Victory 4 Vincent

Victory 4 Vincent Vincent was diagnosed with ATRT (brain cancer) at 4 months old. He beat it 3 times. Then he beat T-cell Lymphoblastic Lymphoma too. He's a miracle.

Born to love, forced to fight. This is our family's story of fighting for his life every single day. As an Amazon Associate I earn from qualifying purchases.

02/21/2026

It's a beautiful thing to watch Vincent discover something new that brings him joy πŸ’›

Today is International Childhood Cancer Day. πŸŽ—You know it happens. You know that kids get cancer. But you don't have to ...
02/16/2026

Today is International Childhood Cancer Day. πŸŽ—

You know it happens. You know that kids get cancer. But you don't have to think about it because it's not happening to you. It's not your kid. Until it is. And when it does happen to your child or a child you love, because statistically childhood cancer will touch your life at some point, you will be shocked and outraged by how little funding childhood cancer research is given. You will realize that parents selling lemonade and bracelets to fund cures their own children will likely never see, is a cruelty that should be no parent's reality.

8 years into childhood cancer and the things I have experienced and watched others experience belong in a horror show that you never want to watch. Almost every child with ATRT whose family we connected with in the first 3 years of Vincent's diagnosis has died. I am contacted by at least 3 families every month who found Vincent's story after their child was diagnosed with ATRT. When Vincent was diagnosed with a secondary cancer in 2022, he was only the 3rd child I had known of who that happened to. Now, only 4 years later, I have lost count of how many children with ATRT have developed secondary cancers likely due to their treatments. As more kids are surviving ATRT longer, we are seeing more of the long term toxic side effects of treatments. Treatments we had, and still have, no other choice but to use. The reality is so hard for me to think about, and impossible not to be pi**ed off about.

Cancer is the #1 disease killing our children. There are no excuses for why the world isn't doing more. 1 in 5 children diagnosed with cancer will die. Next time you're in your child's school, take a look around and think about how many 1 in 5 really is.

Find a cure. The children are waiting.

Vincent is EIGHT!!! I can't explain how miraculous that statement is. And unless you've been here for a long time, or yo...
02/13/2026

Vincent is EIGHT!!!

I can't explain how miraculous that statement is. And unless you've been here for a long time, or you know ATRT, you can't comprehend it either. He made a bit of dramatic entrance into this world. He was born 2 weeks early, the doctor told me I wasn't in labor and they would be likely sending me home just a few minutes before she examined me and realized that he was in fact on his way into this world. Even after I told them how fast Mina came, they didn't believe me. He has been proving doctors wrong since the day he was born.

When Vincent was 4 months old and diagnosed with two ATRT brain tumors, we were told he had a 10% chance of survival and a life expectancy of 12 months. Each time he relapsed that percentage widdled down and when he was diagnosed with secondary t-cell lymphoblastic lymphoma there was no hope and no expectation that he would even survive treatment.

But here he is, turning 8 years old. Walking, talking, going to school, playing with friends, loving construction vehicles and dinosaurs, adoring Mina, being a daddy's boy, and showing the world that miracles happen. 8 years is like 3 lifetimes in the world of ATRT. That sounds insane, and it is, but it's the hard reality of this disease. Most kids with ATRT don't make it to their 8th birthdays. I will never understand why Vincent had cancer (and there is no explanation that I would accept) but I will also never take 1 day of his life for granted and I will be grateful for every second of it.

When he was born 8 years ago I knew he was going to change my life, but I didn't know how many other lives he was going to touch and how much hope he was going to bring to so many others.

Happy Birthday baby boy, you are the best of everything in this world.

