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Neuroendocrine Tumor Research Foundation

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Neuroendocrine Tumor Research Foundation

Dedicated to discovering better treatments and cures for patients with neuroendocrine cancers. Leading global funder of neuroendocrine cancer research.

11/19/2025

After 2+ days of exchanging ideas, sharing data, and building new collaborations, the 2025 NETRF Research Symposium has come to a successful close.

Today's program opened with a powerful patient presentation by Jake Dawson, reminding us why this work matters and energizing researchers to push forward with renewed purpose. Later, Dr. Mauro Cives closed the meeting by expressing the "...urgent need to accelerate the pace (and clinical translation) of scientific discoveries in the neuroendocrine cancer field."

Thank you to everyone who participated for making this such a productive meeting and for being such an exceptional community. The momentum from this symposium is sure to drive breakthroughs in the months and years ahead.

And, a special thank you to our sponsors for helping to make this meeting possible: Presenting sponsor Exelixis; additional support provided by Chimeric, ITM and Perspective Therapeutics; travel grant support provided by Jim Rodin, Camurus and RayzeBio.

11/19/2025

The first full day of the 2025 Margie and Robert E. Petersen Neuroendocrine Tumor Research Symposium offered powerful insights and inspiration.

Dr. Pamela Kunz's opening keynote traced two decades of remarkable progress in neuroendocrine cancer research and treatment while charting the path forward. As she put it, "NETRF has catalyzed practice-changing research and helped build the next generation of NET scientists."

What makes this symposium truly exceptional? The infusion of patient voices, groundbreaking research discoveries, and a collaborative community united in advancing neuroendocrine cancer science.

11/18/2025

The 2025 Margie and Robert E. Petersen Neuroendocrine Tumor Research Symposium is officially underway! Tonight's poster session and reception buzzed with the energy, collaborative spirit, and scientific innovation of this passionate research community.

It was the perfect launch for tomorrow's full day of leading-edge scientific sessions.

11/14/2025

Thanks to funding from NETRF, Dr. Jennifer Eads is leading the first-ever clinical trial using CAR T-cell therapy to treat neuroendocrine tumors.

Your support makes this research, and the promise it holds for patients and their loved ones, possible.

Let’s keep the momentum going. Make a gift to NETRF by Giving Tuesday and your gift will be matched up to $75,000.

Double your impact: https://netrf.org/get-involved/give-now/?utm_source=FB&utm_campaign=EOY&utm_content=nov14

11/10/2025

Spread the word, it’s World Neuroendocrine Cancer Day!

Today, the world unites to shine a light on neuroendocrine cancer. This movement is bigger than one day - but today, we’re making it loud. We’re uniting, educating, and inspiring hope for every patient, everywhere.

We’re on the brink of major breakthroughs in neuroendocrine cancer research. But we can’t get there without you. This Neuroendocrine Cancer Day, consider making a gift to NETRF. Every contribution – big or small – brings us closer to better diagnostics, better treatments, and ultimately, cures.

Your donation will be matched dollar for dollar, up to $75,000, if you donate by December 2!

Spread the word. Share hope. Make a gift today: https://netrf.org/get-involved/give-now/?utm_source=FB&utm_campaign=EOY&utm_content=nov10

11/07/2025

Brittany Holzhauer is a mom determined to do everything she can to be there for her two young children. After being diagnosed with neuroendocrine cancer, she turned her determination into action, starting her own non-profit to fund research for this complex disease.

Her support for NETRF and her efforts to raise funds for neuroendocrine cancer research are an investment in the future, for herself, her family, and thousands of others facing this disease.

You can make an investment for the future of patients like Brittany. Donate today and your gift will be matched dollar for dollar, up to $75,000, through Giving Tuesday on December 2.

https://netrf.org/get-involved/give-now/?utm_source=FB&utm_campaign=EOY&utm_content=nov7

11/01/2025

Let’s Make Breakthroughs Possible This Neuroendocrine Cancer Awareness Month!

Today marks the first day of Neuroendocrine Cancer Awareness Month in NETRF’s 20th anniversary year!

