Aplastic Anemia and MDS International Foundation

Aplastic Anemia and MDS International Foundation Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH
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The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and other related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.

In this webinar, Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology an...
02/18/2026

In this webinar, Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology and treatment for Aplastic Anemia and PNH. Find out more and watch the recording here:
https://www.aamds.org/share/webinar/2626

Ramadan Mubarak, to all who observe!From your friends at AAMDSIF.
02/17/2026

Ramadan Mubarak, to all who observe!

From your friends at AAMDSIF.

May all your heart’s desires be fulfilled!Happy New Year to all who observe, from your friends at AAMDSIF!
02/17/2026

May all your heart’s desires be fulfilled!
Happy New Year to all who observe, from your friends at AAMDSIF!

02/15/2026

Recorded live from the San Francisco Bay Area Patient and Family Conference, Dr. Bart Scott shares the latest in research on current treatments for PNH. He also details current research and implications for future therapies. Watch the session here: https://www.aamds.org/share/webinar/785

The fatigue from the diseases and the treatments is real! This special session was recorded for patients to learn both ...
02/14/2026

The fatigue from the diseases and the treatments is real! This special session was recorded for patients to learn both management techniques and gentle movement to help manage this common symptom. Watch here: https://www.aamds.org/share/webinar/741

This year’s winning theme, “Voices of Strength and Hope,” was submitted by Mario Rivera – an aplastic anemia patient, de...
02/13/2026

This year’s winning theme, “Voices of Strength and Hope,” was submitted by Mario Rivera – an aplastic anemia patient, dedicated AAMDSIF Patient Advisory Council member, donor and fundraiser.
This powerful theme beautifully captures the spirit of resilience, unity, and inspiration that the Awareness Campaign represents. We are grateful to everyone who participated and shared their creativity and vision. Your contributions made this selection process both meaningful and inspiring.
Listen to this interview with Mario to learn about his amazing story: https://www.aamds.org/podcast/conversation-patient-mario-rivera-his-experience-aplastic-anemia

Many thanks to Platinum Sponsor Novartis

02/11/2026

“Look for the light in every day”
Here is Lisa's final release day, after the second transplant!
Lisa has moved forward to encourage others through their Bone Marrow Failure disease. Read her story here: https://aamds.org/patient-chronicles/lisa-gosnay

02/10/2026

If you've been diagnosed with , , or , you might find the information confusing. Dr. Bart Scott shares clear explanations of these conditions in this recent recording from the Seattle Patient and Family Conference: https://www.aamds.org/share/webinar/725

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