🎈 πŸŽ‚ β€οΈπŸŽ‰
02/12/2026

🎈 πŸŽ‚ β€οΈπŸŽ‰

02/11/2026

4 years ago today, after a regular surveillance MRI, we received a call from Vincent's neuro-oncologist telling us that we needed to come back to the hospital to be admitted. There was an 8 cm mass in Vincent’s chest compressing his superior vena cava, the main vein carrying blood from his upper body to his heart. His neuro-oncologist conveyed the seriousness of the situation but it was so hard to accept because he was doing so well. His birthday was in 2 days and we were supposed to leave for Disney World the next day. Mina was 11 and not only did I have to tell her our trip to Disney was canceled but I had to tell her Vincent was being admitted again and why. Vincent laughed and played for days in the hospital like nothing was wrong as they monitored him and tried to get answers. It was so weird being there and receiving no medical care, we were basically there waiting for his blood supply to be cut off by the mass or figure out what was wrong, and we didn't know what was going to come first.

Can you spot Vincent passing the Olympic torch?
02/10/2026

Can you spot Vincent passing the Olympic torch?

Vincent has been doing really well.  Last week was the one year anniversary of his port removal and it has been so relie...
02/10/2026

Vincent has been doing really well. Last week was the one year anniversary of his port removal and it has been so relieving to not have to worry every day about the potential of needing to make an unexpected rush to the ER.

His medical appointments in January were cancelled because of bad weather so he's had a little break from going to CHOP. He does have to go to the dentist on Wednesday which he hates and I dread, and then he will get a 2 week break before rolling into scans and lots of appointments in March.

He is still loving school and making great progress on his goals. He also started working with a reading specialist recently! He is doing things I couldn't have imagined possible just a few years ago. I almost didn't send him to school. We had fought for his life so hard for so long and I was so scared to send him to school for so many reasons. But, sending him to school was the most amazing thing for him and I realized that this was what we were fighting for, a life for him to live and not just survive.

Today is World Cancer Day. πŸŽ—Cancer. It's one word used to describe over 200 distinct types of disease each with varying ...
02/05/2026

Today is World Cancer Day. πŸŽ—

Cancer. It's one word used to describe over 200 distinct types of disease each with varying sub-categories. It's one word that everyone is terrified of, and 4 out of 10 people will hear their doctor tell them they have at some point in their lives. If you have cancer and you are alive 5 years after your initial diagnosis, even if you die 1 month after the 5 year anniversary, statistics will report that you survived. Maybe you knew those 3 facts, maybe you didn't. What you do know is that you don't want cancer and you don't want anyone you love to have cancer. What I hope you never know, is how profound the human experience of cancer is. It's not anything like what it looks like from the outside, and no commercial or tv shows can touch the depth of it.

Cancer is more than a medical diagnosis. It changes everything, forever.

I can't believe the first week of January is over, and yet I also feel like Christmas was months ago. The holidays snuck...
01/09/2026

I can't believe the first week of January is over, and yet I also feel like Christmas was months ago. The holidays snuck up on me and then I blinked and they were over. I hate how time seems to speed up the older I get.

Vincent is so happy to be back in school. Every morning during the break he would say "we are going to school today" with hope in his voice. He thrives on the routine of school and the long breaks are hard for him. He also missed a lot of school in December for medical appointments which had his schedule all messed up so it's nice to get back into a routine before the cycle of appointments start all over again.

Mina's club volleyball season started with her first tournament on Sunday. Most of our weekends will be spent courtside watching her doing what she loves. I'm so grateful for my family who care for Vincent so we can both watch her play. We have missed so many things in the past and she's almost halfway done high school now, I don't want to miss anything else and it's going by too fast.

Next week, Mina will kick off her campaign for Blood Cancer United Student Visionary of the Year. She has been working hard with her team members to make her campaign successful and she will be sharing more here with you once the campaign officially starts on January 14th. If you have a business and would like to sponsor her with a tax deductible donation, please send me a message.

I am hoping for a boring January.

Oh, and Happy New Year!



πŸ“Έ credit: Mina

01/01/2026

Had to jump on this trend.

Almost 8 years later and he's still here beating the odds. Never Give Up

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P. O. Box 250
Prospect Park, PA
19076

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