National Center for Deaf Health Research

National Center for Deaf Health Research Working to promote health and prevent disease with Deaf sign language users and people with hearing loss

Prevention Research Center of the CDC: Rochester Prevention Research Center

This social medium is supported by Cooperative Agreement Number U48DP005026 from the Centers for Disease Control and Prevention, Prevention Research Centers Program. The information posted in this fan page are those of the authors and do not necessarily represent the official position of the CDC.

Today (December 1st) is World AIDS Day, a global movement to unite people in the fight against HIV and AIDS. Since 1988,...
12/01/2025

Today (December 1st) is World AIDS Day, a global movement to unite people in the fight against HIV and AIDS. Since 1988, communities have stood together on World AIDS Day to show strength and solidarity against HIV stigma and to remember lives lost.

In one of our past projects, Deaf2 (deaf squared), we aimed to increase awareness about HIV and AIDS within our Deaf communities and developed an Informational Video Library focused on these topics, addressing common myths, safe s*x practices, and resources for testing. Check our link in bio to visit this library.

Accessibility notes: All videos are in ASL with English captions and video descriptions with transcripts are included in our YouTube page (directed to YouTube from our link in bio, individual videos).

To learn more about World AIDS Day and join in support, visit worldaidsday.org

Today (December 1st) is World AIDS Day, a global movement to unite people in the fight against HIV and AIDS. Since 1988,...
12/01/2025

Today (December 1st) is World AIDS Day, a global movement to unite people in the fight against HIV and AIDS. Since 1988, communities have stood together on World AIDS Day to show strength and solidarity against HIV stigma and to remember lives lost.

In one of our past projects, Deaf2 (deaf squared), we aimed to increase awareness about HIV and AIDS within our Deaf communities and developed an Informational Video Library focused on these topics, addressing common myths, safe s*x practices, and resources for testing. To view this library, visit: www.deaf2videos.urmc.edu

Accessibility notes: All videos are in ASL with English captions and video descriptions with transcripts are included in our YouTube page (directed from above link).

To view our Deaf2 playlist via YouTube, visit: https://youtu.be/9r61MSjCqag?si=2joyT7RVoaQYMJG_

To learn more about World AIDS Day and join in support: https://worldaidsday.org/

This November, we support the Movember challenge and encourage open conversations about men’s well-being. Movember is a ...
11/24/2025

This November, we support the Movember challenge and encourage open conversations about men’s well-being.

Movember is a global effort to raise funds and awareness for men's health issues, focusing on prostate cancer, testicular cancer, and mental health and su***de prevention. While growing a mustache for the month (without shaving) is the most common way of participating, you can also consider hosting a men’s talk or movement (active exercise) event.

To kick things off, here are five key areas every man should pay attention to:
1. Spend time with people who make you feel good.
2. Talk more.
3. Know your numbers.
4. Know thy nuts — simple.
5. Move more.

To learn more about the history of Movember and additional resources visit: https://us.movember.com/mens-health/general

Did you know? November is Diabetes Awareness Month, a time to raise awareness about diabetes, its symptoms (signs of dia...
11/22/2025

Did you know? November is Diabetes Awareness Month, a time to raise awareness about diabetes, its symptoms (signs of diabetes), how to prevent diabetes, and how to manage your diabetes when diagnosed.

Diabetes is a condition that impacts how your body uses sugar (glucose) for energy. There are two types of diabetes: Type 1 is an autoimmune disorder. Type 2 is when the body may not produce enough insulin or does not use insulin effectively. Type 2 is more common and often occurs later in life; Type 1 is detected earlier (youth-young adult).

Your risk for diabetes increases if you have a family history of diabetes, or if you are overweight, and/or have high blood pressure. There is no cure for diabetes, but healthy lifestyle changes can help prevent or delay diagnosis.

You can prevent diabetes and other chronic health conditions by managing your weight by eating nutrient-rich foods (fruits, vegetables, and whole grains, limiting sugars, salts in processed foods, and unhealthy fats), getting regular physical activity (150 minutes per week), and managing your stress and sleep. Our Deaf Weight Wise (DWW) program is an adaptation of the nationwide Diabetes Prevention Program (DPP). DWW was designed with community partners to aid in healthy lifestyle changes to prevent diabetes and other chronic health conditions.

