Unite Genomics

08/05/2022

These are the words that first come to mind when we think about those living with . On the hard days, remember:
You are strong.
You are brave.
You are fierce.
You are courageous.

And that's how others see you, too.

Tag someone who needs to see this today.✨

08/02/2022

When Lisa Cross began living with in 2017, she thought her acting career was over.

However, she was recently cast as a leading character in the upcoming independent film, "New Life" about a woman who is diagnosed with ALS.

Hear how she auditioned, landed the role, and more about the film's release:

Lisa Cross stopped acting as her ALS got worse, but a chance to be in a film about a character with the disease brought her out of retirement.

07/29/2022

Those diagnosed with may be able to find life-affirming drugs and treatments that prolong life, minimize pain, and help them lead a more independent life.

The problem is that it can be difficult for patients to find trials they qualify for.

If you're having trouble navigating clinical trials that exist for you or a loved one, it's free to contact a Unite patient navigator to help.

Complete the form, and we'll be in touch: https://www.unitegenomics.com/clinical-trial-concierge

07/26/2022

Founding member of the Zac Brown Band, John Driskell Hopkins, recently shared his diagnosis of :

"Hop publicly shared his diagnosis in May 2022 and has since been building the Hop On a Cure nonprofit foundation dedicated to not only funding more research of the disease but also providing awareness and creating a community to support people living with ALS." -Yahoo News

Read about his journey, his early symptoms, and his plans for the future: https://news.yahoo.com/john-driskell-hopkins-talks-living-060039257.html?guccounter=1&guce_referrer=aHR0cHM6Ly93d3cuZ29vZ2xlLmNvbS8&guce_referrer_sig=AQAAADsSi7YBBw5OPoMsGSpcKdIxF2GEA7QJLIjEVGKD2eny-kPgqpPJ5SRjupCn_NNaVBluQ6gNLwgah2kFkMxSClP6sf_M8vaJPYdv9q4m0P0YX82DmU2plgvFCVq3EbZwgRPoEx3OUkfQUFtThUrA_KW0g53BPGVyKS-NmorU4e8S

07/24/2022

Do you feel that your ALS story could help researchers? It can!

At Unite, our goal is to help advance ALS research faster. Your health data exists in many different places, but it’s not connected in the ways that matter most to researchers.

By gathering anonymized data from ALS patients, researchers can be better informed, track patterns, analyze trends, and gain valuable health insights that may help them make better decisions when developing clinical trials (to ultimately find a cure)!

Register with our platform, and we'll show you how simple it can be to participate in advancing ALS research.

Every person and every story counts in the search for cures.

Join here:

Unite ALS Research Platform & Concierge ProgramUnite's Platform is an innovative new tool that can help you and others in the ALS community gain valuable health insights, track your contribution to hundreds of studies, and review clinical trials you qualify for privately and securely.Please complete...

07/21/2022

If yes, you may have questions regarding your loved one's (or your) diagnosis. Questions about why this happened, if it's genetic, and if there are treatments for your specific diagnosis...just to start.

Whatever the questions may be, we have experts available to help. Within the ALS Answers app, trained patients and medical professionals are available to answer questions (anonymously if preferred) about ALS.

You don't have to battle ALS alone. There are people available to help you, every step of the way.

Download the ALS Answers app in the Apple store today!

07/19/2022

ILB, an investigational therapy in the treatment of ALS, shows safety and efficacy in slowing disease progression in phase 2 clinical trials. Read more: https://alsnewstoday.com/news/experimental-als-treatment-ilb-shows-potential-slow-disease-trial/

07/15/2022

We all feel fear. We may be scared at times. Sometimes, the road ahead is really hard. Sometimes, the DAY ahead is really hard.

When you keep going, despite the fear - that is .

So don't let fear stop you. It's going to be there. It's OK that is it there. Yet, it's when we choose to move forward anyway - that's where real courage lives.

Here's to all of those showing up with courage today. We won't stop fighting until there is a cure for .

07/13/2022

Experimental therapy, TQS-168, from Tranquis Therapeutics granted "orphan drug" status. What does this mean? Learn how it could benefit patients here: https://alsnewstoday.com/news/als-therapy-developer-tranquis-wins-orphan-drug-status-tqs-168/

07/11/2022

patients interested in enrolling in trials face ample challenges trying to access them. If you qualify for a clinical trial, we want you to know about it. At Unite, we bridge that gap.

The Unite concierge program helps review clinical trial options you may qualify for. No more guessing. No more wondering. Just genuine help accessing potential life-affirming drugs and treatment.

Breakthroughs happen when we all come together. A Unite patient navigator is waiting to assist you:

07/10/2022

Mount Sinai researchers release study findings showing that the central nervous system AND immune system may be involved in amyotrophic lateral sclerosis (ALS). Here's what they discovered: https://www.sciencedaily.com/releases/2022/06/220622154935.htm

07/08/2022

Meet Phil! Phil was diagnosed with in August 2018. Since his diagnosis, Phil has made his life’s work improving the fight against this disease. He is active with many patient advocacy organizations and serves as a volunteer patient advisor to several companies working on ALS therapies and technologies, including Augie's Quest Leadership Council, Team Gleason Board of Directors, and the HEALEY Platform Trial: Patient Advisory Committee and Recruitment and Retention Committee, among many others!

Phil, we appreciate your dedication and commitment to advancing ALS research and treatment. Thank you for your contributions to the Unite board!