Bleeding Disorder Foundation of Washington

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Shoreline, WA
Bleeding Disorder Foundation of Washington

The BDFW serves and educates the bleeding disorder community and advocates for access to care for those with rare diseases.

06/13/2025

The Bleeding Disorder Foundation of Washington is thrilled to welcome campers to another unforgettable summer of fun, friendship, and empowerment at Camp I-Vy 2025!

This year’s theme: Bleeding Disorder Superheroes — Campers will learn to harness their independence and confidence in managing their condition, all while having a blast!

When: July 28 – August 1, 2025
Who Can Attend: Kids ages 7–15 with a diagnosed bleeding disorder or who are carriers.
Counselors in Training (CITs): Youth ages 16–17 with a bleeding disorder/carrier status are encouraged to apply!

🔗 Camper Registration: https://forms.gle/ANV7PB2WzZXYE8ZaA
🔗 Volunteer/CIT Registration: https://forms.gle/67628pt2hVbCwf567

Learn more at https://bdfwa.squarespace.com/camp and register soon!

💬 Have questions? Reach out to the BDFW anytime at general@bdfwa.org!

05/12/2025

The BDFW is offering the opportunity for bleeding disorders patients to attend a Mariners baseball game on Sunday June 1st! Join us at 10:30am for booth time at the Northgate Library before heading to T-Mobile Park to cheer on the Mariners.

This event will be followed by a virtual education session on June 6th in partnership with WACBD's Dr. Kruse-Jarres, who will be speaking about new treatments available for Bleeding Disorders patients.

You won't want to miss out on this opportunity for community connection and education!

Learn more and register today: https://forms.gle/cAY6ZxvngLBtRNc16

10/02/2024

We have two fantastic opportunities for our Eastern WA community members to gather, learn and enjoy a meal together this month with Sanofi! These dinners are fun, interactive and open to all ages!

The dinner programs will take place in both Kennewick and Spokane and we hope to see you there. Register and learn more using the links below!

-This Friday, Oct. 4th, in Kennewick: https://forms.gle/wDeEYHE2uyg3jGpx5
-Thursday, Oct. 10th, in Spokane: https://forms.gle/fx2EzUww7RYKfwEz7

09/16/2024

This coming Sunday, Sept. 22nd, join the BDFW for our Fall Education Day at Woodland Park Zoo! Hear about upcoming treatments from Dr. Kruse-Jarres, enjoy a picnic lunch and explore the zoo with your family.

Learn more and RSVP by clicking this link: https://forms.gle/B94C3wcqm28eLYDL9

08/28/2024

We have TWO events coming up that we'd love to see you attend!

This Friday, join Genentech in Federal Way for a meal and education about Hemlibra. Learn more and RSVP for that event here: https://forms.gle/ewNme731bHqoYpUG6

On Sunday Sept. 22nd, join the BDFW for our Fall Education Day at Woodland Park Zoo! Hear about upcoming treatments from Dr. Kruse-Jarres, enjoy a picnic lunch and explore the zoo with your family. Learn more and RSVP here: https://forms.gle/FnYzBD4iNrpD5SGw5

08/20/2024

You and your family members are invited to join Genentech for an educational program and a meal with fellow patients on Friday August 30th! Come for a free meal and learn about Hemlibra, for people with hemophilia A with or without factor VIII inhibitors.

This is a special opportunity to gather with fellow patients for a delicious meal and deepen your understanding of available treatments. Bring your family and your questions!

Learn more and RSVP here: https://forms.gle/8GH5tNnCGaT3Y65w9

08/02/2024

Join the BDFW at Wild Waves next Saturday, Aug. 10th! Bring your family for a picnic lunch and have some fun in the sun at Wild Waves! Learn more about this community event and RSVP today: https://forms.gle/YtXc5Tw33VHfGuvo8

05/31/2024

We look forward to seeing you next weekend at our Everett Spring Education Day! If you haven't RSVP'd, it's not too late! Join us for education, booths and FREE AquaSox baseball tickets! Learn more and RSVP using this link: https://forms.gle/9YBcyGPtSks18mLU6

05/14/2024

Looking forward to some fun in the sun this weekend at our Tacoma Spring Education Day! Join us for community, education and FREE tickets to the Tacoma Rainiers game this Sunday, May 19th, starting at 10am.

Learn more about this community event and RSVP to get your baseball tickets today: https://forms.gle/5JSDmwjQvMQTSY4t7

05/10/2024

Don't have any weekend plans? It's not too late to RSVP for dinner with Novo Nordisk tomorrow at 6pm! Join us for a free meal and hear about Esperoct, an Extended Half Life FVIII product. Learn more about this free community event and RSVP here: https://forms.gle/v11CG77LYs6akWxr6

05/03/2024

You and your family members are invited to join Novo Nordisk for an educational program and a meal with community on Saturday May 11th! Join us and gain insightful information about Esperoct, an Extended Half Life FVIII product.

This is a wonderful opportunity to gather with fellow patients for a delicious free meal, enjoy community time and deepen your understanding of available treatments. Bring your family and your questions!

RSVP by clicking this link: https://forms.gle/uzS4dBZyxymMrNTZ9

Event Details:
Saturday May 11, 6pm
The Matador: 5410 Ballard Ave NW, Seattle, WA 98107

04/02/2024

Happy Spring from the BDFW! April is upon us, and it's shaping up to be an exciting few months of events! We're excited about some upcoming events that provide an opportunity to gather, offer valuable education, and of course, lots of fun! Make sure to mark your calendars for these events and join the BDFW in a way that works for you.

Learn more and RSVP: https://bdfwa.squarespace.com/upcoming-events

Address

20126 Ballinger Way NE #165
Shoreline, WA
98155

Telephone

+12065331660

Website

http://www.bdfwa.org/

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Our Story

The Bleeding Disorder Foundation of Washington serves and educates the bleeding disorder community and advocates for access to care for those with rare diseases.

We serve the 70,000 bleeding disorder patients in Washington State. We do this by empowering young families at I-Vy Jr. programs, encouraging kids to be independent at Camp I-Vy, launching teens into life through I-Vy Leaders, bolstering community through Blood Brothers, and advocating for access to medication and affordable care. By serving our community with these goals in mind, the BDFW believes that each bleeding disorder patient in Washington has the chance to thrive and live their best lives.

Our History

The Bleeding Disorder Foundation of Washington began in the 1970’s when parents gathered together at Camp I-Vy for their children. Over the years the Foundation changed its name and took on unimaginable challenges, resulting from tainted blood products in the 1980’s. The result was tremendous devastation for the bleeding disorder community. Almost 70% of the community contracted HIV and, sadly, over half of them passed away.