Long COVID spend years being undiagnosed, misdiagnosed, and bounced between specialists. Not because the clinical knowledge isn't there, but because it simply isn't included in medical school curricula.

This Advocacy Week (March 23–27), we are reaching out to the agencies who inform medical boards about patient safety and regulatory issues. We're asking them to partner with us by signing on to letters to State Medical Boards and State Health Leadership to ask them to share ME/CFS information and to support adding ME/CFS questions to national medical qualifying exams.

By ensuring ME/CFS is on medical exams, we de facto change what must be taught in medical schools about ME/CFS.

Here's what the week looks like:
Mon: Kickoff & training
Tue: Letter writing to patient safety & regulatory agencies
Wed: Federal Social Media Advocacy Day (toolkit provided)
Thu: Outreach to State Health Leadership & Chief Medical Officers

The #MEAction Network

03/15/2026

03/13/2026

03/12/2026

03/12/2026

03/11/2026

03/11/2026

03/10/2026

03/08/2026

03/06/2026

03/05/2026

03/04/2026

03/04/2026

Address

Opening Hours

Website

Alerts

Contact The Practice

Shortcuts

Share

Category

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm
Saturday	12pm - 4pm
Sunday	12pm - 7pm