Living With Epilepsy Journey

04/29/2026

This is why we are exhausted after a seizure…..💜

04/29/2026

04/28/2026

As per medical insights, epilepsy can lead to brain injury, and my history of seizures has progressed to brain damage affecting cognitive function. The resultant stress from this new situation is considerable. It's challenging to come to terms with the loss of abilities such as memory and concentration, and balance that were previously effortless.

04/27/2026

Hello Warriors, I hope you had a seizure free day, and a pleasant day of relaxing💜

04/25/2026

Today I kept busy and created a mural for the season in my mother in laws door, I do it every season for her.

04/24/2026

It's essential to acknowledge that the condition extends beyond seizures, and certain medications can have more profound implications on daily life. Personally, I'm uncertain if others experience similar side effects, but I've encountered tiredness, fatigue, headaches, fluctuating concentration levels, and compromised balance, which was evident when I recently fractured my foot and sprained the other foot with an existing fracture, alongside sleep disturbances. Previously, I experienced mood changes while taking Keppra, which were concerning.

04/23/2026

Good night Warriors, have a restful sleep.

04/23/2026

Summer is around the corner ….. be cautious!

04/23/2026

It’s really tough having epilepsy, there is so much more than just seizures, there’s the medication side effects…. For one, I’ve been on 7 different medications some together some single some mixed. Just to find the right concoction. These meds are strong and are horrible and helpful at the same time. Keppra sent me in a rage. The wind could blow wrong and I wanted to fight everybody. Along with that, I was on 3200 milligrams at once.

People, family and friends don’t get it. They think your faking or they think your intentional, if you could just really listen to yourself…. And think clearly, we are taking medication that affects how our brain functions…….what is there not understand? As I talk to others with Epilepsy it’s all the same…. We’ve lost friends and I say that loosely as you never had a friend if they left you because you had an episode. This is no joke, until you’ve walked a day, week, month and year in our shoes… don’t judge!

Follow me on my journey…. To understand what one goes through on this invisible disease marathon. See below what Epilepsy brings to the people suffering from this invisible disease.