American Porphyria Foundation

American Porphyria Foundation Official page, American Porphyria Foundation. Formed in 1982 by Desiree Lyon. The American Porphyria Foundation has supported the Porphyria community since 1983.

Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias. The APF also serves as an advocate on your behalf to other public, private, and government agencies interested in funding research and educational programs. Our Scientific Advisory Board is made up of the world's foremost experts in Porphyria management, diagnosis, and research. They have written or approved the medical information our website

10/27/2025

Address

6605 33rd Street E, Ste C
Sarasota, FL
34243

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 6pm

Telephone

+18662733635

Website

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