We’ve come so far in a short time, with over eight new therapies available, better diagnostics and imaging, and personalized medicine on the horizon. But we can’t stop now, and we need your help.

Let’s use November to raise awareness and drive new discoveries. Make a gift to NETRF to fund the best science while offering hope to patients and their loved ones.

If you donate by December 2 (Giving Tuesday) your gift will be eligible for a dollar for dollar match up to $75,000!

Make your donation today ➡️ bit.ly/3WwEh5F

10/29/2025

Share your voice to advance and Care!

The 2nd Survey of Challenges in Access to Diagnostics and Treatment for NET Patients (SCAN2), launched by the International Neuroendocrine Cancer Alliance (INCA), is gathering insights from neuroendocrine cancer patients, caregivers, and healthcare professionals to better understand the real-world challenges in diagnosis, treatment, and ongoing care.

Your input helps identify gaps in access to care and shapes a stronger future for the community.

Take the survey by November 30th ➡️ https://incalliance.org/scan2025/

NET Cancer Day

10/28/2025

You still have a few days left to bid on luxurious accommodations at some of the best hotels and resorts across the country while raising critical funds for neuroendocrine cancer research! Don't miss out on some of the amazing deals on offer through the Sheryl Strong 2025 online auction, in memory of Sheryl Sorem. Bidding is open now through October 31.

Bid now ➡️ https://app.galabid.com/sherylstrong2025/

10/24/2025

We've had the privilege of attending the NANETS annual conference this week, where we presented the 2025 Basic/Translational Science Investigator (BTSI) Award to Dr. Suzann Duan. This honor is made possible through our partnership with NANETS and is supported by NETRF.

Dr. Duan was recognized for her innovative proposal, "Targeting the Epigenetic Landscape of GEP-NETs through Menin-MLL." Dr. Duan's work exemplifies the dedication and scientific innovation necessary to better understand and treat neuroendocrine cancer.

Congratulations again to Dr. Duan. You can learn more about her research on our blog. https://netrf.org/2025/08/18/netrf-btsi-awardee-suzann-duan/

Pictured from left to right are: Dr. Jennifer Chan, NANETS outgoing president, Dr Suzann Duan, the 2025 recipient of the NANETS/NETRF Basic Translational Science Investigator Award, and Elyse Gellerman, MHS, CEO, NETRF.

10/24/2025

If you missed our annual Know Your NETs patient and caregiver education conference in July, there's good news! The full conference is available on Youtube, and you can easily select the sessions you're most interested in watching.

The program includes expert-led talks, a tumor board discussing complex cases, a patient-focused reflection on thriving with NETs, and a dynamic audience Q&A panel.

Whether newly diagnosed, living with NETs for years, or supporting a loved one, this recording offers knowledge, empowerment, and a roadmap for the future.

Watch now ➡️ https://www.youtube.com/playlist?list=PLJkbESKljsGwCr-pkCcmxOz0DUbT7EA3T

10/23/2025

For 16 years, Wayne Firsty and his two children Shay and Alana, have completed a moonlight walk fundraiser in memory of their wife and mother Julie Seltzer-Firsty, with proceeds benefiting NETRF.

This year's walk presented a unique geographic challenge: Wayne was in Palo Alto, Shay in Denver, and Alana in New Zealand!

But after setting a multi-year goal to raise $100,000 in 2023, they refused to let distance stop them. Connected by WhatsApp, they walked simultaneously, united in spirit and purpose.

Not only did they surpass their $100,000 goal, which will fund a Mentored Research Award, they did it together, while honoring Julie's belief in the power of research.

Huge thanks to the Firsty family and their sponsors, who are making critical research for neuroendocrine cancer possible.

Interested in community fundraising?
Learn more➡️https://netrf.org/get-involved/community-fundraising/

Address

100 Hancock Street
Boston, MA
02171

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+16179461780

Website

http://www.netrf.org/

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Dedicated to discovering cures for patients with neuroendocrine cancers - www.netrf.org