SADS (Sudden Arrhythmia Death Syndromes) Foundation

SADS (Sudden Arrhythmia Death Syndromes) Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from SADS (Sudden Arrhythmia Death Syndromes) Foundation, 4527 South 2300 East #104, Salt Lake City, UT.

Established on December 12, 1991 by Dr. Michael Vincent, The SADS Foundation is a community of families, medical professionals, and supporters saving lives and advancing care for people with heart arrhythmia conditions that can lead to sudden death.

Thank you for walking alongside us this year. đź’–Your donations help us drive research, expand resources, and bring comfor...
01/02/2026

Thank you for walking alongside us this year. đź’–

Your donations help us drive research, expand resources, and bring comfort to families navigating rare heart diagnoses. We couldn’t do this work without you.

If you’re able and still thinking about giving, your support continues to make a meaningful impact. You can make a donation at https://sads.donorsupport.co/page/2025YearEndSocial.

🏷️

As we step into a new year, we’re holding space for growth, healing, and hope. These are a few resolutions on our list—w...
01/01/2026

As we step into a new year, we’re holding space for growth, healing, and hope.
These are a few resolutions on our list—what’s on yours?

🏷️

12/31/2025

Stepping into the new year with full hearts.

We’re so grateful for this community—families, physicians, advocates, and supporters—who make everything we do possible.

Here’s to another year of learning, support, and lifesaving work together. ✨

🏷️

Families like yours deserve more than guesses. You deserve answers.Matt was flying a routine commercial flight when he s...
12/31/2025

Families like yours deserve more than guesses. You deserve answers.

Matt was flying a routine commercial flight when he suddenly went into Sudden Cardiac Arrest. Quick-thinking co-pilots started CPR, used an AED, and saved his life. Afterward, doctors gave him a diagnosis of idiopathic ventricular fibrillation - a dangerous heart rhythm with no known cause - and implanted an ICD.

Matt is alive, but he and his family still don’t have the “why” behind what happened. Too many heart families are left with that same terrifying lack of answers.

Families like Matt’s deserve answers, targeted treatments, and a future where a diagnosis doesn’t come only after a crisis. Research is how we get there.

Help give Matt and other families the answers they deserve. Donate to the SADS Foundation today at https://sads.donorsupport.co/page/2025YearEndSocial.

12/30/2025

Join us for our next SADS Live Episode with Dr. Michael Ackerman from the Mayo Clinic — one of the world’s leading experts in inherited heart rhythm conditions.
Tuesday, December 30th, 2025 12:20 PM EST

Join us for SADS Live with Dr. Michael Ackerman TODAY Tuesday, December 30th at 12:20 EST.Streaming on Facebook, YouTube...
12/30/2025

Join us for SADS Live with Dr. Michael Ackerman TODAY Tuesday, December 30th at 12:20 EST.
Streaming on Facebook, YouTube, and Instagram.

Bring your questions!
https://www.youtube.com/watch?v=tPnkdUwjf0Y
🏷️

Ken Woodhouse, our Director of Philanthropy and Partnerships, had the opportunity to meet with Tony Valene, Jim Guthrie,...
12/30/2025

Ken Woodhouse, our Director of Philanthropy and Partnerships, had the opportunity to meet with Tony Valene, Jim Guthrie, and Dan Bird -- three of the founders and dedicated volunteers of Brittany's Trees -- over the holidays.

This year, their all volunteer team sold, delivered, and decorated 1,650 trees throughout 30 towns in the Chicagoland area. Congratulations on a very successful 21st season!

We are so grateful to the entire Brittany's Trees community for its generous support of the SADS Foundation.

We’re helping find hope for rare hearts.“On our daughter Liv’s very first day of life, we got the diagnosis: she had Lon...
12/30/2025

We’re helping find hope for rare hearts.

“On our daughter Liv’s very first day of life, we got the diagnosis: she had Long QT Syndrome (LQTS). That diagnosis pulled the ground from under our feet. At first, we didn’t fully understand what it meant. We only knew it was serious. And that it had changed our lives forever.

Thanks to people like Dr. Michael Ackerman and organizations like the SADS Foundation, there may come a day when children like Liv no longer need daily medication or live with constant uncertainty.”

Help support children like Liv by donating today at https://sads.donorsupport.co/page/2025YearEndSocial.

Join us for our next SADS Live Episode with Dr. Michael Ackerman from the Mayo Clinic — one of the world’s leading exper...
12/29/2025

Join us for our next SADS Live Episode with Dr. Michael Ackerman from the Mayo Clinic — one of the world’s leading experts in inherited heart rhythm conditions. This live will be tomorrow!

Tuesday, December 30th, 2025
12:20 PM EST
Live on Facebook, YouTube, and Instagram
https://www.youtube.com/watch?v=tPnkdUwjf0Y

Bring your questions — Dr. Ackerman will be answering them live!
🏷️

Families deserve answers that are clear and timely - and bring hope, not fear.My son’s first faint was in 1973, but we d...
12/27/2025

Families deserve answers that are clear and timely - and bring hope, not fear.

My son’s first faint was in 1973, but we didn’t learn anything meaningful until 1996 - when the founder of the SADS Foundation explained Long QT Syndrome in a Reader’s Digest article. That’s more than 20 years without a clear diagnosis.

In those early years, doctors prescribed phenobarbital to “protect” him, leaving him lethargic and without real solutions. When we finally heard the words Long QT, we were told it was fatal and that nothing could be done - other than an operation that could paralyze him.

Everything changed in 2005 when we went to a SADS Foundation conference. We learned about beta blockers, ICDs, and the growing research that was transforming outcomes. Genetic testing revealed that my husband and I both had the gene - and that several relatives did too. Research didn’t just inform our care; it protected our entire family, including the next generation.

So much progress has been made in the last 20-30 years. And it’s only going to get better, with continued research and the work of the SADS Foundation.

Help accelerate the discoveries that save families like ours. Donate today at https://sads.donorsupport.co/page/2025YearEndSocial.

The holidays remind us of what matters most: family, connection, and caring for one another. We are grateful for our inc...
12/25/2025

The holidays remind us of what matters most: family, connection, and caring for one another. We are grateful for our incredible SADS community and the strength you share every day.

This season, we’re also holding space for joy, remembrance, and hope. To every family walking a heart journey—whether in celebration, quiet reflection, or both—you are not alone. From all of us at SADS, we wish you peace, comfort, and moments of light this holiday season. ✨

No parent should face a diagnosis this rare alone.“Timothy Syndrome completely turned our family upside down. We knew be...
12/24/2025

No parent should face a diagnosis this rare alone.

“Timothy Syndrome completely turned our family upside down. We knew before Theodora arrived that she had Long QT Syndrome, but we didn’t learn it was one of the rarest forms until she was born with the hallmark fused fingers. Realizing her prognosis was much more serious than other types of Long QT was devastating, and we went through a true grieving process as a family.

To keep Theodora as safe and healthy as possible, all of us have shifted our lives - learning together and becoming closer as a family.

When she was born, there was almost no information, no cure, and no ongoing research for Timothy Syndrome. That’s what pushed me back into rare-disease advocacy. I had to do something for her - and for families who will come after us.”

You can help too. Donate to the SADS Foundation today to fuel research and bring hope to families facing ultra-rare diagnoses at https://sads.donorsupport.co/page/2025YearEndSocial.

Address

4527 South 2300 East #104
Salt Lake City, UT
84117

Website

Alerts

Be the first to know and let us send you an email when SADS (Sudden Arrhythmia Death Syndromes) Foundation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram