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Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm

Aplastic Anemia and MDS International Foundation

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Aplastic Anemia and MDS International Foundation

Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH
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The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and other related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.

12/30/2025

Life should be simple when you’re 12. ❤️

When Phoenix was diagnosed with severe aplastic anemia, her world turned upside down.

AAMDSIF stepped in—connecting her family to a supportive community and resources that helped them navigate her diagnosis.

Help patients like Phoenix write their next chapter. Give today ❤️

👉 aamds.org/donate

12/29/2025

Why should a patient with PNH be concerned about meningitis? Should they be vaccinated? What are the symptoms to look out for? Dr. Bhumika Patel answers these questions and more in this episode from the AAMDSIF Podcast for Patients: https://www.aamds.org/podcast/meningitis-and-pnh-dr-bhumika-patel

12/28/2025

Every day, patients like Phoenix face uncertainty. ❤️ Your support enables AAMDSIF to fund research grants for scientists working tirelessly for a cure.

Your gift helps young researchers launch their careers and make breakthroughs that give patients hope.

Be part of the progress. Give today. ❤️

👉 aamds.org/donate

12/27/2025

“Look for the light in every day”
Here is Lisa's final release day, after the second transplant!
Lisa has moved forward to encourage others through their Bone Marrow Failure disease. Read her story here: https://aamds.org/patient-chronicles/lisa-gosnay

12/26/2025

No one should have to face a rare disease alone. ❤️

AAMDSIF’s free support groups connect patients and caregivers with people who truly understand.

Give the gift of support today. ❤️

👉 aamds.org/donate

12/25/2025

Merry Christmas, to all who observe!

AAMDSIF staff will return to the office on January 5, but the website is always open! Find recordings here: https://www.aamds.org/education/patient-family-webinars
and downloadable fact sheets here: https://www.aamds.org/education/patient-guides-and-fact-sheets

12/24/2025

Oncology nurses want you to know that there is hope!
Don't give up today.
Here are more updates about aplastic anemia, MDS, and PNH for you and your family to watch at any time: https://www.aamds.org/education/patient-family-webinars

12/23/2025

A rare disease diagnosis is overwhelming. Answers help. ❤️

Your support gives patients with aplastic anemia, MDS, and PNH trusted information and real support when they need it most.

👉 aamds.org/donate ❤️

12/22/2025

What is GVHD and how can it occur for transplant patients?
Learn all about transplants, risk and reward, for bone marrow failure disease in this recent recording with Dr. Jeremy Meier: https://www.aamds.org/webinar/transplant-and-gvhd-2025-chapel-hill-patient-and-family-conference

12/21/2025

By Patients, for Patients. The Global PNH Patient Registry is for you!
Why join? "To help others understand how PNH affects a person and to help with new medical treatments." For more information, please visit https://pnh.iamrare.org today.

12/20/2025

On-Demand session for Pediatric Parents!
These Pediatric Hematology/Oncology Experts answer questions from the audience at the 2025 San Francisco Bay Area Patient and Family Conference. Watch the recording now: https://www.aamds.org/webinar/expert-panel-pediatric-bone-marrow-failure-2025-san-francisco-bay-area-conference

12/19/2025

What is meant by "Chemo Brain" and what can you do about it?
Although many patients who receive high doses of chemotherapy experience this symptom, it's important to know how your specialist can help lessen the impact. Listen to the podcast episode: https://www.aamds.org/podcast/how-manage-chemo-brain-dr-jorg-dietrich

Address

401 N Washington Street, Ste 430
Rockville, MD
20850

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Website

https://www.aamds.org/donate

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