Maggie Kicking CASK

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Salisbury, NC
Maggie Kicking CASK

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This is Maggie's world, we're just living in it. ��
Maggie was born with a rare CASK gene variant that currently affects less than 220 worldwide. �
Cerebellar Hypoplasia, Epilepsy (IS), Tubie Baby

04/07/2026

Happy birthday, Emmy girl!!!! You are such a light in this world and we love you SO much! We hope you have a day filled with a million oinks! 💖🎉

03/15/2026

A Little Golden Birthday Party for our little golden girl! ✨ Thank you so much to everyone who came to celebrate the big 5 with Maggie! 💖📚☀️

02/03/2026

We want to say a massive thank you to The Grillmore Girls for their continued love and support of Maggie and our goal of keeping her in SMILE Therapy for Kids.

For two years in a row, these incredible friends have donated all of their tips from their festival food tent to Maggie’s therapy fund. This year alone, they donated $1,224!

We love the Boyd & Williamson families so much and are forever grateful for their generosity, kindness, and unwavering support of Maggie. 💖

01/31/2026

We want to say a heartfelt thank you to everyone who has donated so far and to all of our friends and family who have shared Maggie’s story. Your support means more to us than we can say.

Right now, Maggie’s care needs are especially involved, and our day-to-day bandwidth is pretty limited. Because of that, we’re not able to organize a large fundraiser event at this time; but we are continuing to raise funds so we can keep taking Maggie to SMILE Therapy for Kids twice each year. This therapy has made a significant difference in her progress and helps her regain ground after the medical setbacks that sometimes happen in between visits. We are also planning another merch collab with

We are incredibly grateful for every person who has supported Maggie; whether through donations, prayers, messages, or sharing her story. It truly carries us.

If you’d like to follow Maggie’s journey or support her therapy and equipment needs, you can visit her SupportNow page here:
https://www.supportnow.org/maggie-derby

SupportNow allows both one-time and recurring donations, and all funds go directly to Maggie’s ABLE account for therapy and equipment expenses. Even sharing her page helps more than you know.

Another way to give is through her ABLE gift portal at www.UgiftABLE.com using code: G6G-625

We’ll continue posting updates there for anyone who wants to follow along. Thank you for being part of Team Maggie! 💖

01/07/2026

The One Where Maggie Goes to Preschool ✏️📚🚌
Except preschool came to us today!

We are incredibly fortunate that the preschool through our public school system felt it would be best for Maggie to begin Pre-K at home. This gives her team time to truly learn Maggie, how she communicates, what she needs and allows time to get equipment in place before kindergarten.

It also gives me so much peace of mind having her close by and helps us feel better about not exposing her to school germs just yet.

Maggie will receive sessions with her teacher, PT, OT, speech, hearing, and vision services. Today was a short but sweet first visit; meeting her teacher and reading one of her favorite books. 📚

12/26/2025

This girl has belly laughed her way through the holidays! 🎄♥️ 🎅

12/07/2025

Be still my heart. ♥️🎄🎅 Maggie was incredibly tired the day of her pictures but worked her magic and captured the sweetest Santa cuddles. ♥️

12/02/2025

Project CASK exists for Maggie. My Liocorn. Rare as a unicorn. Strong as a lion.

Maggie strives every day for milestones most take for granted.

That’s why is funding two treatment options, plus the studies, data and tools that will turn research into medicines our kids can access.

This Giving Tuesday, join the Liocorn Pride. Your gift is fuel for the science that can change the trajectory of my child’s life.

For the kids. For their futures. Forever.

Link in bio/screenshot + tap: https://www.projectcask.org/give

10/31/2025

Beep beep!! 🚕 Ms. Rachel took a taxi to Salisbury! 💖

10/26/2025

It’s nice when you’re able to slow down enough to make a vacation actually feel like a vacation. No rush, no plans, just taking things at Maggie’s pace and going with the flow. 💖

10/17/2025

So special finally getting pictures of Maggie standing so tall. 🥰 We had the best night out with the fam! 💖

09/15/2025

💕 The Road Back to SMILE
Supporting Emmy & Maggie as we raise $4,000 to return in February 2026

We’re at SMILE Therapy for Kids in Burlington, ON right now, and Emmy & Maggie begin another intensive tomorrow morning! 💖 The therapy they receive here is vital to their growth, development, and health. They love being here — and we’re so grateful to share this with another CASK family who truly understands.

But the cost is big: 🚗 travel, 🏡 housing, 💪 therapy. We save where we can (like sharing a home), but each trip still requires significant support.

✨ This year’s all-new design honors many of the things Emmy & Maggie have in common: a love for flamingos, music, and the water, g-tubes and avocados as the base of their nutrition and health, and the CASK gene itself. The back celebrates the character traits both girls — and so many kids with CASK — embody.

Our goal: $4,000 to cover housing + deposits so we can leave this trip knowing our home and therapy spots are secured for February 2026. 💕

👉 Every order helps us reach that goal and directly supports Emmy & Maggie’s next SMILE trip. Thank you for being part of their story — your support means the world!

Address

Salisbury, NC

Website

https://www.instagram.com/maggiekickingcask/

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