Jordyn Barker

Jordyn has a very rare syndrome called micro deletion syndrome 17.q.21.31. I want to raise awareness She has over 22 Different doctors and specialist.

Jordyn is a very loving 2.5 yr old baby with alot of medical problems. She is very loveable and has a great presonality. She cant walk but can say some words.

07/27/2025

Back on ambulance with Jordyn. So many surgeries, ER trips, procedures and new problems. All in thr last 6 months.really starting to worry. She was not predicted to live this long. Please pray for my girl

12/19/2024

Please say a prayer and be thinking about Jordyn tomorrow. She has kidney surgery at TC Thompson because her kidneys have gotten worse. She may come home with a bag or having to be catherized. Lets hope neither one happens. She has went from grade 3 kidney reflux in left and grade 4 kidney reflux in the right ... thanks

09/22/2024

Hello everyone, I wanted to jump in and see how things are? I wanted to let everyone know I am making silicone chewyable food grade keychains,wristlets, chew toys ( for every age) pacifier clips, stroller & carrier clips, reversible waterproof baby bibs ( all sizes), reversible waterproof burp cloths, landyards, ex large receiving blankets, deluxe ex large Luxe Fleece blankets (3 to 4 yards each which covers 2 ppl laying together past their feet and head). These blankets are think and very soft. They are not sold in stores due to the cost per yard but I have found a way around it. We offer stanley accessories and we also accept customer orders. They chewy beaded items are available in any shape, size, color and more. Please send me a message if you would like more pictures of completed ones or would like to puchase one you customized or one already made. Please remember for every. 3 your referral for xmas that purchse ou get Anything we offer & we offer more more than listed.. Have a great day, Melissa
You can text me at 423-994-3639 or email - melissa_albert97@yahoo.com if you have questions or would like to submit an order. Turn around is 1 day except for bibs and burp cloths if I have exacly what you want as far as fabric.

08/22/2024

Its been a while since I have updated Jordyns FB so here goes. Jordyn is 15 yrs old now, 67 pounds and mean as mean can be but only to me & not anyone else. She will be in 9th grade and has not started school back because she is having her custom wheelchair made for the 2nd time. Her voice & demeanor has matured and she can say alot of words and at the right time. She is still in PT but she will be walking by the end of this year. I will be updating her pics on here within the week so everyone can see the changes she has made.
Anyone of her KDVS kool kids please send her your updated info and pictures so I can read them and show her. Thanks Mom

11/05/2021

Jordyn was extremely happy to meet Josh yesterday. She held her arms out and went to sit on his lap. Little flirt. She has never ever done that to any male ever!

10/05/2021

Although Ms. Jordyn has started being a pistol daily she still is still a hoot. She will be fussing some crazy language so I will Say, "ARE YOU READY FOR BED" expecting to get the same language of her fussing but Instead she says no.
What a personality I have on my hands.

08/19/2021

3rd day of school and I get the call saying Jordyns sister has be exposed to someone who tested positive to covid. Jordyn has not had the shot due to medical reasons and if she were to get covid it would take a toll on her and she more than likely could not survive. So when we get home her sister went to her room and could only come out to go to the bathroom with double masks and gloves. Her and Jordyn were not to even see each other. I went on a spring cleaning event and still have not finished after 8 days. We all mainly stay at home and don't get out and I think that is what has kept us safe until now. Tomorrow will be 9 days and they said if Jordyns sister Hannah was going to get it she would show signs anywhere from 7 to 10 days. Doing this alone with no family nor support system is extremely hard therefore if I get it how am I supposed to be sick? I can't, I am not allowed. I am the sole caretaker of both girls and there is no one to take care of them should I get sick. It's very sad being in this situation and having this life. I truly hope no one else has to go through this. I do everything possible to not ask anyone for help because there is only a couple to even ask and the always say they can't but they have no problem asking me to help them alot which I do. I have reached a point where I am not going to do that anymore. I am a giving person but when you never ever help in return that's not right. When you have to break down and ask for help which is fine we all need help some times, make sure you know that when they call on you for help then you need to return the favor. It doesn't matter who the person or relationship is you still should always be a person of your word and help them as well. Don't be that person! If you are that person just know in the back of your mind that the person who always gives you help, money or their time will stop doing it because you are never there for them. People like that are nothing but users, selfish and should be ashamed of themselves. One day it will truly hit them. Thought of the day** No Jordyn does not have it nor her sister or myself. Thank you God for having your hand on our home protecting us.
I am sorry I have not updated her page in a while. I was not able to sign in. Stay safe.

07/12/2021

I am very sorry I have not posted in a long time. I have not been able to get into my FB until today. Jordyn had surgery on her back and was cut from her neck to her bottom. She is doing much better now. I have a business fb page where I make silicone chewy items, chunky necklaces, waterproof reversible bibs and burp clothes for all ages, deluxe extra large blankets not sold in stores, woman's necklaces, extra long receiving blankets and more. Please go take a look at the page called The Sapphire Blitz and let me know if you might be interested. I am laid off right now so I have all the time to make custom orders. Thank you all for continuing to stay with Jordyn and in advance for checking out my other FB page.

01/04/2020

Jordyn had a great holiday besides the fact of living in a hotel for the last 2 months due to a flood. You would not believe how hard it is to find a contractor who will do the work and give an estimate. It is miserable living in a hotel. Jordyn got locked in her room when the nurse had the dead bolt locked to the room and came into the adjoining room. The door came to a close when she went in the other room so maintenance had to break the connecting room door after 45 minutes to get to Jordyn. Then last night the lights went out and they didn't have a generator. We need to move home!!! We are waiting on make a wish to set up our date and come out with shirts with Jordyns name on them to give her the wish. So exciting.

10/27/2019

Jordyn favorite saying, "I am cussing". I always say Jordyn you better stop that and every time she says I am cussing. Too funny

10/15/2019

Sorry I haven't updated in a while but I couldn't get access to my FB because I had a virus which left me no choice but to factory reset. Jordyn is doing good. School is going ok for her. We are waiting for her next back surgery to replace all of her rods. This should be in the next couple months and I know she will not be happy about it. Thank you all for continuing to stay up on Jordyn.

Address

Ringgold, GA
30736

Telephone

+14239999999

Website

http://www.jordynslove.blogspot.com/

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