Pursuing recognition, policy and solutions for the surging population of individuals, families and caregivers affected by severe forms of autism.
We are committed to improving the long-term welfare of individuals, families and caregivers affected by severe forms of autism and related neurodevelopmental disorders. To that end, we
โข ๐๐ฑ๐๐ฐ๐ฎ๐๐ฒ ๐๐ต๐ฒ ๐ฝ๐๐ฏ๐น๐ถ๐ฐ about these disabilities, and how they require special attention and services.
โข ๐ฃ๐ฟ๐ผ๐๐ถ๐ฑ๐ฒ ๐ฎ ๐ฝ๐น๐ฎ๐๐ณ๐ผ๐ฟ๐บ for think tanks and serious discourse addressing policy and services.
โข ๐๐ฑ๐๐ฐ๐ฎ๐๐ฒ ๐ฝ๐ผ๐น๐ถ๐ฐ๐๐บ๐ฎ๐ธ๐ฒ๐ฟ๐ about the impact of legislation and policy on our vulnerable, growing, and often overshadowed population.
โข ๐ฃ๐ฟ๐ผ๐บ๐ผ๐๐ฒ ๐ฟ๐ฒ๐๐ฒ๐ฎ๐ฟ๐ฐ๐ต into therapeutics, neurobiology, and causes of severe forms of autism and related disabilities.
โข ๐ฃ๐ฟ๐ผ๐บ๐ผ๐๐ฒ ๐ฎ๐๐๐ต๐ฒ๐ป๐๐ถ๐ฐ ๐ฎ๐๐ฎ๐ฟ๐ฒ๐ป๐ฒ๐๐ of individuals, families, and caregivers affected by severe forms of autism by giving voice to their realities and needs. The nonprofit NCSA is the nation's leading voice pursuing recognition, policy and solutions for the surging population of individuals, families and caregivers affected by severe forms of autism and related disorders. More information: www.NCSAutism.org
๐๐ผ๐บ๐บ๐๐ป๐ถ๐๐ ๐๐๐ถ๐ฑ๐ฒ๐น๐ถ๐ป๐ฒ๐
โข Focus discussions on severe autism and related support needs
โข Respect the lived experiences of families and caregivers
โข Acknowledge the distinct challenges of severe autism versus other parts of the spectrum
โข Maintain civil discourse even in disagreement
โข Share personal experiences respectfully and constructively
โข These guidelines aim to create a supportive, focused space for our community.
๐ง๐ต๐ฒ ๐ก๐ฎ๐๐ถ๐ผ๐ป๐ฎ๐น ๐๐ผ๐๐ป๐ฐ๐ถ๐น ๐ผ๐ป ๐ฆ๐ฒ๐๐ฒ๐ฟ๐ฒ ๐๐๐๐ถ๐๐บ (๐ก๐๐ฆ๐) ๐บ๐ฎ๐ถ๐ป๐๐ฎ๐ถ๐ป๐ ๐ฎ ๐๐ฒ๐ฟ๐ผ-๐๐ผ๐น๐ฒ๐ฟ๐ฎ๐ป๐ฐ๐ฒ ๐ฝ๐ผ๐น๐ถ๐ฐ๐ ๐ณ๐ผ๐ฟ ๐ฐ๐ผ๐ป๐๐ฒ๐ป๐ ๐๐ต๐ฎ๐ ๐๐ป๐ฑ๐ฒ๐ฟ๐บ๐ถ๐ป๐ฒ๐ ๐ผ๐๐ฟ ๐บ๐ถ๐๐๐ถ๐ผ๐ป ๐ผ๐ณ ๐๐๐ฝ๐ฝ๐ผ๐ฟ๐๐ถ๐ป๐ด ๐ถ๐ป๐ฑ๐ถ๐๐ถ๐ฑ๐๐ฎ๐น๐ ๐๐ถ๐๐ต ๐๐ฒ๐๐ฒ๐ฟ๐ฒ ๐ฎ๐๐๐ถ๐๐บ ๐ฎ๐ป๐ฑ ๐๐ต๐ฒ๐ถ๐ฟ ๐ณ๐ฎ๐บ๐ถ๐น๐ถ๐ฒ๐. Our moderators have full discretion to take immediate action against any violations of our community guidelines, including but not limited to:
โข Harassment of families and caregivers
โข Dismissal or minimization of severe autism challenges
โข Hate speech or discriminatory comments
โข Trolling or intentionally disruptive behavior
โข Spam or promotional content
While warnings may be issued, moderators are not required to provide prior notice before taking action. Comments may be removed and users may be banned immediately based on the severity of the violation. This discretion is necessary to maintain a safe, supportive environment for our community.
