Victory 4 Vincent

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Victory 4 Vincent

Vincent was diagnosed with ATRT (brain cancer) at 4 months old. He beat it 3 times. Then he beat T-cell Lymphoblastic Lymphoma too. He's a miracle.

Born to love, forced to fight. This is our family's story of fighting for his life every single day. As an Amazon Associate I earn from qualifying purchases.

02/05/2026

Today is World Cancer Day. 🎗

Cancer. It's one word used to describe over 200 distinct types of disease each with varying sub-categories. It's one word that everyone is terrified of, and 4 out of 10 people will hear their doctor tell them they have at some point in their lives. If you have cancer and you are alive 5 years after your initial diagnosis, even if you die 1 month after the 5 year anniversary, statistics will report that you survived. Maybe you knew those 3 facts, maybe you didn't. What you do know is that you don't want cancer and you don't want anyone you love to have cancer. What I hope you never know, is how profound the human experience of cancer is. It's not anything like what it looks like from the outside, and no commercial or tv shows can touch the depth of it.

Cancer is more than a medical diagnosis. It changes everything, forever.

01/09/2026

I can't believe the first week of January is over, and yet I also feel like Christmas was months ago. The holidays snuck up on me and then I blinked and they were over. I hate how time seems to speed up the older I get.

Vincent is so happy to be back in school. Every morning during the break he would say "we are going to school today" with hope in his voice. He thrives on the routine of school and the long breaks are hard for him. He also missed a lot of school in December for medical appointments which had his schedule all messed up so it's nice to get back into a routine before the cycle of appointments start all over again.

Mina's club volleyball season started with her first tournament on Sunday. Most of our weekends will be spent courtside watching her doing what she loves. I'm so grateful for my family who care for Vincent so we can both watch her play. We have missed so many things in the past and she's almost halfway done high school now, I don't want to miss anything else and it's going by too fast.

Next week, Mina will kick off her campaign for Blood Cancer United Student Visionary of the Year. She has been working hard with her team members to make her campaign successful and she will be sharing more here with you once the campaign officially starts on January 14th. If you have a business and would like to sponsor her with a tax deductible donation, please send me a message.

I am hoping for a boring January.

Oh, and Happy New Year!

📸 credit: Mina

01/01/2026

Had to jump on this trend.

Almost 8 years later and he's still here beating the odds. Never Give Up

12/30/2025

Having both of my children wake up in their beds at home on Christmas morning is one of the best gifts I could ever receive. I am so thankful we were able to celebrate another Christmas with both of our kids. I would be lying if I said I am not always worried that every holiday is going to be our last together. That's really true for everyone. None of us know what the next Christmas or holiday will look like, but when you have a child whose life is literally defying the impossible odds of survival you think about it more than most people. That doesn't mean I let it ruin or cloud the day, it just means I take things for granted less and focus on the people who matter the most to me.

I am thankful for Vincent's good scan results and I'm looking forward to moving into the new year with continued hope. Thank you all for continuing to be here, we appreciate you and do not take the support of this community for granted. I hope you celebrated your holiday in a way that brought you some joy, and I wish everyone a Happy New Year!

12/28/2025

I am so relieved and happy to be able to share that the lung nodule that was noted on Vincent’s MRI was not seen on his CT scan!! It could have been some inflammation that quickly resolved or a shadow on the imaging, but whatever it was or wasn't, it's not there now so I will take that as another miracle manifested.

There is another nodule that was seen on the imaging but it is noted to be stable since 2022. I can not recall a lung nodule ever being noted on his previous imaging and I can't find any report that mentions it, his oncologist doesn't remember it either. The report also mentions a pleural cyst that is stable, but again I don't remember a cyst. So his oncologist is reaching out to the radiologist for more information on what prior imaging they are using to determine these findings are stable. I'm not necessarily worried that these are tumors but I do need to know more, and the genetic predisposition team needs to weigh in on whether or not we need to do any surveillance scans of the lungs. I wish there were no nodules and no more things to follow up on, but every path must be explored to prove it's a dead end and not a land mine.

Now we can ring in the new year with hope. Thank you for manifesting a miracle for Vincent with us.

12/24/2025

The Saturday after Vincent's MRI we had a ton of stuff to get done, but I woke up that morning and felt like we needed a little magic to lift our spirits. We decided to go to Sesame Place to see Santa and all of Vincent's friends from the Street. Vincent loves Sesame Place, mostly because he likes to see the characters. And the Santa's Workshop experience is the best and only place we can really take Vincent to see Santa without him being stressed by the pressure.

Thank you Santa Shobo for making Vincent's visit magical!

And please keep praying for Vincent, he has a 7am arrival on Friday for his chest CT. Cancer free now and forever.

