Lupus, Fibromyalgia, Rhumatoid Arthritis &Auto Immune Disease Awareness

Lupus, Fibromyalgia, Rhumatoid Arthritis &Auto Immune Disease Awareness This pg is 2 gain awareness&connect ppl from everywhere for Lupus,Autoimmune Diseases,Dibilitating R

'Thank you' seems just not enough for all the sacrifices you have done for me. I Love You the most!  You are my pillar o...
05/12/2019

'Thank you' seems just not enough for all the sacrifices you have done for me. I Love You the most! You are my pillar of strength, conviction, and dedication. You truly deserve an award for all what you have done for me! It was your voice which has pulled me out of a dark tunnel and again filled me with hope and joy. It was your hands which have comforted me after a scary nightmare. You have always been by my side assuring me of your presence at all times.Your arms were always open when I needed a hug.
Your heart understood when I needed a friend.
Your gentle eyes were stern when I needed a lesson.
Your strength and love has guided me and gave me wings to fly. A very big thank you, mom, for your constant love and affection! You have given me the best life I could ever imagine. Your not just my mom. Your my best friend, my saving grace, my purpose in life, the person I admire and look up to the most in this world! Everyday you are all these things to me and you are loved and celebrated not just today but everyday. I love you too the moon and back

Most followers know &some may not yet, my severe SLE&Discoid Lupus has caused me to lose many organs including my entire...
04/16/2019

Most followers know &some may not yet, my severe SLE&Discoid Lupus has caused me to lose many organs including my entire pancreas.I was blessed enough to undergo a surgery that some had undergone before me but was 1 of the 1st successful islet cell transplants by the Cleveland Clinic& Pennsylvanias Allegheny Health Network over 10 years ago that did not require any insulin whatsoever following surgery until January of 2018 when unfortunately my transplant failed leaving me a type 1brittle diabetic,meaning I now produce 0 insulin& require atleast 5-6 short acting shots&1 long acting bedtime shot of Insulin daily.This equals 7 shots of insulin daily & atleast a minimum of 7 & up to 10 more pokes to test my sugar levels a day. That's 14 to 17 pokes a day, 98-119 a week,294-357 a month& 3,528-4,728 pokes a year.On top of this I battle not only Lupus but many other autoimmune diseases &more health complications that continue to attack my body that have no cures.I'm 39& grateful to have lived this far. I was lucky enough to be very active growing up, playing every sport available even dual,far from a girly girl& thought the worse thing health wise that I would battle was endometriosis diagnosis at age 12,a few laparoscopy surgeries every year to keep the endometriosis from overtaking my reproductive chances.losing my right o***y at 16 due to a dermoid cys that blew &21 a hysterectomy 6 months before my wedding. 2 1/2 yrs later the word Lupus forever changed my life.This is a picture of what a severe diabetics body looks like in 1 yr when the pokes r added up&a 2019 link of the procedure and at the exact place that mine was over 10yrs ago.Its now become more successful giving people more time before they are stuck living life insulin dependent.https://www.ahn.org/livingproof/islet-cell-innovations-offer-new-hope

Last year at this time i was in the ICU constantly. My body depleted so badly they couldn't believe i was alive. I was 8...
11/07/2018

Last year at this time i was in the ICU constantly. My body depleted so badly they couldn't believe i was alive. I was 87 lbs. Suffering paralyzing episodes, suffering my islet cell transplant to my liver failing leaving me a type 1 brittle diabetic with no pancreas,spleen, gull bladder, reproductive organs, almost half of my intestines and 5 differnt autoimmune disorders/ diseases (so far)along with tons of arthritis diagnosis also PIC Line, j and g tubes along with my forever power port! What a differece a year of research, advocating for myself, support from fellow warriors and family makes! I hope you all know how much i truly care for you all and send positive vibes your way daily. Would love to hear how you all are doing.

