What are the opening hours?

Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm

Neuroendocrine Tumor Research Foundation

Home
United States
Boston, MA
Neuroendocrine Tumor Research Foundation

Dedicated to discovering better treatments and cures for patients with neuroendocrine cancers. Leading global funder of neuroendocrine cancer research.

04/21/2026

This week, NETRF is at in San Diego, one of the world's largest cancer research conferences, with Chief Science Officer Anna Greene, Board Member Carrie Camino, and several NETRF-funded researchers raising awareness of neuroendocrine cancer.

Events like are critical for advancing cancer science, connecting the research community, and amplifying the patient voice.

Carrie's poster, "Thriving in the Gray," makes the case for patients and researchers working as true partners. As she puts it: "The best research happens when scientific expertise is combined with lived experience."

04/16/2026

Each year, Wayne, Shay, and Alana Firsty walk in memory of Julie Seltzer Firsty, Wayne's wife and Shay and Alana's mother, who died from lung neuroendocrine cancer in 2014. With every walk, they fundraise for NETRF, and over the years, the generosity of their community has added up to something remarkable.

Recently, the Firsty and Seltzer families reached a milestone: sponsoring a NETRF Mentored Research Award focused on lung neuroendocrine cancer. In February, Wayne and Shay visited the University of Colorado Anschutz Medical Campus to meet the scientists their fundraising is helping to support. As Wayne put it, "What was once a goal is now a REALITY."

Read their story and learn about the groundbreaking research their community made possible. ➡️ https://ow.ly/lBan50YKCoe

04/15/2026

We're bringing patient education to Columbus, Ohio on June 26!

Join us for a free, in-person program to learn from leading experts in neuroendocrine cancer and make meaningful connections with fellow patients and caregivers.

Agenda topics include:

- What's new in clinical trials?
- What's new in treatments?
- Managing symptoms that impact quality of life
- Q&A with expert panel

REGISTRATION IS OPEN. Take a moment to register now as space is limited.

https://ow.ly/IsLP50YK1af

04/10/2026

How does meaningful support for neuroendocrine cancer research change what's possible?

NETRF grantee Netta Mäkinen, PhD, shares how NETRF funding has shaped her career and her drive to find new treatments and eventual cures.

04/08/2026

☀️Summer is coming and so are two events designed just for the neuroendocrine cancer patient and caregiver community.

📍 NET Impact | Columbus, Ohio | June 26

💻 Know Your NETs | Online | July 18

Whether you're newly diagnosed or years into your journey, these programs are built to inform, engage, and empower you.

Get notified the moment registration opens 👉 https://ow.ly/pjCr50YFOco

04/02/2026

In the latest episode of the NETWise podcast, "Understanding Pathology," we look at the central role pathology plays in the diagnosis and management of neuroendocrine cancers — from initial biopsy through classification, grading, and treatment decision-making.

Drawing on insights from leading clinicians, pathologists, and researchers, this conversation offers a clear and informative look at how diagnostic precision is established and why it's essential.

Listen here or wherever you get your podcasts ➡️ https://netrf.org/podcast/episode-53-understanding-pathology/

04/01/2026

We're inspired by the latest round of NETRF Grantees and look forward to the results of their research.

These scientists are bringing us closer to:

- Earlier, simpler detection and better diagnostic imaging
- Personalized care guided by biomarkers and tumor signatures
- New targeted and combination therapies to improve effectiveness and reduce side effects
- Overcoming resistance and preventing metastasis and progression
- Immune-based therapies to mobilize the patient’s immune system

Your generosity makes this research possible. With your continued support, we can drive research discoveries that transform the lives of patients and their loved ones.

Take a moment now to support breakthroughs today, cures tomorrow ➡️ https://netrf.org/get-involved/give-now/?utm_source=Facebook&utm_medium=social&utm_campaign=4-1-26

03/30/2026

Happy National Doctor's Day! 🩺✨

Today, we're celebrating every doctor who has been a guide, an advocate, and a source of hope for neuroendocrine cancer patients and their families. 💙

We are so grateful to the neuroendocrine cancer specialists who are improving the lives of patients and their loved ones every day. And, special thanks to those who partner with us to deliver exceptional patient education programs.

Which doctor has had a meaningful impact on your neuroendocrine cancer journey? Let us know in the comments below! 👇

03/27/2026

Congratulations to Mentored Research Award recipient Hui Yu, MD, PhD, Instructor at the University of University of Colorado Anschutz School of Medicine! 🏆

Dr. Yu is studying one of the rarest and least-understood lung conditions: DIPNECH (Diffuse Idiopathic Pulmonary Neuroendocrine Cell Hyperplasia), a disease where abnormal neuroendocrine cells slowly build up along the small airways and can break through into surrounding lung tissue, progressing to lung neuroendocrine tumors (lung NETs).

By analyzing patient DNA, Dr. Yu's team has identified key gene mutations that may be driving this disease. Now, they're using advanced tools to understand how those mutations alter cell behavior and to pinpoint drugs that can target the abnormal pathways involved.

This research could lead to major breakthroughs in the treatment of DIPNECH.👏

Read more about Dr. Yu’s research: https://ow.ly/XRlZ50YzPky

This research is made possible through the generous support of The Firsty Family and the extended Seltzer Family, in memory of Julie Seltzer Firsty.

03/25/2026

Tijana Jovanovic-Talisman, PhD, Associate Professor at City of Hope, is among this year's NETRF Pilot Award grantees, and her work is deeply personal.

Six years after Tijana began neuroendocrine cancer research, her mother Branislava was diagnosed with a small intestinal neuroendocrine tumor, which strengthened Tijana's commitment to improving diagnostics and monitoring.

Tijana and her team are working to identify markers that indicate vesicles, tiny, bubble-like particles, originated from a neuroendocrine tumor, a step toward developing a non-invasive blood test for early detection.

"I first came to NETRF as a caregiver searching for trustworthy information when my mother was diagnosed. What I found was an organization that genuinely puts patients at the center of everything it does. When this grant opportunity came along, I knew I wanted to be part of that."

Read Tijana's story and learn more about her research ➡️ https://ow.ly/PNVL50YyM27

03/20/2026

We're proud to share that we've reached over 100,000 downloads of the NETWise podcast!

Since the start, we've provided the podcast to offer support, education, and community to patients and caregivers at every point along the neuroendocrine cancer journey.

It means so much that the podcast resonates with you. We look forward to continuing to bring you engaging and informative episodes!

Not yet familiar with NETWise? Listen here ➡️ https://ow.ly/Mh9k50YwTZE or wherever you get your podcasts!

03/19/2026

You're invited to our Community Fundraising Webinar on March 25!

If you’ve ever thought about organizing a fundraiser to raise vital funds for neuroendocrine cancer research, we're here to help you get started.

Join our Community Fundraising Webinar on March 25 at 2 p.m. (ET).

We’ll share simple ideas, practical tools, and ways that NETRF can support you every step of the way.

To register, please contact Steve Perna at steve.perna@netrf.org

Address

100 Hancock Street
Boston, MA
02171

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+16179461780

Website

http://www.netrf.org/

Alerts

Be the first to know and let us send you an email when Neuroendocrine Tumor Research Foundation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.