National Council on Severe Autism

National Council on Severe Autism Pursuing recognition, policy and solutions for the surging population of individuals, families and caregivers affected by severe forms of autism.

We are committed to improving the long-term welfare of individuals, families and caregivers affected by severe forms of autism and related neurodevelopmental disorders. To that end, we

โ€ข ๐—˜๐—ฑ๐˜‚๐—ฐ๐—ฎ๐˜๐—ฒ ๐˜๐—ต๐—ฒ ๐—ฝ๐˜‚๐—ฏ๐—น๐—ถ๐—ฐ about these disabilities, and how they require special attention and services.
โ€ข ๐—ฃ๐—ฟ๐—ผ๐˜ƒ๐—ถ๐—ฑ๐—ฒ ๐—ฎ ๐—ฝ๐—น๐—ฎ๐˜๐—ณ๐—ผ๐—ฟ๐—บ for think tanks and serious discourse addressing policy and services.
โ€ข ๐—˜๐—ฑ๐˜‚๐—ฐ๐—ฎ๐˜๐—ฒ ๐—ฝ๐—ผ๐—น๐—ถ๐—ฐ๐˜†๐—บ๐—ฎ๐—ธ๐—ฒ๐—ฟ๐˜€ about the impact of legislation and policy on our vulnerable, growing, and often overshadowed population.
โ€ข ๐—ฃ๐—ฟ๐—ผ๐—บ๐—ผ๐˜๐—ฒ ๐—ฟ๐—ฒ๐˜€๐—ฒ๐—ฎ๐—ฟ๐—ฐ๐—ต into therapeutics, neurobiology, and causes of severe forms of autism and related disabilities.
โ€ข ๐—ฃ๐—ฟ๐—ผ๐—บ๐—ผ๐˜๐—ฒ ๐—ฎ๐˜‚๐˜๐—ต๐—ฒ๐—ป๐˜๐—ถ๐—ฐ ๐—ฎ๐˜„๐—ฎ๐—ฟ๐—ฒ๐—ป๐—ฒ๐˜€๐˜€ of individuals, families, and caregivers affected by severe forms of autism by giving voice to their realities and needs. The nonprofit NCSA is the nation's leading voice pursuing recognition, policy and solutions for the surging population of individuals, families and caregivers affected by severe forms of autism and related disorders. More information: www.NCSAutism.org



๐—–๐—ผ๐—บ๐—บ๐˜‚๐—ป๐—ถ๐˜๐˜† ๐—š๐˜‚๐—ถ๐—ฑ๐—ฒ๐—น๐—ถ๐—ป๐—ฒ๐˜€
โ€ข Focus discussions on severe autism and related support needs
โ€ข Respect the lived experiences of families and caregivers
โ€ข Acknowledge the distinct challenges of severe autism versus other parts of the spectrum
โ€ข Maintain civil discourse even in disagreement
โ€ข Share personal experiences respectfully and constructively
โ€ข These guidelines aim to create a supportive, focused space for our community.



๐—ง๐—ต๐—ฒ ๐—ก๐—ฎ๐˜๐—ถ๐—ผ๐—ป๐—ฎ๐—น ๐—–๐—ผ๐˜‚๐—ป๐—ฐ๐—ถ๐—น ๐—ผ๐—ป ๐—ฆ๐—ฒ๐˜ƒ๐—ฒ๐—ฟ๐—ฒ ๐—”๐˜‚๐˜๐—ถ๐˜€๐—บ (๐—ก๐—–๐—ฆ๐—”) ๐—บ๐—ฎ๐—ถ๐—ป๐˜๐—ฎ๐—ถ๐—ป๐˜€ ๐—ฎ ๐˜‡๐—ฒ๐—ฟ๐—ผ-๐˜๐—ผ๐—น๐—ฒ๐—ฟ๐—ฎ๐—ป๐—ฐ๐—ฒ ๐—ฝ๐—ผ๐—น๐—ถ๐—ฐ๐˜† ๐—ณ๐—ผ๐—ฟ ๐—ฐ๐—ผ๐—ป๐˜๐—ฒ๐—ป๐˜ ๐˜๐—ต๐—ฎ๐˜ ๐˜‚๐—ป๐—ฑ๐—ฒ๐—ฟ๐—บ๐—ถ๐—ป๐—ฒ๐˜€ ๐—ผ๐˜‚๐—ฟ ๐—บ๐—ถ๐˜€๐˜€๐—ถ๐—ผ๐—ป ๐—ผ๐—ณ ๐˜€๐˜‚๐—ฝ๐—ฝ๐—ผ๐—ฟ๐˜๐—ถ๐—ป๐—ด ๐—ถ๐—ป๐—ฑ๐—ถ๐˜ƒ๐—ถ๐—ฑ๐˜‚๐—ฎ๐—น๐˜€ ๐˜„๐—ถ๐˜๐—ต ๐˜€๐—ฒ๐˜ƒ๐—ฒ๐—ฟ๐—ฒ ๐—ฎ๐˜‚๐˜๐—ถ๐˜€๐—บ ๐—ฎ๐—ป๐—ฑ ๐˜๐—ต๐—ฒ๐—ถ๐—ฟ ๐—ณ๐—ฎ๐—บ๐—ถ๐—น๐—ถ๐—ฒ๐˜€. Our moderators have full discretion to take immediate action against any violations of our community guidelines, including but not limited to:

