Sanford CoRDS

02/19/2026

9 days until Rare Disease Day!

02/19/2026

Tell us, what does Rare Disease Day mean to you? 💚🩷💜💙

02/18/2026

Just 10 days until Rare Disease Day!

02/11/2026

Join us to celebrate Rare Disease Day at the Falls Overlook Cafe on February 28th 6pm until 8pm! We will have hot chocolate and other sweet treats! 💙🩷💜💚

🌍 300 million people. One global community.

Rare diseases affect millions, yet research and funding is limited. Funding rare disease research is not only a moral imperative, it’s a smart, forward-looking investment. Discoveries in rare disease science often pave the way for treatments in cancer, neurology, and beyond, sparking progress across all of healthcare.

⚖️ Equality gives every disease the same level of funding.
💜 Equity for rare diseases means investing more where it’s needed most.

👉 Learn more about equity: https://go.rarediseaseday.org/equity

02/09/2026

What is a Rare Disease?

A rare disease is a disease, disorder, illness or condition that affects fewer than 200,000 Americans. There are over 10,000 rare diseases that together affect more than 30 million Americans.

https://rarediseases.org/understanding-rare-disease/rare-disease-facts-and-statistics/

01/22/2026

💜 Join us for Rare Disease Day!
Help us raise awareness and celebrate the strength of the rare disease community.

📅 February 28 | 6–8 PM
📍 Overlook Café at the Falls
🎟️ Free to attend

08/27/2025

🚨 We’re Hiring! 🚨

The CoRDS team is growing! We’re looking for passionate, detail-oriented professionals to help advance rare disease research.

Research Project Manager
🔗 https://bit.ly/4lyyuX9

Associate Research Project Manager
🔗 https://bit.ly/4oO4I3F

Join us and make a real difference.

05/13/2025

Kendra Gottsleben you are just the best and we are so honored to have you speak at our event and more importantly represent the rare disease community.

05/09/2025

Session 2 marked the close of the 15th Annual Great Plains Rare Disease Summit.

Presentations were given by:
🔹 Heather Flanagan-Steet, PhD – Associate Director of Research, Greenwood Genetic Center
🔹 Scott Hebbring, PhD – Senior Research Scientist, Sanford Health, Marshfield Clinic Region
🔹 Laura Lambert, PhD – Director, Functional Omics Resource, Mayo Clinic
🔹 Keith A. Hansen, MD – Reproductive Endocrinologist, Sanford Health, Obstetrics & Gynecology

Thank you to all the speakers, attendees, and organizers who made this year’s summit a success.

05/09/2025

The 15th Annual Great Plains Rare Disease Summit is off to a fantastic start! 🎉

Session 1 included presentations from:
🔹 Richard Steet, PhD – Director of Research, Greenwood Genetic Center
🔹 Kurt Warnhoff, PhD – Associate Scientist, Sanford Research
🔹 Kevin Francis, PhD – Associate Scientist, Sanford Research
🔹 Paul Orchard, MD – Professor, Department of Pediatrics, University of Minnesota
🔹 Hudson Freeze, PhD – Director, Children's Health Research Genetics Pediatrics, Sanford Burnham Prebys

Session 2 is up next—stay tuned!

05/06/2025

THE WEEK IS FINALLY HERE!

Join us for the 15th Annual Great Plains Rare Disease summit this week on Thursday and Friday, May 8-9!

Thursday, May 8th, will be tailored towards patients, families, and advocacy groups. There will be a social following our speakers.

Friday, May 9th, will focus on Inborn Errors of Metabolism Research.

To register for this event, please visit:
https://app.smartsheet.com/b/form/79e31a61f4b7460f8479d3c6a8d4a9b6