Aplastic Anemia and MDS International Foundation

Aplastic Anemia and MDS International Foundation Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH
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The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and other related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.

Stay tuned to our social media accounts! 👀Something is coming…
11/24/2025

Stay tuned to our social media accounts! 👀Something is coming…

Why join the registry? One patient says, "If there's something I can do that will help someone not to go through the str...
11/23/2025

Why join the registry? One patient says, "If there's something I can do that will help someone not to go through the struggles I went through in trying to receive a diagnosis and treatment, then I would be happy to help." For more information, please visit https://pnh.iamrare.org today.

11/22/2025

She needed so much blood! The marrow biopsy showed Aplastic Anemia.
Though her treatment was rough, Kami came through, though she escaped the hospital briefly to get married!
Read Kami's story here: https://www.aamds.org/patient-chronicles/kami-murphy

Many thanks to player, Yahya Black, for selecting for his "My Cause My Cleats" Program!He says, “Hailiy and I had a fa...
11/20/2025

Many thanks to player, Yahya Black, for selecting for his "My Cause My Cleats" Program!

He says, “Hailiy and I had a family friend who had aplastic anemia. Not enough people know about it.”

Find out more here https://mycausemycleats.org/player/yahya-black/ about his effort and more about Aplastic Anemia at aamds.org

NFL

“Your blood levels are so low, we don’t know how you are standing up right now. "This is how the doctor told Geordy he h...
11/19/2025

“Your blood levels are so low, we don’t know how you are standing up right now. "
This is how the doctor told Geordy he had a serious condition, which was later identified as Severe Aplastic Anemia.
Read this Canadian's amazing story from diagnosis through successful treatment here: https://www.aamds.org/patient-chronicles/geordy-murphy

By Patients, for Patients. The Global PNH Patient Registry is for you! Why join? "I can share my experience and info...
11/18/2025

By Patients, for Patients. The Global PNH Patient Registry is for you!
Why join? "I can share my experience and information with other patients to support each other and face the challenges of the disease together." For more information, please visit https://pnh.iamrare.org today.

"No good news came after 6:00 p.m... If it couldn't wait until morning, the news must be bad, and I quickly opened my vo...
11/17/2025

"No good news came after 6:00 p.m... If it couldn't wait until morning, the news must be bad, and I quickly opened my voicemail."
Read Meghin's story of diagnosis, treatment, and survivorship in her own words here: https://www.aamds.org/patient-chronicles/meghin-kiernan

By Patients, for Patients. The Global PNH Patient Registry is for you! Why join? "To help others understand how PNH ...
11/13/2025

By Patients, for Patients. The Global PNH Patient Registry is for you!
Why join? "To help others understand how PNH affects a person and to help with new medical treatments." For more information, please visit https://pnh.iamrare.org today.

Address

401 N Washington Street, Ste 430
Rockville, MD
20850

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Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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