โ€ข Harassment of families and caregivers
โ€ข Dismissal or minimization of severe autism challenges
โ€ข Hate speech or discriminatory comments
โ€ข Trolling or intentionally disruptive behavior
โ€ข Spam or promotional content

While warnings may be issued, moderators are not required to provide prior notice before taking action. Comments may be removed and users may be banned immediately based on the severity of the violation. This discretion is necessary to maintain a safe, supportive environment for our community.

๐—•๐˜† ๐—ฝ๐—ฎ๐—ฟ๐˜๐—ถ๐—ฐ๐—ถ๐—ฝ๐—ฎ๐˜๐—ถ๐—ป๐—ด ๐—ถ๐—ป ๐˜๐—ต๐—ถ๐˜€ ๐—ฝ๐—ฎ๐—ด๐—ฒ, ๐˜†๐—ผ๐˜‚ ๐—ฎ๐—ฐ๐—ธ๐—ป๐—ผ๐˜„๐—น๐—ฒ๐—ฑ๐—ด๐—ฒ ๐—ฎ๐—ป๐—ฑ ๐—ฎ๐—ฐ๐—ฐ๐—ฒ๐—ฝ๐˜ ๐˜๐—ต๐—ฒ๐˜€๐—ฒ ๐˜๐—ฒ๐—ฟ๐—บ๐˜€. All moderator decisions are final. NCSA reserves the right to modify these guidelines at any time to protect our community members.

Legal Analysis: The Blatant Rights Violations in Tennessee's Arrest of an Autistic Child In recent days, the story of a ...
11/15/2025

Legal Analysis: The Blatant Rights Violations in Tennessee's Arrest of an Autistic Child

In recent days, the story of a five-year-old with autism charged with assault in TN has garnered many different opinions. In this analysis, Cristina Gaudio, NCSA Legal and Policy Fellow, dissects the situation, bringing light to the implications of what all of this could mean for the autism community.

By: Cristina Gaudio, NCSA Legal and Policy Fellow This week, records obtained in Tennessee showed the prosecution of a 5-year-old boy with autism. Documents show that the Sumner County District Attorney's Office and juvenile court had previously declined to prosecute the case, swiftly dismissing in

11/15/2025

Whenever we talk about cameras in group homes, someone always asks: How do we balance safety with privacy?

The truth, backed by facts, is straightforward: Cameras save lives. And concerns about privacy are often overstated and misplaced.

Hereโ€™s whatโ€™s at stake:
Some residents, especially those with severe autism, canโ€™t speak out, canโ€™t identify their abusers, and canโ€™t testify against them. Without cameras, predators know they can do anythingโ€”harm and exploit the most vulnerable without consequences. Every day, these unseen dangers destroy lives.

And the privacy concerns?
Since 2018, there hasnโ€™t been a single report in NJ where camera footage was used to help abuse, neglect, or exploit a group home resident.* Check it yourselfโ€”look into other states and settings like nursing homes. The evidence is clear: cameras protect, not threaten, privacy.

Why are fears about privacy misplaced?
Living in a group home shouldnโ€™t mean sacrificing safety or privacy. There are countless ways residentsโ€™ privacy is already at riskโ€”other residents (and their guests) as well as staff listening in, snooping around, invading personal space. Legally installed cameras are actually a critical tool to fight back against those threats, keeping everyone safer and actually preserving genuine privacy.

Weโ€™ve said it before, and weโ€™ll keep shouting it from the rooftops: Cameras save lives. And protect actual privacy.

Because behind every statistic is a personโ€”someone whoโ€™s counting on us to do everything we can to protect them.