Common symptoms of diabetes include frequent urination (bathroom trips), extreme hunger or thirst, unexplained weight loss, and fatigue (tiredness). If you or someone you know suspects you may have diabetes, it’s important to discuss with your doctor so they can develop an individualized plan to help you prevent or manage your symptoms.

For more info about American Diabetes Month and additional resources, visit: https://diabetes.org/adm

November is Lung Cancer Awareness Month. Did you know that lung cancer often has no symptoms until it becomes more advan...
11/19/2025

November is Lung Cancer Awareness Month. Did you know that lung cancer often has no symptoms until it becomes more advanced?
This is why early detection is important; the earlier one is diagnosed, the sooner one can receive treatment.

Learn more about the screening process from the Center of Deaf Health Excellence

Please talk with your doctor (or other healthcare provider) to determine your risk for lung cancer and for screening options near you.

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

A second post revisiting our experience at the Deaf Seniors of America conference this past August. Our team tabled the ...
11/15/2025

A second post revisiting our experience at the Deaf Seniors of America conference this past August. Our team tabled the event, sharing information about our Deaf Weight Wise (DWW) program and connecting with community folks to discuss their health priorities and trends within their local communities. Many of you were interested in lifestyle changes to become healthier, and as we age, this becomes more of a priority. Thank you for taking the time to visit and learn about our work.

To learn more about Deaf Seniors of America, visit: https://www.deafseniors.us/

PS- DSA is hosting a survey with NAD to learn about the needs, challenges, and strengths of older adults- be sure to participate if you can!

As part of our Year 1 review, we are revisiting our trip to the Deaf Seniors of America conference this past August in K...
11/08/2025

As part of our Year 1 review, we are revisiting our trip to the Deaf Seniors of America conference this past August in Kansas City, MO. While there, Kelly and Earl hosted a conference workshop, “Moving at Any Age: Physical Activity and Your Health.” Our session focused on the importance of physical activity throughout the lifespan, with an emphasis on our aging communities. We reviewed the current recommendations for physical activity, discussed the types and levels of intensity of different exercise styles, and provided resources for physical activity at home. Attendees had great questions, and we look forward to growing our network within DSA communities.

DSA’s next conference will be held in Baltimore, MD (2027).

A photo of staff and community partners at DSA 2025 (left to right): Kelly Matthews, Karen Beiter, Lori DeWindt, Lisa DeWindt-Sommer, and Earl Allen.

Did you know? Food acts as medicine to maintain health and to prevent and treat diseases. Without access to food, our co...
11/06/2025

Did you know? Food acts as medicine to maintain health and to prevent and treat diseases. Without access to food, our communities will see increased risk for chronic diseases such as heart disease, stroke, Type 2 diabetes, and certain types of cancer. We are sharing some resources and tips below from our Deaf Weight Wise program. The design was kept simple with intention. All links are provided with the text below.

1) Resources (with corresponding logos)
www.Findhelp.org [Find free or reduced-cost resources like food, housing, financial assistance, health care, etc.]
www.211.org [Connects to help that is local to you- where you are!]
www.Foodfinder.us [Use your Zip Code to find food pantries near you]
https://map.thefoodpantries.org [Location-based pantries, kitchens, mobile resources, etc. Note: website will not work with ‘www’]

2) Buy More for Less Money, followed by three tips: 1) Shop with a friend and share or split larger food items when you get home. 2) Buy fruits and vegetables in bulk: use what you can quickly, freeze into smaller servings, or preserve through canning. 3) Buy larger containers of items (like yogurt or cottage cheese) instead of small, single-serve containers. In between tips 2 and 3, there is an image of a freezer stocked with various fruits and vegetables in plastic bags and containers for storage.

Both images are white backgrounds with black text and have the National Center for Deaf Health Research (NCDHR) logo at the bottom.

As we look forward to and plan our Year 2 adventures (from now until September 2026), we think it’s important to revisit...
11/04/2025

As we look forward to and plan our Year 2 adventures (from now until September 2026), we think it’s important to revisit the past year’s activities, starting with Deaf Strong Hospital (DSH) which was hosted on Friday, August 22nd this year.

DSH is an annual, immersive role-reversal event hosted by the NCDHR with members of our local Deaf communities. First-year medical students become the patients, and members of the Rochester Deaf communities become doctors, nurses, and provider staff, communicating only in American Sign Language (ASL). These photos provide a brief snapshot of the role-reversal exercise; when not in the exercise, students received a lecture on Deaf Culture and the Deaf Experience in Healthcare from URMC’s Dr. Carolyn Stern.

