https://www.facebook.com/245737755293435/

LaLa Strong, South Bend, IN (2025)

12/08/2025

I had a dream.
I had plans.
I had images in my head of how life would be.

All that is gone now. It’s dark here in my corner again. It’s adjustment time. It’s acceptance time.

Adjusting to never having that dream again.
My plans are thrown out the window.
I can’t seem to even imagine what life will look like now.

Last week I made the hardest decision I’ve ever made due to my health. I decided that becoming a mom is not in my cards. My body has been through too much. But that’s not even what made me make my choice. I have a risk of passing my kidney disease on. I know I could not live with myself if I selfishly went through with my hopes and dreams and then my child ended up with this awful disease. I could not sit back and watch them suffer and go through all I’ve been through knowing it was because of me. When we found the cyst on my o***y, I knew I couldn’t keep putting this topic off. I’ll be meeting with the surgeon to figure out exactly how it’s all going to go down.

This one is hard. This one hurts. A lot. Because if you know me then you know becoming a mother to my own child has ALWAYS been my dream since I was young.

Kidney disease has taken so much from my life but at the same time kidney disease has given me a lot in life.

I’ve given all the information I have and know. Thank you all for your love prayers and encouragement. Please understand if I don’t respond, I still appreciate you and I see your comments and reactions! 💚

12/04/2025

Hello anxiety, we meet again.

Update later or tomorrow or whenever I feel like talking about things.

Love y’all. Your prayers and support will forever mean the world to me. Thank you! 💚❤️

11/23/2025

Was back in the ER tonight for the cyst. They did give me pain medicine this time but that didn’t touch it and they told me to follow up with my Dr to see if they can get me in sooner than the 18th. I haven’t slept in 3 nights.

11/13/2025

Yesterday was rough.
Was up all Tuesday night with my right original kidney hurting very badly snd no other symptoms. Went to urgent care yesterday morning and they sent me to the ER immediately. The ER discovered a kidney infection and a cyst on my right o***y the size of a lime. Sent me away with an antibiotic script and told me to call the dr about the cyst. Never even offered Tylenol for pain control. So we are on day two of being in pain and nothing I’ve tried has helped.

Just when I was thinking I was going to be ok for awhile…..yay something new to deal with 😵‍💫🥴

10/19/2025

No, literally.
Listen to your body whisper so you don’t have to hear it scream!

10/16/2025

Twelve years ago I walked into an office and they put a catheter in my stomach for dialysis and my physical abilities have been limited since.
Today I just walked out of an office for the last time and with no restrictions.
I don’t know how to feel currently. I’m happy and relieved to not be on dialysis and not have restrictions. I’m scared out of my mind that there’s no safety net.

*Pictures are mostly out of order. Wow this body of mine has been medically beat up.

10/03/2025

The Dr behind all (6) of my arm surgeries since I’ve been back here in IN. He came in the room to talk to me before surgery and the first thing he said was “Let’s close this chapter!” You have no idea how comforting it is when you know your drs genuinely care about you and know your case.

Surgery went well. He had to make 2 incisions and tie it off in two spots so I don’t get any clots in my arm.

Thank you for your prayers and encouragement!!

10/03/2025

When I took photos in May, I specifically did shots like these to show off my scars. Each one tells a story of when life tried to take me out but failed. I can tell you all about the pain and the awful experiences I’ve had but none of that matters because that’s not my story. My story is one of victory and rising above.

So today I close the book on this part of my life. I was diagnosed with CKD 19 years ago. At 14 I had NO idea what that meant. At 33 I can tell you, it means HELL. Today I’m getting my fistula taken out of my arm. For the first time since my diagnosis, there is no plan b. I will no longer have the safety net of dialysis or another transplant. It’s up solely to me to stay alive and healthy. While it doesnt take my CKD away, it’s a huge step in this journey.

Today is bittersweet.

10/01/2025

Nine years since 10/01/16. Why’s that date mean anything? It was when I got my first transplant.

Scared out of my mind 24 year old me walked into a cold hospital and checked in for “organ transplant surgery” after being on dialysis for two years at that point. Not knowing what that really meant in that moment or for the future. Now I know what that means from the biggest highlight of not being hooked to a machine to stay alive to the lowest point of that same exact organ trying to kill me from the inside out. Literally. How crazy is that?! The thing I waited for to keep me alive nearly killed me 5 1/2 years later.

So I won’t let today pass without thinking of my first donor and her family. The grief they experience this time of year and my gratitude to them for allowing their loved one to be a donor.

Don’t forget, say yes to “Do you wanna be a donor?” when they ask at the BMV. Save lives. Donate your spare. You can also be a living donor and donate while you’re still alive too.

09/14/2025

One year ago we had my poker ride and benefit!

Anne Willis Held
Eric Konieczny
Annette Traxler

09/11/2025

Update: they are scheduling a few weeks out so Im thinking the beginning of October! This will be the last surgery to close out this LONG journey.

Seeing the dr today about scheduling my fistula removal surgery!

09/04/2025

ETA: went to monthly labs indtead of biweekly, see him every 3 months instead of monthly, and get to get my fustula taken out!!!

One year post transplant appointment today. Here’s to hoping I can get him to agree to let me get my fistula out!

Also busted out the boots for the fall like weather we are having here in Indiana 😍

LaLa Strong

12/08/2025

12/04/2025

11/23/2025

11/13/2025

10/19/2025

10/16/2025

10/03/2025

10/03/2025

10/01/2025

09/14/2025

09/11/2025

09/04/2025

Address

Website

Alerts

Shortcuts

Share

Category