๐๐ ๐ฝ๐ฎ๐ฟ๐๐ถ๐ฐ๐ถ๐ฝ๐ฎ๐๐ถ๐ป๐ด ๐ถ๐ป ๐๐ต๐ถ๐ ๐ฝ๐ฎ๐ด๐ฒ, ๐๐ผ๐ ๐ฎ๐ฐ๐ธ๐ป๐ผ๐๐น๐ฒ๐ฑ๐ด๐ฒ ๐ฎ๐ป๐ฑ ๐ฎ๐ฐ๐ฐ๐ฒ๐ฝ๐ ๐๐ต๐ฒ๐๐ฒ ๐๐ฒ๐ฟ๐บ๐. All moderator decisions are final. NCSA reserves the right to modify these guidelines at any time to protect our community members.
11/15/2025
Legal Analysis: The Blatant Rights Violations in Tennessee's Arrest of an Autistic Child
In recent days, the story of a five-year-old with autism charged with assault in TN has garnered many different opinions. In this analysis, Cristina Gaudio, NCSA Legal and Policy Fellow, dissects the situation, bringing light to the implications of what all of this could mean for the autism community.
By: Cristina Gaudio, NCSA Legal and Policy Fellow This week, records obtained in Tennessee showed the prosecution of a 5-year-old boy with autism. Documents show that the Sumner County District Attorney's Office and juvenile court had previously declined to prosecute the case, swiftly dismissing in
11/15/2025
Whenever we talk about cameras in group homes, someone always asks: How do we balance safety with privacy?
The truth, backed by facts, is straightforward: Cameras save lives. And concerns about privacy are often overstated and misplaced.
Hereโs whatโs at stake:
Some residents, especially those with severe autism, canโt speak out, canโt identify their abusers, and canโt testify against them. Without cameras, predators know they can do anythingโharm and exploit the most vulnerable without consequences. Every day, these unseen dangers destroy lives.
And the privacy concerns?
Since 2018, there hasnโt been a single report in NJ where camera footage was used to help abuse, neglect, or exploit a group home resident.* Check it yourselfโlook into other states and settings like nursing homes. The evidence is clear: cameras protect, not threaten, privacy.
Why are fears about privacy misplaced?
Living in a group home shouldnโt mean sacrificing safety or privacy. There are countless ways residentsโ privacy is already at riskโother residents (and their guests) as well as staff listening in, snooping around, invading personal space. Legally installed cameras are actually a critical tool to fight back against those threats, keeping everyone safer and actually preserving genuine privacy.
Weโve said it before, and weโll keep shouting it from the rooftops: Cameras save lives. And protect actual privacy.
Because behind every statistic is a personโsomeone whoโs counting on us to do everything we can to protect them.
JOIN NCSA-NJ today -- it's free -- and help us protect NJ's most viulnerable. Ncsa-nj.org
*Source: Ombudsmnโs Office*
National Council on Severe Autism Profound Autism Alliance Safety Special Interest Group Autism New JerseyMikie SherrillAutism Science FoundationNJ Ombudsman for Individuals with Intellectual & Developmental Disabilities@followersNew Jersey Association of Community Providers - NJACP
11/14/2025
RE: the 5 year-old with autism who faces assault charges.