JOIN NCSA-NJ today -- it's free -- and help us protect NJ's most viulnerable. Ncsa-nj.org

*Source: Ombudsmnโ€™s Office*

National Council on Severe Autism Profound Autism Alliance Safety Special Interest Group Autism New JerseyMikie SherrillAutism Science FoundationNJ Ombudsman for Individuals with Intellectual & Developmental Disabilities@followersNew Jersey Association of Community Providers - NJACP

RE: the 5 year-old with autism who faces assault charges. From the opinion article:โ€œA five-year-old boy with autism, who...
11/14/2025

RE: the 5 year-old with autism who faces assault charges.

From the opinion article:

โ€œA five-year-old boy with autism, who faces assault charges for his classroom behavior, reveals a glaring systemic failure on three fronts โ€” by his school, the juvenile justice system and state law.โ€

โ€œBut state law and the juvenile justice system didnโ€™t just fail this child. His school, charged with protecting him and by extension, his classmates, failed him too.โ€

โ€œNot only did the school resource officer write the boy up, the parents said H.B. Williams suspended him twice before those reported incidents.โ€

โ€œIf thatโ€™s true, then the school likely violated federal law under the Individuals with Disabilities Education Act. That law ensures that a student with a disability and an IEP (or Individualized Education Program) is entitled to a review, which ensures that they are being protected from disciplinary actions that could be the result of their disability.โ€

โ€œThatโ€™s not just bad judgmentโ€”it flies in the face of disability law.โ€

โ€œWhether intentional or not, it reveals an institutionโ€™s reflex of penalizing disability rather than according proper due process that the law and children with disabilities require.โ€

A 5-year-old with autism who was recently brought up on assault charges, was failed by the very systems that should've ensured his welfare.

5-year-old with autism charged with assault after outbursts at Sumner County school.Excerpt: The boyโ€™s parents said thei...
11/12/2025

5-year-old with autism charged with assault after outbursts at Sumner County school.

Excerpt:

The boyโ€™s parents said their son's tendency toward physical aggression is nothing new.

They placed in him several months of intensive therapy to get him ready for school. They were told by the experts they worked with that he was ready for a traditional classroom, with the proper support in place. Documents show the boy had an individualized education plan, or IEP, in place. However, the plan lacked full-time one-on-one support for the boy when school began.

When school started, the boy's parents quickly became aware their son was having outbursts and acting out physically.

"It's pretty evident that nobody read the IEP or the assessments that he had," the boy's dad said. "They weren't prepared at all, and they seemed so surprised by this behavior."

โ€”โ€”โ€”โ€”โ€”-
But when prosecutors declined to press charges, instead of other parents filing a private prosecution against the school for failing this student and others, they filed criminal private prosecution charges against the FIVE YEAR OLD WITH AUTISM!

Preach โ€œacceptanceโ€ all you want. Parents of children with severe forms of autism know the pain all too well of systems that fail and judgment by society.

This is why we raise however โ€œunpopularโ€ it might be to those who just want to celebrate โ€œspecial abilities.โ€ These behaviors are common SYMPTOMS of the DISABILITY of severe forms of autism. They need support and services, not criminal charges and stigmatizing.



A Sumner County kindergartener with autism is facing assault charges after outbursts at school, leaving his parents shaken and full of questions.

๏ฟผOpposing autism โ€œcure researchโ€ in reality means rejecting studies like this that aim to lessen self-injury, violent me...
11/10/2025

๏ฟผOpposing autism โ€œcure researchโ€ in reality means rejecting studies like this that aim to lessen self-injury, violent meltdowns, and other life-threatening behaviors. It is one more example of how autism advocacy has become a place where nuance goes to die.

From the article:

โ€œThe great mystery with repetitive behaviors is that individuals differ so much in both risk and severity, even when they grow up in the same environment and share the same genetics,โ€ adds Garner, professor of comparative medicine, Stanford Medicine.

โ€œThis mystery also gives us hope that repetitive behaviors might be preventable or curable. Thatโ€™s why this work is such an exciting breakthrough, it gives us so many clues to follow, and a whole new technological approach to do so.โ€

A new study shows that oxidative stressโ€”an imbalance between damaging molecules and antioxidantsโ€”may contribute to repetitive behaviors observed in mice, similar to those seen in autism spectrum disorder and schizophrenia.

Families of children with autism say cuts to provider reimbursements are hurting their daughters and sons.From the artic...
11/08/2025

Families of children with autism say cuts to provider reimbursements are hurting their daughters and sons.

