Congenital Diaphragmatic Hernia Program

Congenital Diaphragmatic Hernia Program CDH patients, families and supporters stay up-to-date on the latest with our program, including upco Congenital Diaphragmatic Hernia

We are closing in on the deadline for ordering shirts. Please don't hesitate to get registered for the baseball game and...
06/21/2023

We are closing in on the deadline for ordering shirts. Please don't hesitate to get registered for the baseball game and for ordering reunion shirts! Looking forward to seeing everybody there!

Get ready for an extraordinary gathering like no other! On July 22, 2023, families affected by Congenital Diaphragmatic Hernia (CDH) will unite at Fort Desoto Park, Florida, for a heart-pounding, adrenaline-fueled reunion!

https://www.tinyhero.org/sun-sand-cdh
06/07/2023

https://www.tinyhero.org/sun-sand-cdh

Get ready for an extraordinary gathering like no other! On July 22, 2023, families affected by Congenital Diaphragmatic Hernia (CDH) will unite at Fort Desoto Park, Florida, for a heart-pounding, adrenaline-fueled reunion!

A generous donation from the Fore Hadley Golf Tournament!
08/24/2016

A generous donation from the Fore Hadley Golf Tournament!

Let's go Sunshine State!! Spreading the Fore Hadley & love with a research grant for Dr. David Kays, Joy Perkins, and their team at Johns Hopkins All Children's Hospital to support new and innovative "gentle ventilation" techniques for infants with underdeveloped lungs due to conditions like CDH. In their own words, "Our research is focused squarely on maximizing both survival and quality of outcomes in infants with CDH. We have previously demonstrated the benefit of “gentle” ventilation strategies, the necessity of repairing the hernia, the role and effective duration of ECMO in severe CDH, and scientifically defined the optimal timing of CDH repair based on disease severity.

CDH survival now exceeds 90% in our center, but survival is only one of the goals; brain preservation is the other. The generous Fore Hadley donation helps fund our ongoing projects by assisting with both equipment purchases and statistical support. These include analyzing treatment outcomes by developing complex statistical models of CDH severity, using sophisticated bedside monitoring tools to store and analyze brain oxygen delivery, and analyzing blood samples for chemical markers of brain injury. We seek to correlate minute to minute brain oxygenation during care for CDH with blood markers of brain injury, brain imaging at discharge, and subsequent neurodevelopmental outcomes. By linking the CDH clinical course with brain outcomes, we can better effect changes in care that will improve neurodevelopmental results."

Contact jperki12@jhmi.edu or (727) 767-3587 |

To make a donation to future causes like this through Fore Hadley, please visit forehadley.kindful.com

It's official!!!
04/05/2016

It's official!!!

Exciting day tomorrow! So proud to be a part of the Johns Hopkins Health System.
04/05/2016

Exciting day tomorrow! So proud to be a part of the Johns Hopkins Health System.

ST. PETERSBURG — In joining forces with the internationally known Johns Hopkins Health System five years ago, All Children's Hospital hoped to catapult itself into the top tier of pediatric hospitals.In many ways, it succeeded.

Thank you to Christy Prowant Photography for taking these beautiful pictures at the reunion Saturday.
06/08/2015

Thank you to Christy Prowant Photography for taking these beautiful pictures at the reunion Saturday.

CONGENITAL DIAPHRAGMATIC HERNIA(CDH)

CDH is a life threatening birth defect in which the diaphragm does not completely form, allowing some of the contents of the abdomen to protrude into the chest and hinder the normal growth of lung tissue. CDH affects approximately one in 3000 babies, and the national survival rate for babies born with CDH falls between 50% and 65%.Dr. Kays and the pediatric surgery faculty at the University of Florida have a 92% SURVIVAL RATE for CDH babies born at Shands. He credits much of their success to being at the right place at the right time, to the "gentle ventilation" technique that they use, and to his training from Drs. Charlie Stolar and Jen Wung at Columbia University. He also acknowledges the critical support and guidance he has received from Drs. James L. Talbert, Professor Emeritus and Dr. Max R. Langham, Jr., Professor and Chief, Division of Pediatric Surgery. To learn more or to refer a mother to be with a child that has CDH, please visit the link http://www.realhopeforcdh.com/index.html.

06/06/2015

It's reunion day!

05/27/2015

Just over a week until the reunion! Keep those RSVP's coming!

05/06/2015

Happy Nurse's Day and Nurse's Week to the awesome nurses we work with! We couldn't provide such awesome care without you!

05/06/2015

Don't forget to RSVP if you're coming to the reunion! You can private message us through this page or send an email to cdh@surgery.ufl.edu.

Address

Saint Petersburg, FL
33701

Telephone

+17277673587

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