From the opinion article:
โA five-year-old boy with autism, who faces assault charges for his classroom behavior, reveals a glaring systemic failure on three fronts โ by his school, the juvenile justice system and state law.โ
โBut state law and the juvenile justice system didnโt just fail this child. His school, charged with protecting him and by extension, his classmates, failed him too.โ
โNot only did the school resource officer write the boy up, the parents said H.B. Williams suspended him twice before those reported incidents.โ
โIf thatโs true, then the school likely violated federal law under the Individuals with Disabilities Education Act. That law ensures that a student with a disability and an IEP (or Individualized Education Program) is entitled to a review, which ensures that they are being protected from disciplinary actions that could be the result of their disability.โ
โThatโs not just bad judgmentโit flies in the face of disability law.โ
โWhether intentional or not, it reveals an institutionโs reflex of penalizing disability rather than according proper due process that the law and children with disabilities require.โ
A 5-year-old with autism who was recently brought up on assault charges, was failed by the very systems that should've ensured his welfare.
11/12/2025
5-year-old with autism charged with assault after outbursts at Sumner County school.
Excerpt:
The boyโs parents said their son's tendency toward physical aggression is nothing new.
They placed in him several months of intensive therapy to get him ready for school. They were told by the experts they worked with that he was ready for a traditional classroom, with the proper support in place. Documents show the boy had an individualized education plan, or IEP, in place. However, the plan lacked full-time one-on-one support for the boy when school began.
When school started, the boy's parents quickly became aware their son was having outbursts and acting out physically.
"It's pretty evident that nobody read the IEP or the assessments that he had," the boy's dad said. "They weren't prepared at all, and they seemed so surprised by this behavior."
โโโโโ-
But when prosecutors declined to press charges, instead of other parents filing a private prosecution against the school for failing this student and others, they filed criminal private prosecution charges against the FIVE YEAR OLD WITH AUTISM!
Preach โacceptanceโ all you want. Parents of children with severe forms of autism know the pain all too well of systems that fail and judgment by society.
This is why we raise however โunpopularโ it might be to those who just want to celebrate โspecial abilities.โ These behaviors are common SYMPTOMS of the DISABILITY of severe forms of autism. They need support and services, not criminal charges and stigmatizing.
A Sumner County kindergartener with autism is facing assault charges after outbursts at school, leaving his parents shaken and full of questions.
11/10/2025
๏ฟผOpposing autism โcure researchโ in reality means rejecting studies like this that aim to lessen self-injury, violent meltdowns, and other life-threatening behaviors. It is one more example of how autism advocacy has become a place where nuance goes to die.
From the article:
โThe great mystery with repetitive behaviors is that individuals differ so much in both risk and severity, even when they grow up in the same environment and share the same genetics,โ adds Garner, professor of comparative medicine, Stanford Medicine.
โThis mystery also gives us hope that repetitive behaviors might be preventable or curable. Thatโs why this work is such an exciting breakthrough, it gives us so many clues to follow, and a whole new technological approach to do so.โ
A new study shows that oxidative stressโan imbalance between damaging molecules and antioxidantsโmay contribute to repetitive behaviors observed in mice, similar to those seen in autism spectrum disorder and schizophrenia.
11/08/2025
Families of children with autism say cuts to provider reimbursements are hurting their daughters and sons.
From the article:
โFamilies of children with autism in lawsuit against NCDHHS contend it did not need to cut reimbursement rates for providers.
A judge temporarily paused the cuts until at least Monday.
The issue over how much to pay providers for services rendered to patients draws back to this summer in the General Assembly.โ
Families using Medicaid services for their children with autism said rate cuts would have negatively impacted their growth and development.
CURE SYNGAP1 Advocacy Director Jackie Kancir shares from her personal blog her passion for her daughter and how hard her journey for appropriate care and consideration has been. "The gap between (the system's) rhetoric and our reality is the true crisis."