12/19/2025

Vincent will be having a chest CT scan the day after Christmas to look at the nodule on his lung that was found on his MRI. It would have been today if he could do it without anesthesia, but he can't. I've had multiple people (CHOP staff) tell me that it's only 10 minutes, it's quick, and ask if I think he could do it. I know they mean well, but listen we are the last people who want to put him under anesthesia and we are also the ones who know him the best. And I'm not going to put him in that machine knowing he won't lay down or hold still because I'm not willing to expose him to the radiation to just have to do it again under anesthesia. Every radiation exposure is a risk for many reasons, but for Vincent radiation exposure could damage his cells and combined with his germline mutation it puts him at even higher risk for additional cancers. It sounds so easy to lay still for 10 minutes but Vincent is intellectually disabled. I don't know if I've ever actually wrote that here because it's a hard pill to swallow, but it is the truth and he is not capable of following directions to successfully complete a CT scan. He also needs IV contrast which means that he will need to get an IV while awake which will put him into a dysregulated state making it even less likely he could do it awake. And on top of that, the contrast is a weird sensation in your body and he will not understand it and be able to regulate himself. He will want to sit up, they would try to strap him down and even if we let them do that he will still figure out a way to wiggle enough to not get a clear image. He is strong. Plus, I'm not putting him through that. So anesthesia it is. They originally scheduled it for Christmas Eve and as much as I want it ASAP, we have spent too many holidays at the hospital and I'm not letting cancer steal this one too.

I also wanted to clarify that although it took way longer than it should have to get his MRI results and once I did I couldn't do anything about it until Monday, I was talking with Vincent's neuro-oncologist the whole time. I wasn’t just left hanging with the report. But, it was Friday and the people his neuro-oncologist needed to talk to weren't there until Monday. Vincent's neuro-oncologist is incredible and we are very close with him and he always responds to me whether it's a weekend or midnight, but doctors don't have much control in a healthcare system, this is real life not Grey's Anatomy.

So we are in a holding zone until after Christmas. Please keep praying and manifesting a miracle for Vincent. Cancer free now and forever.

12/14/2025

I don't like to give updates when I don't have all of the information to process but so many of you are reaching out and asking about his scan that I will just say it.

Vincent's brain, spine, kidneys, bladder, & thyroid are stable. Thank God.

But, there is a lung nodule that is taking up contrast and the report recommends a lung CT scan. I know everyone is going to want to sugarcoat it and say it's fine, it could be x,y,z and yes it could be. But Vincent has rhabdoid Tumor Predisposition Syndrome and the lungs are not an uncommon site for rhabdoid tumors, so this is a seriously scary finding. On top of that he had lymphoma that presented in his mediastinum, the cavity that separates your lungs from the rest of your chest. So yea, I'm really trying hard not to panic but it's pretty much impossible. And all we can do right now is a big fat nothing, nothing at all but to wait until Monday when I can get on the phone to make the calls to start doing something.

Please, please keep Vincent in your prayers, send him good vibes, positive energy, and loving thoughts. Pray like he is yours.

12/12/2025

Tonight The Delco Group is throwing a Christmas Party and you're invited. You just need to bring toys for the Sassy Massey Toy Drive which provides toys to support children who are hospitalized.

🎅 Meet Santa and his reindeer
😈 Keep an eye out for the Grinch
🎶 DJ, rides, entertainment
🍔 Food & drinks for kids and adults

📍 777 W. Sproul Lane, Springfield
🕓 Party starts at 4PM

Do your thing Delco!

12/11/2025

Still nothing. No report.

Making oncology parents wait this long for scan results should be considered cruel and unusual punishment.

Tomorrow Vincent has his kidney and neck ultrasounds. I will probably get those results before his MRI results.

Please let everything be stable.

*photo from Vincent's school field trip

12/10/2025

I have no results, and I don't expect to have them anytime soon because Vincent's oncologist let me know that radiology has been really behind on reading scans and finalizing the reports. Like DAYS behind! It is extremely frustrating to watch the changes in the healthcare system over the past 7 years, and not for the better. I could get way up high on my soapbox about it but I don't have the energy to scream into the void.

Vincent's start time was later than I like today, but he handled everything well and only asked for milk once. We walked into the MRI area and for the first time in forever, there was not 1 familiar face. I didn't like it. I don't think our nurse was a regular in MRI and the entire vibe just felt off today. I didn't like it. The scan seemed to take longer than usual and we passed the 3 hour mark in the waiting room before being called back.

This was Vincent's 52nd MRI and probably 200th time going under anesthesia. People tend to take going under anesthesia like it's not a big deal, but it is, every time. Vincent has never had a problem recovering from anesthesia. Until today.

Less than 10 minutes after we walked into his recovery room his airway obstructed, the nurse called a code, and 5 nurses and the anesthesiologist came running into the room and I quickly slipped out the door. I stood there for several minutes listening to them trying to get him breathing with my back to the door, every few seconds I would peek in at Ramin who would tell me everything I needed to know with his eyes. I think I held my breath the entire time praying that he did not need to be intubated. A nurse asked if I needed a chair, I calmly replied that "no I was fine, this isn't a big deal we've dealt with worse". If she believed me, maybe I would believe it too. I finally locked eyes with Ramin and knew it was ok, Vincent was ok, he was breathing. Yes, it was a minor situation in comparison to many of the things we have been through but the fear and the risk were the same in those moments. Vincent is fine. He was back to himself in no time.

Now we wait, the hardest part. And pray that we get stable results with no concerns. Cancer free, now and forever.

Address

P. O. Box 250
Prospect Park, PA
19076

Website

https://pages.lls.org/svoy/de/svoydelaware26/mnowroozi?fbclid=Iwb21leAPfZe1jbGNrA99l62V4dG4DYWVtAjExAHNydGMGYXBwX2lkDDM1

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