HeartWorks

HeartWorks HeartWorks is a nonprofit creating outcomes & opportunities for the 1 in 100 born with CHD. Together, we're building a better future for CHD.

We advance research, lead clinical trials, and offer ways to support our mission. Together, WE BUILD HEARTS. HeartWorks was created in June, 2020 to accelerate and expand the product development pioneered by the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS), founded at Mayo Clinic in 2010. The HLHS program has formed a nationwide research consortium and developed cell-based therapeutics to treat CHD, some of which are currently in clinical trials. The HLHS program’s team of physicians, scientists, and engineers have a combined average of nearly 30 years of experience across their respective disciplines and have focused this expertise on treatments for the most severe forms of CHD, thereby furthering advanced research in genetics, stem cell biology, clinical trials, and cell-based manufacturing. The team developed a platform that enables multiple cell-based clinical trials to be conducted simultaneously in collaboration with a consortium of world class medical institutions. HeartWorks will expand the HLHS program product pipeline and grow its ecosystem of partners to scale up development of new CHD therapies, clinical trials, and product launches. Our ecosystem is a critical component of our success. All of our partners believe in and actively support our vision of transformative product development for the CHD community. We will engender trust with our benefactors, CHD children and families, and partner institutions by sharing data and outcomes at a level not possible before within individual institutions. We will share our successes together.

01/13/2026

One of our favorite moments of the Virtual Dinner is the CHD Showcase. 💙 Every photo and video reminds us who we do this work for: the resilient, incredible families who inspire us every day.

These images play on repeat thorughout the year, line the walls of our office, and are woven into our materials- constant reminders of the precious hearts we’re honored to support.

We’re now collecting photos and videos for the 2026 CHD Showcase, which will be featured during the Virtual Dinner on February 19. Thank you for being part of the HeartWorks community and helping us change outcomes for CHD.

📸 Share your photos and videos here: https://my.guestpix.com/guest/access/130099/bXJ8CFzz

Dinner registration: https://donate.heartworksinc.org/event/heartworks-5th-annual-virtual-dinner/e742574

01/09/2026

It’s been a wonderful first week of the new year, and we couldn’t be more energized. Every single person on our team is involved in work that has the potential to shake up outcomes for people living with CHD.

Big ideas. Bold science. Meaningful progress. And this is only the beginning.

We have so many exciting announcements coming soon, and we can’t wait to celebrate together on February 19 at our Virtual Dinner. Registration link in bio.

Thank you for being part of this journey - the future of CHD care is being built right now. 💙

CHDResearch BigThingsComing VirtualDinner EveryBeatCounts

01/07/2026

Kicking off the new year with some gratitude! We are welcoming 5 NEW teams to the HeartWorks family! Huge thank you and shout out to the teams below for taking the step to share your stories and amplify HeartWorks's impact with the trust of families like yours! Check out their pages here!

Team Owen Burns www.donate.heartworksinc.org/fundraiser/6771482
Team Markie Bradford www.donate.heartworksinc.org/fundraiser/6782546
Team Warrior Wade www.donate.heartworksinc.org/fundraiser/6803153
Team Lauren the Lionheart www.donate.heartworksinc.org/fundraiser/6847023
Team Kayla www.donate.heartworksinc.org/fundraiser/6859217

Do you have a CHD story to tell? Are you the parent or caregiver of someone living with CHD? Let us help you share your journey and fuel research and innovation to find a cure for CHD.

Start your team page here: www.donate.heartworksinc.org/teamofteams

Check out this team of advocates!  We are so excited to partner with Project 1 in 100 in 2026.  If you do not already fo...
01/05/2026

Check out this team of advocates! We are so excited to partner with Project 1 in 100 in 2026. If you do not already follow them, go check them out as they share their founders' stories this week.
Project 1 in 100

There are five of us behind Project 1 in 100, and every story looks a little different. This month, we’re opening the door to our experiences with congenital heart disease and the moments that led us here. We hope you see pieces of your own story in ours.

Cheers to a year of clarity, progress and better outcomes for CHD.
01/01/2026

Cheers to a year of clarity, progress and better outcomes for CHD.

Did you know? CHD isn’t just a childhood condition -  it’s a lifelong journey. 🫀Thanks to advances in care, more than 85...
12/29/2025

Did you know?

CHD isn’t just a childhood condition - it’s a lifelong journey. 🫀

Thanks to advances in care, more than 85% of children with CHD now live into adulthood. But that also means they need long-term support as their hearts grow and change.

Why this is important:
• Adults with CHD now outnumber children
• Many require specialized heart care for life
• Research is key to improving outcomes

At HeartWorks, we're working on therapies designed to support every stage of life, from infancy to adulthood. 💙

CHD doesn’t just impact patients, it impacts whole families. ❤️Parents become advocates.Siblings become cheerleaders.Car...
12/26/2025

CHD doesn’t just impact patients, it impacts whole families. ❤️

Parents become advocates.
Siblings become cheerleaders.
Care teams become extended family.

And every milestone - big or small - becomes something to celebrate. 🎉

That’s why HeartWorks is committed not only to science, but to hope. Hope for easier treatments, fewer surgeries, and a future full of possibility for the 1 in 100 born with CHD.

Thank you for including us on this super special event ❤️💙🎄
12/24/2025

Thank you for including us on this super special event ❤️💙🎄

*last minute gift idea *conversation starter during the holiday festivities*claim your seat at the virtual table🍷Registe...
12/23/2025

*last minute gift idea
*conversation starter during the holiday festivities
*claim your seat at the virtual table

🍷Register here > https://www.classy.org/event/heartworks-5th-annual-virtual-dinner/e742574?preview=true

Dinner Deets: Join us on February 19, 2025, for the 5th Annual HeartWorks Virtual Dinner - a night of cooking, connection, and compassion that unites hundreds of heart families, friends, and supporters from home. We’ll deliver a curated mealkit and a bottle of wine right to your door, so you can cook along with Chef John and help raise vital awareness and funds for CHD research.

Address

3033 41st Street NW, Suite 305
Rochester, MN
55901

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

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