10/27/2025
Yes I’m posting about epilepsy again all month peeps of November starting early
PLEASE READ ITS IMPORTANT TO ME 💜💜💜 AND MY WELLBEING
This is a good read for someone who has epilepsy including family and friends, unfortunately we have to think about these things even while traveling. Due to noises, lights and exhaustion.
*Please read if you are travelling with Epilepsy!
Hello everyone! It’s been over 5 years since I’ve been diagnosed with epilepsy Since then I’ve been researching and trying to understand this disease better to prepare myself, family and friends for anything that could pop up.
Things I brought on the plane:
1. Noise cancelling headphones
2. First Aid Kit with my extra meds.
3. Don’t have one but will Invest in one. Medical bracelet with QR code
4. Anxiety meds to help with mood swings.
TO DO BEFORE TRAVEL:
1. Try to plan a flight around taking your medicine. My flight (Pvd to JFK to Aruba) left in the morning and took 9 hrs from start to finish so I only had to take them once.
2. Traveled with family, but if not:
Solo: tell the people next to you that you have epilepsy and to call over a flight attendant. And where your first aid bag would be with extra meds. May even be a good idea to add a note inside your emergency bag on what to do.
With a friend: book your seat early so you sit with them. As they would also aware of the safety plan.
3. Plan an extra recovery day into your trip. I have a “do nothing” day, so you can relax in your hotel room and get lots of sleep to avoid a seizure from jet lag, no joke.
4. Make sure you have a way to get from the airport to your destination, without risking driving while jet lagged. This is especially dangerous if you risk a seizure.
5. Ensure family and friend’s understand you cant be on the go 24/7 as this leads to exhaustion, fatigue can set off a seizure at any point. It’s important that people traveling with you understand the severity of exhausting someone with epilepsy. Your day needs to be planned and it’s ok to say no.
6. Plan what time to take your meds if there is a time change.
I took my bottles just in case your flight changed, delays etc.
7. Explain to friends and family that it’s possible for mood swings such as anger, emotional crying, rage etc. from meds. They need to be able to assist not try to fix you. And most of all be understanding to these swings.?they are uncontrollable!
Medical Bracelets: I personally dont have one but will be investing in one.
It notifies folks you have this invisible disease and If someone scans the QR code then whatever information you would like someone to have will come up. It’s totally customizable for you. (Ex.: Name, Age, Home Country, Epilepsy and Emergency Contacts)
*I did not have one while travelling with my family and friends, but looking back I wish I had in case we got separated.
I hope this can be helpful to you! 💜