Renee
11/01/2025
Here is a big ole Halloween bucket of truth about autism, written by Cristina Gaudio, NCSA Legal & Policy Fellow.
โThis is autism after dark, the scary kind that doesnโt make it onto Instagram, that no โawareness monthโ campaign will feature.โ
Thank you Cristina!
By: Cristina Gaudio, NCSA Legal & Policy Fellow I am one of the luckiest women on earth. Not because I am rich or famous (because I am not), but because in my work, I have the privilege of hearing the stories of autism families and the opportunity to make a real difference. In recent weeks
10/30/2025
What an incredibly important piece to read. Weโve been watching personality traits turned into โdisordersโ like autism and ADHD for years. Itโs now common to hear people say after a diagnosis, โNo wonder I felt different,โ or โIt helps me understand myself better.โ
This article is speaking on Gen Z but this phenomenon is seen across all generations.
A diagnosis of a disability or disorder is not about labeling who you are. It is about proving what support you need. The system was built to determine eligibility for services, funding, and legal protections. Self-understanding can be meaningful, but the purpose of a diagnosis is to open doors and protections, not to define you.
When people who merely feel โdifferentโ begin shaping disability research and policy, the result is erasure of those with genuine disabilities.
From the article:
โWe have lost the sentimental ways we used to describe people. Now you are always late to things not because you are lovably forgetful, not because you are scattered and interesting and secretly loved for never arriving on time, but because of ADHD. You are shy and stare at your feet when people talk to you not because you are your motherโs child, not because you are gentle and sweet and blush the same way she does, but autism. You are the way you are not because you have a soul but because of your symptoms and diagnoses; you are not an amalgam of your ancestors or curious constellation of traits but the clinical result of a timeline of childhood events.โ
We are products with labels
10/29/2025
What an amazing space! ABA therapy can improve the lives, as well as be life-saving, for many people on the ASD spectrum. With a spectrum this large, one size will never fit all.
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Contact The Practice
Send a message to National Council on Severe Autism:
many millions of people have traits associated with autism. The NCSA, however, focuses on the burgeoning population of children and adults affected by severe forms of autism or related disorders. This population includes those who, by virtue of any combination of cognitive and functional impairments, require continuous or near-continuous, lifelong services, supports, and supervision. Individuals in this category are often nonverbal or have limited use of language, have intellectual impairment, and, in a subset, exhibit challenging behaviors that interfere with safety and well-being.
We face an urgent, mounting crisis. Due to its rapid increase in prevalence and the severity common in this disability, severe autism has developed into an urgent public health and social services crisis. Pragmatic policy reform to address the lifespan needs posed by severe autism-associated disability is needed, including empowering the nonprofit sector to provide a full continuum of programs, facilitating family and private investments in a wide array of housing and long-term care options, and crafting more efficient federal and state funding mechanisms.
We believe in the importance of treatment and intervention. Individuals and families affected by severe autism and related neurodevelopmental disabilities often suffer very low quality of life due to disruptive and dangerous behaviors and emotional, physical, and financial stress. Innovation in treatment across the lifespan is urgently needed, both to improve autism-associated functional deficits and also the variety of co-morbidities and health conditions affecting the majority of people with severe forms of autism.
What We Do
We are committed to improving the long-term welfare of individuals, families and caregivers affected by severe forms of autism and related neurodevelopmental disorders. To that end, we:
Educate the public about these disabilities, and how they require special attention and services.
Provide a platform for think tanks and serious discourse addressing policy and services.
Educate policy makers about the impact of legislation and policy on our vulnerable, growing, and often overshadowed population.
Promote research into therapeutics, neurobiology, and causes of severe forms of autism and related disabilities.
Promote acceptance and awareness of individuals, families, and caregivers affected by severe forms of autism by giving voice to their realities and needs.
For more information, please see our FAQs and Position Statements.