To learn more or become involved with future events, contact the NCDHR Team at NCDHR@urmc.rochester.edu

DSH album (9 photos, descriptions)
Photo 1: This is the entrance to our Deaf Strong Hospital event within Flaum Atrium at the Medical Center. There is a sign placed on the back of rows of chairs in what appears to be a waiting room. Some students are seated in the middle; some are waiting in line towards the right. A sign with texts “Welcome to Deaf Strong Hospital, founded 1998 by PAH MD (Promoting Awareness in Healthcare, Medical and Deaf- Rochester Chapter), followed by the NCDHR (National Center for Deaf Health Research) logo and information: www.urmc.edu/ncdhr, ncdhr@urmc.rochester.edu, VP 585-285-2776. The University of Rochester Medical Center insignia is in the bottom right corner.

Photo 2: Actors (two women wearing black shirts) interacting with a medical student, the student is wearing a white long-sleeved top with pink vest and clear glasses, the student appears to be signing in ASL, the letter “F” or number “9.” Signs behind the three people read “Waiting Area: Doctor’s Offices” and a few students are seated in the foreground. In the background, to the far right, another line is formed (in an opposing direction).

Photo 3: A ‘Receptionists’ Waiting Room’ environment during Deaf Strong Hospital with several people, predominantly young adults (students). The students are interacting with two older women and one older man that are staffing the table (DSH Actors, receptionists). In the background, signs reading "Doctor's Office," "No Voice," and "Waiting Area" are posted to assist with direction and communication during the event.

Photo 4: NCDHR staff, Earl Allen, wearing a black t-shirt, interacts with a student during the exercise, both are seated at a table and appear to be reading/preparing for their discussion. There is a privacy screen behind the student to emphasize privacy during their “Doctor’s Office” visit.

Photo 5: Four people seated at a table, on the left NCDHR staff, Kelly Matthews, and community actor (woman) are both wearing DSH black t-shirts and interacting with two students on the right. One student is wearing a light blue top with dark hair in a ponytail, they are facing the actor and appear to be signing the letter “O” or number “zero” or implying “none.” The second student is wearing a black top with white pinstripes and appears to be explaining that ‘being tired’ is one of her symptoms. (Cannot see clearly but this student is leaned into the right with their head resting on both hands.)

Photo 6: A large group of diverse students are gathered in a waiting room. The students are all dressed casually and have assigned stickers; the stickers are yellow or blue (squares on the chest). Students can be seen lining up and seated in front of a table with three DSH Actors (and service providers) wearing black t-shirts.

Photo 7: This a similar, yet alternate view of Photo 6. There are now 4 DSH Actors with black shirts sitting and standing behind a table, students are lining up and interacting with those at the table.

Photo 8: A group photograph of our actors, taken from an elevated angle looking down into the Flaum Atrium. All in the photo are wearing black T-shirts with light lettering reading "DEAF STRONG HOSPITAL 2025" and a smaller line underneath specifying "University of Rochester School of Medicine & Dentistry." The group is diverse, with individuals composed of a range of ages, genders, and ethnicities. In the background, the Flaum Atrium is set up for the Deaf Strong Hospital event, complete with tables, chairs, and privacy screens.

Photo 9 is another group photo of Actors wearing black t-shirts with a logo that includes the words "Deaf Strong Hospital 2025" and the University of Rochester School of Medicine and Dentistry logo. Many individuals are making silly faces and using playful hand gestures, including some variations of the "I love you" sign in ASL. The background shows tables, chairs, and privacy curtains which demonstrate the Deaf Strong Hospital event set-up.

Did you know? The Deaf Weight Wise program (DWW) has one session focused primarily on how to eat healthily on a budget. ...
10/23/2025

Did you know? The Deaf Weight Wise program (DWW) has one session focused primarily on how to eat healthily on a budget. We have adapted this material for sharing in consideration of the nationwide threats to SNAP (Supplemental Nutrition Assistance Program) benefits in November. Please share your own tips and resources in the comments!

This design was kept simple with intention. All links are provided with the text below.

Carousel of black text on white slides; minimal colors used, all slides include the NCDHR logo in green at the very bottom: National Center for Deaf Health Research: Rochester Prevention Research Center.

