WPI

02/06/2026

Not all fatigue is the same.
Feeling tired after a long day is human.
Feeling worse after rest, crashing after small effort, and not bouncing back for weeks or months is something else entirely.
If this sounds familiar, you’re not lazy, broken, or imagining it.
Chronic fatigue is real and it deserves to be understood.

02/04/2026

Hey all!
This small study looked at LDN + NAD+ for post-COVID fatigue. About 52% improved, while others didn’t — highlighting how variable responses can be.

Since long COVID and ME/CFS often overlap, we’re curious:

Has anyone here tried NAD+?
Did it make a difference for you?

Full article linked for those who want the research details.

A subset of patients experiences persistent fatigue symptoms after COVID-19, and patients may develop long COVID, which is characterized by lasting sy…

01/30/2026

Giving language to your needs is crucial!
Tell us about a moment you felt like you broke through to your provider.

 

01/23/2026

Not all movement looks the same — especially with ME/CFS.
These options are meant to support pacing and reduce symptom flares, not push through them.
Your limits are real. Acknowledging is part of care.

.cares

01/21/2026

Amplify Wednesday!

This article explores a leading ME/CFS hypothesis through both rigorous science and lived experience. Published on Health Rising by Cort Johnson, who lives with ME/CFS himself, the depth of research and insight really shows. If you’ve ever felt like patients often understand this illness more deeply than the system does, this is well worth a read!

Klaus Wirth shows how ME/CFS and long COVID may be acquired muscle diseases caused by poor blood flows and mitochondrial dysfunction

01/15/2026

ME/CFS is a real, complex, and disabling illness — even when it’s invisible.
One of the most powerful ways families can help is by believing what their loved one says about their body.
Belief reduces isolation. Belief builds safety. Belief is a form of care.

01/13/2026

If winter feels harder, you’re not imagining it.

An NIH study found that many people with ME/CFS experience a clear worsening of symptoms in winter, including fatigue, pain, sleep disruption, anxiety, and low mood.

For some, symptoms even mirror Seasonal Affective Disorder patterns. This research helps validate what so many patients report every year and opens the door to supportive options like light therapy for certain subgroups

Check out the article below!

This study aimed to determine symptom patterns in patients with chronic fatigue syndrome (CFS), in summer and winter. Comparison data for patients with seasonal affective disorder (SAD) were used to evaluate seasonal variation in mood and behavior, atypical neurovegetative symptoms characteristic of...

01/07/2026

Did you know fiber impacts more than digestion?
It can influence gut health, inflammation, and metabolic stability, areas often affected in ME/CFS.
Knowledge is one tool in self-advocacy.

01/01/2026

Advocacy doesn’t have to be loud to be powerful.
In 2026, may you choose what supports your body, your energy, and your wellbeing, one boundary, one question, one moment at a time.

Happy holidays to our community.

12/29/2025

What happens when healthy human muscle is exposed to ME/CFS blood?

This new study used a “muscle on a chip” model and found that ME/CFS and long COVID serum directly weakened muscle tissue—especially in ME/CFS.

The findings add to growing evidence that something in the blood is driving muscle dysfunction, not deconditioning. A powerful step toward understanding post-exertional malaise and energy failure.

Read the full breakdown from Health Rising below.⬇️

Geoff’s Narration The GIST Muscles on a Chip Whoa, another muscle study. We recently reported on a proteomic study suggesting that muscle repair problems contribute to post-exertional malaise in ME/CFS. Now, we have a direct muscle test – and even better – we get to see whether something in th...

12/24/2025

From our community to yours, we’re sending warm holiday wishes and gratitude for the connection we share.