03/19/2026
Join us in supporting Seviyn and her family 💜
Seviyn, a child that attends Daystar, was born with heterotaxy, a rare condition that impacts how vital organs develop and function. Her journey has required ongoing medical care, strong advocacy, and incredible resilience. While she’s home and making progress, her path continues to include long-term care and uncertainty, something many families navigating rare conditions understand all too well.
On Sunday, May 24th at 10 AM, her family invites our community to come together for the Sevyn Strong Heterotaxy Awareness Walk.
This walk is about more than one day. It is about building awareness, supporting families facing complex medical journeys, and creating a community where no one feels alone.
We walk for Seviyn and her strength.
We walk in honor of the children whose stories continue to inspire change and understanding.
Show up, stand together, and be part of something meaningful.
Learn more and get involved:
A community walk raising awareness for heterotaxy and supporting families navigating rare and complex diagnoses.