Heidi's Hallelujah

10/26/2025

Happy Sunday everyone.

We’ve had a few rough days here and there, however, we continue to praise God. We find comfort on our hard days knowing God is holding us. We believe God is working wonders in and through Heidi. Heidi loves everyone and uses what God has given her to touch the lives of those around her and those she meets in passing. Even with Heidi’s diagnosis, she thrives in life. God is moving mountains with each moment for Heidi. Heidi is leading people to Christ and definitely showing people that a diagnosis does not define you. God is working His miracle in His time. We may not understand why Heidi. However, we don’t need a reason to go out and continue to do God’s will with grace.

We ask that you find the time to brighten someone’s day. Extend mercy to those you see struggling. You just might learn something new.

https://youth.be/O_ngLn0oZCo?si=Zf3JdBEcAQs7aixfysinnint own

This is Open Resources, The lyric video for "Yahweh We 🤍 You" by Elevation Worship and Joe L Barnes."Yahweh We 🤍 You" is available now on the album, When W...

10/24/2025

Heidi (Snow White) had so much fun running around with kids during the Trunk or Treat.

10/18/2025

Please share so that any children’s specialist can join this master class. From therapists to specialized doctors should join to learn more about what our family and every MPS family is facing and how we can collectively come together to fight for our children.

10/12/2025

Before watching this video, I’d like to explain why this is such an important moment for Heidi.

For years, Heidi could not be around animals whether real or fake without screaming in fear. She wouldn’t play with stuff animals either. We decided to take a leap a little over a year ago, with the help of an amazing friend, to find the perfect little puppy. With Coco (our little Yorkie) providing patience and understanding. Heidi spent almost 6 months getting comfortable enough to pet Coco.

Once she accomplished petting Coco, we moved up to attending a zoo where the animals stay far enough away and secured.

Now, look at Heidi go! She was able to feed the goats and touch them. While she did lose her balance and fall, the goats respected Heidi enough not to scare her.

All of this progress is worth the patience. I’d love for Heidi to join a horse therapy program but each of these steps needed to happen. Now that she has accomplished squashing her fear of animals, we can finally reach out and get Heidi into a horse therapy program. It will still take time for Heidi to get comfortable enough to sit on a horse, but I know she has the fire in her soul.

10/11/2025

The abundance of pumpkins was amazing. It was a little maze perfect for Heidi to explore.

10/10/2025

Heidi has a new favorite song. She lives her life for Jesus and isn’t bothered by those who don’t understand her faith.

As a mother, it’s amazing to see your child walk with faith through every struggle with a smile and ignoring all the chaos of the world.

Warning, this song will make you want to dance.

Song is meant to inspire

10/04/2025

Let’s talk perspective today.

Most of us adults are annoyed during fall time with raking/blowing leaves. However, Heidi loves the leaves that have fallen to the ground. She spends all spring and summer watching the leaves sway in the trees. It’s not until fall time that she has the pleasure of touching and playing with the leaves.

Instead of being frustrated with how many leaves are in your yard (especially after raking), imagine the patience it took for others to find the enjoyment of the fallen leaves.

10/02/2025

Carolina Basketball Museum was neat to explore.

10/01/2025

Throwing it back to 2 years ago when Heidi learned how to sign Dinosaur. She added to her dance moves so everyone could see her new sign.

09/22/2025

A beautiful place for all MPS families to feel at home.

🧬 The Muenzer MPS Center provides comprehensive care for individuals and families affected by MPS.
We offer:
✅ Multidisciplinary clinical care
✅ Genetic counseling and diagnostic support
✅ Access to clinical trials and research studies
✅ Ongoing care coordination and family support

💜 If you’re interested in connecting with our team, please complete our MPS Patient Contact Survey:
🔗 https://tinyurl.com/MPSPatientContact

09/19/2025

Heidi has had a crazy week with appointments. We finally had some down time to run around at the park.