Guillain Barre Recovery Essentials

05/27/2022

Some days are better than others but on a whole we are moving upwards. Effort never goes unaccounted, however seemingly insignificant. Give it your best 💪.

05/26/2022

"Sutra" means a thread or line that holds things together and is derived from the verbal root siv-, meaning to sew, as does the medical term "suture". This chant is a healing one to literally thread the heart together, relieving suffering we all face on this planet. Many of us who have survived and live with the ongoing neurological symptoms of have undoubtedly suffered. May this song find you in the place you find yourself 🙏

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05/21/2022

I am working hard on a course for people with GBS. It will include:

1. Managing inflammation that is present post-immune attack (esp of the nerve roots)
2. Fixing oxidative stress and antioxidant balance
3. Repairing mitochondria
4. Clearing the myelin debris that inhibits growth of new myelin
5. Creating an environment for new myelin to grow efficiently

What else would you like to know about? What questions about the course might you have?

Please like/comment below 🙏

05/19/2022

You can get better. I believe in you!

05/18/2022

In conditions involving myelin damage, such as Guillain Barre syndrome, the fat-soluble antioxidants are depleted the most. This makes sense as it is the oxidative stress from the immune system directed at the fatty myelin sheath that is primarily responsible for motor/sensory symptoms in GBS.

S Barakh et al (2021) Oxidative stress in Guillain Barre syndrome and linkage with neurology. Zika Virus Impact, Diagnosis, Control and Models. 12:135-141

05/17/2022

Under normal conditions mitochondria produce potentially damaging oxidative free radicles. Our body has an antioxidant system to balance these normal free radicles.

But viral infections cause an immune response that depletes our antioxidants. Before rebuilding mitochondria, it’s important to replenish our antioxidants.

05/16/2022

The single most important thing to healing from nerve dysfunction is mitochondria. The power plants of the nerve cells that keeps the lights on and information flowing. Viral infections are known to commonly impair mitochondria.

Citations:
Daisuke Ino and Masamitsu Lino (2017) Schwann cell mitochondria as key regulator in the development and maintenance of peripheral nerve axons. Cellular and Molecular Life Sciences. 74(5):827-835.

J Foo et al (2021) Mitochondria-mediated oxidative stress during viral infection. Cell Press Trends in Microbiology.

05/10/2022

My life was completely changed in a matter of days. I was exposed to Covid in Jan 2022. It hit me pretty hard. I never expected that a couple weeks later I would barely be able to walk. And the short distance I could cover was not pretty. I was a very healthy and a very able martial artist. This was a shock to my world. I got a nerve conduction study, the results were in line with Guillain Barre syndrome. The time course and clinical features were enough for me to decide I was suffering from GBS. From the abdomen down I could hardly feel anything and was very very weak. And what I'm less excited to share was the weakness I felt in my bladder and stools.

I needed something to change fast. The "time course" for GBS ranges from 6-12 months. The sooner the better. So I began learning everything I could about demyelination and remyelination, the consequences widespread infectious and immune responses have on our cells/biochemistry and how to support our repair mechanisms.

I didn't want to suffer like this any longer than I had to. I wanted to have the most complete recovery I could. Knowing that there are other people suffering like me and in many instances far worse than me with a medical system that may not be providing much support in the Chronic stages (CIDP), I would dedicate myself to sharing in information from updated high-quality research, clinical education from experienced clinicians and gleaning the experiences of other from different support groups.

This page is where I will be sharing the distillation of all the information I've compiled. I encourage you to follow, like, share and comment/ask questions on any topic you would like me to elaborate on. I thank you for visiting and may healing bless all who suffer 🙏

05/10/2022

Welcome to my page. I will be posting on the topic of Guillain-Barre Syndrome daily.

How can I help? Please let me know in the comments below