Mary Gooley Hemophilia Center

11/04/2025

We hope that you join us for our annual holiday event!! See the flyer for more details. If you have questions or wish to RSVP - call the Center at (585) 922-5700.

10/31/2025

We understand that the current government shutdown may cause uncertainty or disruptions in essential benefits, such as SNAP (Supplemental Nutrition Assistance Program). We know that when resources shift, it can create difficult choices for individuals and families — sometimes affecting other important needs.
If you are feeling the impact of these changes or anticipate challenges in the coming weeks, please reach out to the Center’s Social Work team. We are here to help you explore available community resources, navigate benefit concerns, and identify supports that can help during this time.

You can contact us by calling 585-922-5700 or emailing Julie.dorey1@rochesterregional.org. All conversations are confidential.

We know these situations can be stressful, and you are not alone. Please don’t hesitate to reach out — we’re here to support you.
Warm regards,
Mary M. Gooley Hemophilia Center

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RESOURCES:
Mary M. Gooley Hemophilia Center
Social Worker: Julie Dorey
Main number: (585) 922-5700
Cell: (585) 559-0794- for immediate needs call the main number

November SNAP Benefits Information:
https://otda.ny.gov/snap-benefits-shutdown.asp

Food, Clothing and More:
https://www.211lifeline.org/
Find Food | Food Boxes | Food Bank in Rochester, NY | Foodlink
https://roccitylibrary.org/wp-content/uploads/MONROE-COUNTY-AREA-FOOD-CUPBOARDS.pdf
https://roccitylibrary.org/wp-content/uploads/MONROE-COUNTY-AREA-FOOD-CUPBOARDS-SPANISH.pdf
https://www.findhelp.org/
Holiday Assistance:
https://roccitylibrary.org/wp-content/uploads/Holiday-Information-Bulletin.pdf
https://roccitylibrary.org/wp-content/uploads/Holiday-Information-Bulletin-Spanish-Version.pdf

10/28/2025

The Center is now on INSTAGRAM! Follow us for up to date information and announcements.

https://www.instagram.com/mmg.hemophilia.center?igsh=Z3lqOW1kZDF5aHI2&utm_source=qr

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The Mary M. Gooley Hemophilia Center is an independent, federally designated Hemophilia Treatment Center (HTC) based in Rochester, New York (serving people in the surrounding 12 county region) that cares for people affected by hemophilia, von Willebrand disease, rare inheritable bleeding disorders, hemochromatosis and Gaucher’s Disease. The Center is a 501(c)(3) non-profit corporation and a New York State Article 28 Diagnostic & Treatment Center. Our origins date to the late 1940s, when Rochester-area families affected by bleeding disorders came together to improve their lives and the lives of their children. In 1953 the group was chartered as a Chapter of the National Hemophilia Foundation (now known as the National Bleeding Disorders Foundation). The Center remains an NBDF chapter today. Behind Mary Gooley’s energy and leadership, the Chapter opened a Treatment Center in 1959 – one of the first independent treatment centers for hemophilia in the country.

10/27/2025

We want to hear from YOU!

Please take a moment to complete this short survey and let the Mary Gooley Center know what matters most to you. Use the link or scan the QR code to get started.

Thank you for your input!

09/23/2025

JOIN US!!

We will be hosting speakers from around the country who are experts in healthcare policy and insurance. We hope to see you there.

Date: October 23rd
Time: 6:00-8:30 pm
Location: RIT Inn &
Conference Center
*Dinner will be served*

09/19/2025

Calling all patients/parents of pediatric patients!

Please take a moment to complete this short survey and let the Mary M. Gooley Hemophilia Center know what matters most to you. Use the link or scan the QR code to get started. Thank you for your input!

https://forms.office.com/r/57SD13Fyam

09/03/2025

Ready to win these amazing baskets at our raffle during the walk this weekend? See you on Saturday! Registration begins at 9am.

09/03/2025

Some Mary M. Gooley Hemophilia Center representation at the National Bleeding Disorders Foundation conference a couple weeks ago! There were several tracks geared toward medical, nursing, social work and patients all in beautiful Aurora, Colorado.

08/29/2025

Will we see you next Saturday, September 6th?! There is still time to sign up and join us at our Annual Walk to support our Hemophilia Treatment Center. It is a great way to interact within our community!

At the walk you will find:
- Bobby the blood drop!
- Raffle baskets!
- Music
- Ice cream truck
- Temporary tattoos

and lets not forget....

The Dunk Tank!

It's that exciting time again! Our annual Bleeding Disorder Walk will be taking place at Genesee Valley Park on Saturday, September 6, 2025! This annual fundraiser helps us to raise funds for supportive and educational programs for patients with bleeding disorders. It's also a great opportunity for....

08/20/2025

It's almost here! The deadline to receive a cool event T-shirt for our 2025 Bleeding Disorders Walk is fast approaching! To get a T-Shirt, you must register by Friday, August 22nd! Don't delay...sign up today!
This is a reminder to register for our 2025 Bleeding Disorders Walk!
Once again, we are proud to be hosting our region's largest Bleeding Disorders Walk. This annual event is a truly special opportunity for members of our amazing bleeding disorders community to join together to make connections, raise awareness and help raise funds for critical patient support programs.
The Walk will take place at the Genesee Valley Park Roundhouse Pavilion on the morning of Saturday, September 6th. Once again, we will have tons of fun family-friendly activities and even more fantastic raffle baskets! Go to www.ROCeveryStepCounts.com to learn more and register as an individual or join a team.
Again! In order to receive a Walk T-shirt you must register by Friday, August 22.
Questions? Call 585-922-5700 or email alison.schoeffler2@rochesterregional.org.
Please spread the word and bring your friends and family to help make this year's Walk even BIGGER and BETTER!
Hope to see you there! Remember...Every Step Counts!!

It's that exciting time again! Our annual Bleeding Disorder Walk will be taking place at Genesee Valley Park on Saturday, September 6, 2025! This annual fundraiser helps us to raise funds for supportive and educational programs for patients with bleeding disorders. It's also a great opportunity for....

07/22/2025

Interested in some fun family time this fall?! Double H Ranch is offering a Hematology specific weekend October 3-5! Eligible campers ages 5-21 years old. Click on the link to learn more information. If you have other questions, feel free to reach out to Julie, our center social worker @ 585-922-5700 or Double H directly!

Questions about how to get involved with the Fall Family Weekends?