From the article:

โ€œFamilies of children with autism in lawsuit against NCDHHS contend it did not need to cut reimbursement rates for providers.

A judge temporarily paused the cuts until at least Monday.

The issue over how much to pay providers for services rendered to patients draws back to this summer in the General Assembly.โ€

Families using Medicaid services for their children with autism said rate cuts would have negatively impacted their growth and development.

www.cureSYNGAP1.org/NotMyDaughter
11/05/2025

www.cureSYNGAP1.org/NotMyDaughter

CURE SYNGAP1 Advocacy Director Jackie Kancir shares from her personal blog her passion for her daughter and how hard her journey for appropriate care and consideration has been. "The gap between (the system's) rhetoric and our reality is the true crisis."



Renee

Here is a big ole Halloween bucket of truth about autism, written by Cristina Gaudio, NCSA Legal & Policy Fellow.โ€œThis i...
11/01/2025

Here is a big ole Halloween bucket of truth about autism, written by Cristina Gaudio, NCSA Legal & Policy Fellow.

โ€œThis is autism after dark, the scary kind that doesnโ€™t make it onto Instagram, that no โ€œawareness monthโ€ campaign will feature.โ€

Thank you Cristina!

By: Cristina Gaudio, NCSA Legal & Policy Fellow I am one of the luckiest women on earth. Not because I am rich or famous (because I am not), but because in my work, I have the privilege of hearing the stories of autism families and the opportunity to make a real difference. In recent weeks

What an incredibly important piece to read. Weโ€™ve been watching personality traits turned into โ€œdisordersโ€ like autism a...
10/30/2025

What an incredibly important piece to read. Weโ€™ve been watching personality traits turned into โ€œdisordersโ€ like autism and ADHD for years. Itโ€™s now common to hear people say after a diagnosis, โ€œNo wonder I felt different,โ€ or โ€œIt helps me understand myself better.โ€

This article is speaking on Gen Z but this phenomenon is seen across all generations.

A diagnosis of a disability or disorder is not about labeling who you are. It is about proving what support you need. The system was built to determine eligibility for services, funding, and legal protections. Self-understanding can be meaningful, but the purpose of a diagnosis is to open doors and protections, not to define you.

When people who merely feel โ€œdifferentโ€ begin shaping disability research and policy, the result is erasure of those with genuine disabilities.

From the article:

โ€œWe have lost the sentimental ways we used to describe people. Now you are always late to things not because you are lovably forgetful, not because you are scattered and interesting and secretly loved for never arriving on time, but because of ADHD. You are shy and stare at your feet when people talk to you not because you are your motherโ€™s child, not because you are gentle and sweet and blush the same way she does, but autism. You are the way you are not because you have a soul but because of your symptoms and diagnoses; you are not an amalgam of your ancestors or curious constellation of traits but the clinical result of a timeline of childhood events.โ€

We are products with labels

What an amazing space! ABA therapy can improve the lives, as well as be life-saving, for many people on the ASD spectrum...
10/29/2025

What an amazing space! ABA therapy can improve the lives, as well as be life-saving, for many people on the ASD spectrum. With a spectrum this large, one size will never fit all.

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We believe in many โ€œautismโ€...

many millions of people have traits associated with autism. The NCSA, however, focuses on the burgeoning population of children and adults affected by severe forms of autism or related disorders. This population includes those who, by virtue of any combination of cognitive and functional impairments, require continuous or near-continuous, lifelong services, supports, and supervision. Individuals in this category are often nonverbal or have limited use of language, have intellectual impairment, and, in a subset, exhibit challenging behaviors that interfere with safety and well-being.

We face an urgent, mounting crisis. Due to its rapid increase in prevalence and the severity common in this disability, severe autism has developed into an urgent public health and social services crisis. Pragmatic policy reform to address the lifespan needs posed by severe autism-associated disability is needed, including empowering the nonprofit sector to provide a full continuum of programs, facilitating family and private investments in a wide array of housing and long-term care options, and crafting more efficient federal and state funding mechanisms.

We believe in the importance of treatment and intervention. Individuals and families affected by severe autism and related neurodevelopmental disabilities often suffer very low quality of life due to disruptive and dangerous behaviors and emotional, physical, and financial stress. Innovation in treatment across the lifespan is urgently needed, both to improve autism-associated functional deficits and also the variety of co-morbidities and health conditions affecting the majority of people with severe forms of autism.

What We Do We are committed to improving the long-term welfare of individuals, families and caregivers affected by severe forms of autism and related neurodevelopmental disorders. To that end, we: