The B.E.S.T. Group (B.E. Support Team)

18/12/2025

This is a great resource.

YouTube channel for the Bladder Exstrophy app, We the BE. This is a Bladder Exstrophy app from OKC Kids Urology, a Bladder Exstrophy Center of Excellence.For...

05/12/2025

SAVE THE DATE
July 23-28, 2026
The B.E.S.T. Campout South Lake Tahoe www.besupportteam.org

19/11/2025

Introducing the Adult Exstrophy Provider Directory!

Adults with bladder exstrophy often struggle to find providers familiar with their condition.For , we’re helping change that.
The Adult Provider Directory makes it easier to connect with healthcare teams who understand exstrophy — no repeated explanations required.
Browse providers: https://www.bladderexstrophy.com/adult-provider-directory/

16/08/2025

Our 2025 B.E.S.T. Campout had remarkable attendance and featured outstanding speakers. The event was truly unforgettable, with many memorable moments created. Participants had a blast engaging in various activities both on land and in water. Moreover, numerous crafts were created, games played, and delicious meals savored. We look forward to welcoming those who missed this year's event next year. Save the dates: Thursday, July 23 - Tuesday, July 28, 2026.

29/06/2025

😎 LAST CALL to Register for the 2025 B.E.S.T. Campout!

If you haven’t signed up yet for the Bladder Exstrophy Support Team’s 26th annual Campout, now’s the time! You won’t want to miss this incredible family-friendly event filled with:

✨ Inspiring speakers (seriously, we have our best lineup ever!)
🍽️ Group dinners to relax and connect
🎉 Fun activities for all ages... and more

You can choose to stay at a nearby hotel or save by camping on-site — just note: campground reservations must be made directly with B.E.S.T.

👉 Register now: https://www.cognitoforms.com/best2/thebestcampoutlaketahoe2025
👀 Check out our speakers & topics: https://docs.google.com/document/d/1CYJ-Yve9MKp5ChZaVEFjRz_WkyvzBJwbWEcLkePSGys/edit?usp=sharing

Have questions? We're here to help!
You can also find all the details on our website: 🌐 www.besupportteam.org

We can’t wait to see you there! 💙

MEET OUR B.E.S.T. Campout 2025 SPEAKERS In alphabetical order Dr. Patrick Cartwright - MD, is a pediatric urologist and surgeon-in-chief at Primary Children’s Hospital and the University of Utah. He has known and cared for many families and their children/teens with exstrophy and he has spec...

17/06/2025

Our B.E.S.T. Campout is ONLY 5 WEEKS AWAY! If you are planning to attend and haven’t registered, please do so asap. Also, if you are considering attending or are on the fence, please contact us. We need a final head count and would like to know how many “maybes” we still have out there. Hope to hear from you! Please let us know if you have any questions.

Reminder: Our campout is for the entire family. And yes, we do provide crafts for the children while the speakers are speaking. We also have organized group dinner potlucks and fun activities.

Registration Link: https://www.cognitoforms.com/best2/thebestcampoutlaketahoe2025

Website Link (for campout information): www.besupportteam.org

Link to view our Speakers & their Topics: https://docs.google.com/document/d/1CYJ-Yve9MKp5ChZaVEFjRz_WkyvzBJwbWEcLkePSGys/edit?usp=sharing

17/06/2025

Our B.E.S.T. Campout is ONLY 5 WEEKS AWAY! If you are planning to attend and haven't registered, please do so asap. Also, if you are considering attending or are on the fence, please contact us. We need a final head count and would like to know how many "maybes" we still have out there. :) Hope to hear from you! Please let me know if you have any questions.

Reminder: Our campout is for the entire family. And yes, we do provide crafts for the children while the speakers are speaking. We also have organized group dinner potlucks and fun activities.

Registration Link: https://www.cognitoforms.com/best2/thebestcampoutlaketahoe2025

Website Link (for campout information): www.besupportteam.org

Link to view our Speakers & their Topics: https://docs.google.com/document/d/1CYJ-Yve9MKp5ChZaVEFjRz_WkyvzBJwbWEcLkePSGys/edit?usp=sharing

05/06/2025

REMINDER - YOU ARE ALL INVITED! Please come join us at Lake Tahoe next month to listen to an incredible lineup of amazing speakers! You will have the opportunity to speak with them individually. This is a rare opportunity. Scan the QR code with your phone. It will take you to our website www.besupportteam.org, where you will find all the information you need about our campout. Also included, will be a link with more details on our speakers and a link to register for the campout. This event is for the entire family. Please contact me if you have any questions. We look forward to meeting you and having you join our B.E.S.T. (Bladder Exstrophy Support Team) family! ❤️

21/05/2025

I am so pleased to share the speaker line-up for our upcoming 2025 B.E.S.T. Campout this July 24 - 29, 2025. You are ALL invited to attend!

We are very privileged to have these doctors willing to travel to our campout at Lake Tahoe. I hope you will decide to register and join us in July, to support and take advantage of listening to these experienced professionals, who are sacrificing their time to educate our B.E.S.T. (Bladder Exstrophy Support Team).

CLICK HERE to View our 2025 B.E.S.T. Campout Speakers & Topics: https://docs.google.com/document/d/1CYJ-Yve9MKp5ChZaVEFjRz_WkyvzBJwbWEcLkePSGys/edit?usp=sharing

Please REGISTER as soon as possible to secure your RV or Tent Camping space, or to let us know you will be staying in a Hotel or other accommodation. EVERYONE attending, no matter in what capacity or accommodation, MUST to fill out a registration form.

We need a headcount as soon as possible to plan for our activities, speakers and evening meals. So, if you could please fill out the form at your earliest convenience, we would really appreciate it. Please also list everyone visiting the campout as a campout attendee. *This is very important for our records.

CLICK HERE for the 2025 B.E.S.T. Campout Registration Form: https://www.cognitoforms.com/BEST2/TheBESTCampoutLakeTahoe2025

Main Details:

What: The B.E.S.T. Campout in 2025 will be held over 5 Nights!
When: THURSDAY, July 24th - TUESDAY, July 29th
Where: South Lake Tahoe at Tahoe Valley Campground
(Do not call the campground to book your site(s). You need to book directly with B.E.S.T.)
Cost: Pricing is listed on the registration form.
*This year we are receiving another great discount from the campground!
Who: Anyone with Exstrophy or Related Conditions is Invited to Attend, along with their families. (Childcare is not provided)

I hope you will be able to join us for the full five nights. At minimum, you won't want to miss Friday - Sunday evening.

INVITE YOUR FRIENDS WITH EXSTROPHY OR SIMILAR CONDITIONS!

To learn even more information about the campout and all that B.E.S.T. has to offer, check out our website at www.besupportteam.org.

Check us out on social media!
Website: https://www.besupportteam.org/
Facebook: https://www.facebook.com/TheB.E.SupportTeam
Instagram: .e.supportteam

MEET OUR B.E.S.T. Campout 2025 SPEAKERS In alphabetical order Dr. Patrick Cartwright - MD, is a pediatric urologist and surgeon-in-chief at Primary Children’s Hospital and the University of Utah. He has known and cared for many families and their children/teens with exstrophy and he has spec...

29/03/2025

Do you or a close loved one have Bladder Exstrophy? We have the perfect event for you! Come connect with us this summer! All with Bladder Exstrophy and related Conditions and their loved ones are welcome to join us!