1) ‘Stretching your Dollars’ from the Deaf Weight Wise program (black and green logo), followed by the NCDHR logo in green (National Center for Deaf Health Research; Rochester Prevention Research Center.)

2) Resources (with corresponding logos)
www.Findhelp.org
www.211.org
www.Foodfinder.us
www.Map.thefoodpantries.org

3) Buy More for Less Money, followed by three tips: 1) Shop with a friend and share or split larger food items when you get home. 2) Buy fruits and vegetables in bulk: use what you can quickly, freeze into smaller servings, or preserve through canning. 3) Buy larger containers of items (like yogurt or cottage cheese) instead of small, single-serve containers.

4) Buy Fruits and Vegetables in Season, with three tips: 1) Fruits and vegetables cost more when they’re out of season. Explore your seasonal produce through Farm Flavor’s United States Produce Calendar (link) www.farmflavor.com/lifestyle/garden/season-produce-calendars-50-states
Alternative live/direct link: https://map.proxi.co/r/djZtNaYNJfd44wYfKfLV
2) Watch for produce sales at the supermarket, look for roadside stands or farmers markets.
3) When you can’t find what you want in season, buy items canned or frozen.

10/21/2025

ICYMI (in case you missed it): We received our Year 2 Prevention Research Center funding, which means our research activities will resume as planned until September 2026. See video update from Earl Allen, Research Coordinator below. Our team plans to provide regular updates as we progress!

Please reach out to NCDHR with any questions or concerns, ncdhr@urmc.rochester.edu, (585) 228-2299 VP.

Accessibility notes: Video is in ASL with English subtitles. Transcript included with video description below. Full video and transcript with description also available on YouTube: https://youtu.be/7YtSl1nPbdw?si=m2VB8IzPElp7R8va



-Video description- The video begins with a title slide on a white background. The top of the slide reads “NCDHR National Center for Deaf Health Research” in green, with its ‘health’ logo on the left. On the right is the “UNIVERSITY of ROCHESTER MEDICAL CENTER” logo with the institution’s insignia on the left. The middle of the slide shows blue text that reads, “Update to Community October 2025”. The bottom of the slide shows green text with the name “Earl Allen.”

Earl, an African American male, is wearing a coral pink polo shirt and black glasses. He is seated at a table and wearing a black smartwatch on his left wrist. Behind him is a dark blue background with logos and text on the left. First is the University of Rochester Medical Center logo with the yellow-and-blue shield that says "Meliora." Second is the "NCDHR” – followed by our “health sign” in abstract ASL and text below: “National Center for Deaf Health Research Rochester Prevention Research Center"

Earl (ASL): We want to begin by sincerely thanking you all for the messages of encouragement we’ve received since our last video. Your support truly means a lot to everyone here at the NCDHR.

For those of you who are seeing this for the first time; last month we released a video explaining that our Year 1 of a 5-year project would end in September, and that the Center was at risk of closing in October 2025. (Link to September 2025 video https://youtu.be/mnCGaYzngwE?si=Dgn64AtOVU3esFmW)

(Good News!) We are pleased to inform the community that the CDC has continued the Prevention Research Center (PRC) program funding, which means our current implementation research will continue, studying how Deaf Weight Wise can become a community-led program with nationwide partners.

We plan to provide regular updates on our research activities going forward. We are grateful for your continued support as we navigate these challenges together. Thank you again, and please feel free to reach out to NCDHR with any questions or concerns.

The video ends with a final slide image that displays a green background featuring various contact details and social media platforms for the National Center for Deaf Health Research (NCDHR). At the top left, there is an icon of a laptop screen with the text "www." followed by the website URL urmc.edu/ncdhr. On the top right, there is a blue Facebook logo next to the link facebook.com/rochesterprc. In the middle-left section, there is a circular blue icon of an envelope, indicating email contact, with the address NCDHR@urmc.rochester.edu. To the right of this is the Instagram handle , next to the multicolored Instagram logo. At the bottom left, a gray icon of a smartphone represents video phone (VP) contact with the number (585) 228-2299. Finally, at the bottom right, a link to their YouTube channel is provided: youtube.com/user/NCDHRResearch, accompanied by the red and white YouTube logo.

10/17/2025

Halloween is just around the corner, meaning holidays and the winter season are upon us. You may be thinking ahead to your plans for gathering with friends and family. We have another question for you to add to your planning: What are some activities to incorporate into your gatherings that do not include lingering in the kitchen? The kitchen is a prime spot for any Deaf (household) community gatherings. We are interested in learning your ideas!

