09/27/2021
Words of wisdom from moms who live this journey everyday, every hour and every minute. I am in awe of parents every day.
This afternoon, I met with the mom of a very little one who has just been identified as autistic. After talking for a while, I shared with her one of the most pivotal insights that Luau and I had when Brooke was younger. I thought perhaps it might be helpful to share here as well.
It took us a long time to figure out that Brooke didn't understand that anything was finite.
She believed - truly, viscerally understood the world in such a way that to her the word "No" meant "Not ever," and, conversely, the concept of doing something meant "We're going to be doing this thing forever."
When she kicked and screamed and physically resisted sitting at the dinner table, she was fighting against the concept of sitting at that table FOREVER. Think about that. Read it again. Literally.
When she melted down when we put away her magic markers, she was overwhelmed with grief from her belief that she would never draw with them nor see them ever again.
That understanding - seeing that little piece of the world from HER perspective, changed everything.
We began to use visual schedules, showing her what would come next. Proving to her that there WAS a next. We used "First / then" language to explain that we would do this first and then that. Reminding her that there would be a that. We gave her choices wherever we could so that she could have some sense of control over what happened when.
And we began slowly, gently, unraveling the idea that ‘not now’ means ‘never,’ in far more ways than one.
Originally posted Sept 27, 2016
{image is a photo of Brooke and me on the beach around the time this post was written. I’m cracking up and she is smiling knowingly, as though she’s very pleased with herself. It’s an utterly delicious picture that has nothing to do with the post, but it popped up in my FB memories last night and I love it.}