10/07/2018

✋✋✋❌❌❌❌PLEASE READ. 2ND PART OF AN IDEA I LIGHTLY TOUCHED ON EARLIER THIS SUMMER THAT GOT ALOT OF POSITIVE FEEDBACK,INTREST&PEOPLE READY TO TAKE PART.
❌❌❌❌❌❌❌ WELL THE TIME HAS COME! THIS POST IS THE MOST IMPORTANT POST IVE EVER MADE. WITHOUT YOU GUYS THIS WON'T BE POSSIBLE

Happy Saturday everyone. To those of you that dont know, im the one behind this page, the connected closed group and Lupusfighter79 on Instagram. I cant thank you enough to each and everyone who is part of this page. A few months ago i posted asking where everyone was from. It turned out to be one of the the coolest and eye opening post i have ever done with the amazing amount of replies and to see how blessed we are to have the ability to connect with people from so many walks of the world.
I also let you guys know that i was in the starts of a project to tell others stories and make it so i could have people from all over the world in it. I want it to be raw, deep real. I want real peoples stories told and most importantly HEARD. Alot of you showed interest in taking part in this. So this is were im at with the project and looking for people who want to take part from the very start of this. Im hoping when people see the intro and what we are going to be doing will feel the pull to take part in something that will put real faces, not celebrities and statics on the front lines of these diseases. See here we go!
I would love to get videos from others telling any part of there journeys that they feel has affected their lives, emotions, relationships. The way society and the massive lack of education, understanding, compassion, the body's and mental, physical and emotional struggles(for many of us it's ability to bring the lowest things into our life many times as a way to numb the isolation, the accusations of faking ect) and the good ways these diseases have made us better people.
Before i start pod casting with people who already showed intrest i want to compile videos from as many people as possible and if your unable to make a video with your phone send your story to me. This will be used as an intro. A way to showcase if you will, what this podcast will be about. REAL PEOPLE, REAL STORIES, FROM ALL OVER THE WORLD. As i get your videos and stories to build this i will show everyone exactly what parts of what they sent were used so they can make sure they agree with how they are shown. If you have any questions and most importantly want to do this to help get this podcast that you were all interested in earlier this summer please message my personal inbox on here (Samantha Klein) or email me at Slklein79@gmail.com. if you end up needing help making yours, once you message me ill gladly video chat with anyone at anytime to help you. This will help bring awareness to the upcoming Podcast that i hope thousands of you will take the time to be on. Not only will this bring awareness to these disease's but to the daily battles that people don't understand. It will being so many of us closer.
SO LETS DO THIS!

Does this hit home for anyone else?
09/27/2018

Does this hit home for anyone else?

Happy Monday all my Amazing Fellow Warriors!  I know the change of seasons can cause flare ups and other difficult probl...
09/10/2018

Happy Monday all my Amazing Fellow Warriors! I know the change of seasons can cause flare ups and other difficult problems both physically and emotionally. Remember, your not alone in this. I along with many of you feel alone but i get on here with all of you and it makes my heart feel so much better. Knowing that i have others who understand. Im so grateful for each and everyone of you. I hope we can be increasingly more supportive to everyone we meet on this journey. Together we can make ot through. Samantha Klein MartySamm Klein

08/31/2018
Its important to pay attention to your body and not ignore signs like these. We to often ashamed into not saying how we ...
08/31/2018

Its important to pay attention to your body and not ignore signs like these. We to often ashamed into not saying how we are feeling or fearful of being looked at as "weak" You are the only one who knows and feels what is happening and the one who has to suffer. Stay ahead and on top of flares as much as you can!

08/25/2018

I'm loving seeing all of the comments from people in response to my post asking where everyone is from. Thank you to those whom have taken the time to post. It's amazing and wonderful to have the ability to connect with people from all over. On the same note, it's sad to see how many people are being affected by this disease and others like it. By sharing our journeys, symptoms and treatment experiences, I pray that better treatment becomes available and a cure is found.

08/20/2018

Happy Monday! I want to thank everyone who has so far responded to my post asking where everyone is from. I'm doing research as to where lupus patients reside and the grade of medical services in those areas.
ON AN EXCITING NOTE! IM STARTING A VERY INFORMATIVE BLOG &PODCAST. HOW MANY OF YOU WOULD BE WILLING TO JOIN &SHARE YOUR JOURNEYS ON THE POD CASTS? the cook thing is I can have anyone of fron the comfort of there own homes all over the world! Let me know if you would be interested. Also any specific topics you would like covered please let me know so I can do in depth research. Together our voices can be heard!

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