In the mock session below (not real participants), the group reviews how to plan for special events, and some alternate activities include going for a walk or playing cards in another room. If you make it to the end of the clip, there is also a suggestion for the lights to be turned off so that our (Deaf) visitors know it’s time to leave. *chuckle*

Accessibility notes: Video is in ASL with English subtitles. Full transcript included below and on YouTube: https://youtu.be/veQMu3hOjwo

-video description/transcript-

The video begins with an image on a plain white background and black bold text centered in the frame that reads, "Deaf culture and kitchens at gathering...". At the bottom left corner, the NCDHR logo is displayed, which stands for the National Center for Deaf Health Research, with the full name and “Rochester Prevention Research Center” written underneath it in smaller font. Aligned along the bottom right are three green-toned circular icons. The first icon displays a heart shape with a check mark, the second features stylized human figures arranged in a circle, suggesting community, and the third shows a spoon and fork. Below these icons is the phrase "DEAF WEIGHT WISE" in a stylized font, which represents the name of the initiative and program related to healthy living within the Deaf community.

Immediately next is another slide with a white background and black text. At the top, the word “Disclaimer…” is written in bold, followed by a message in plain font that states: “The following is a fictional dramatization meant to illustrate training concepts with humor. Any resemblance to real-life situations is purely coincidental.” At the bottom left corner is the logo of NCDHR (National Center for Deaf Health Research), along with the text “Rochester Prevention Research Center.” In the bottom right corner, there are three circular icons similar to those seen in previous slides: one depicting a heart with a check mark, one with a group of human figures in a circular formation symbolizing community, and one with a fork and spoon. Below these icons is the phrase “DEAF WEIGHT WISE” in stylized font.

The video then transitions into a Zoom video conference with six participants, arranged in a 3x2 grid. Each person occupies a rectangle in the virtual meeting interface, giving the appearance of a group video call. In the top row, from left to right, there is a woman with long wavy hair seated near a window, a woman wearing glasses, and a man with glasses wearing a polo shirt seated in a blue-walled room. In the bottom row, the first woman has curly dark hair in a warmly lit room, the second woman sits in front of a mirror and string lights, and the third woman, with long straight blonde hair and glasses, sits in an office-like setting with a file cabinet and small decorative plant.

Lori begins: “Are there any suggestions for Nicole? Nicole, do you feel pressured to finish all your food?”

Nicole: “Sometimes after bringing my food home with me I still found myself stubbornly eating little by little. Even though the food is packed up and stored in the refrigerator, I caught myself digging in here and there, and I couldn't stop. What can I do?”

Lori: “Yep, I understand. Yes Janna?”

Janna: “I wonder, maybe at the party, there should be an option for the big or small plate? Maybe just pick a smaller plate so you're forced to limit your portion sizes of different dishes.”
Nicole: “But still. The foods are right in front of me. I'm unable to resist them on the smaller plate.”

Janna: “There should not be any room for more food in the smaller plate.”

Nicole: “Once I have emptied the plate, I will still go back to grab more food.”

Janna: “Another idea is to eat before you go so that you do not arrive hungry.”

Nicole: “True, that's a good idea. Thank you.”

Lori: “Good suggestion! Yes Kelly? Do you have another suggestion?”

Kelly: “Yeah, I was going to say that us Deaf people tend to gather in the kitchen during potlucks or parties where all the food tends to be. (Nicole: Yes, that's dangerous!) So maybe we should encourage the group to move to another table to play cards after putting the food away. I don't know. I think we all need to think about what to do instead but it is a hard habit.”

Lori: “Yep, good suggestion to encourage the group to scoot away from the kitchen and sit down to do other activities.”

Nicole: “Wow. The kitchen is the prime spot for gatherings of Deaf people. I wonder why?”

Lori: “This is my solution: Turn off the kitchen light and tell everyone to scoot away.”

Nicole: “You're mean!”

Kelly: “I will just go home!”

Address

265 Crittenden Boulevard
Rochester, NY
14642

Opening Hours

Monday 8:30am - 4:30pm
Tuesday 8:30am - 4:30pm
Wednesday 8:30am - 4:30pm
Thursday 8:30am - 4:30pm
Friday 8:30am - 4:30pm

Telephone

+15852282299

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