The B.E.S.T. Group (B.E. Support Team)

04/24/2026

Do you or a close loved one have bladder exstrophy or a related condition? We have the perfect event for you! Come connect with us this summer! All with bladder exstrophy and related conditions and their loved ones are welcome to join us!

This is a friendly reminder to sign up for the 2026 B.E.S.T. Campout if you haven’t already. Use the link in our bio to register today!

04/24/2026

Do you or a close loved one have Bladder Exstrophy or a Related Condition? We have the perfect event for you! Come connect with us this summer! All with Bladder Exstrophy and Related Conditions and their loved ones are welcome to join us!

This is a friendly reminder to sign up for the 2026 B.E.S.T. Campout if you haven’t already. It is very important for our planning that we receive an accurate headcount as soon as possible.

Please remember that everyone attending must register—this includes anyone joining us for speakers, activities, or even just coming up for the day, whether you’re camping, staying in a hotel, or visiting briefly.

RV spots are filling up quickly! (Note: Tent trailers are considered RVs at this campground.) Tent Camping is also available, as well as booking yourself a hotel, or renting an RV to be set up at the campground.

If you have any questions, feel free to reach out—I’m happy to help!

Main Details

What: B.E.S.T. Campout 2026 (5 nights!)
When: Thursday, July 23 – Tuesday, July 28
Where: Tahoe Valley Campground, South Lake Tahoe
(Please do not contact the campground directly—sites must be booked through B.E.S.T.)
Cost: Pricing is listed on the registration form
We’ve received another great discount this year!
Who: Anyone with Exstrophy or related conditions, along with their families (Childcare is not provided.)

We hope you can join us for all five nights, but at minimum, you won’t want to miss Friday through Sunday evening.

We’re working to finalize our headcount, so please complete the registration form as soon as possible.

Everyone attending must fill out a form (whether you're staying at the campground or not)—this is essential for our records.

CLICK HERE for the 2026 B.E.S.T. Campout Registration Form
https://www.cognitoforms.com/BEST2/TheBESTCampoutRegistrationFormLakeTahoe2026

Why attend this year?

Beautiful Lake Tahoe setting
A fun, welcoming environment
Inspiring guest speakers
A supportive and uplifting community
Activities for all ages
Crafts for kids
Organized dinners each night
Campfires, s’mores, and games
Opportunities to connect and build lasting friendships

What more could you want?

Please don’t hesitate to reach out with any questions or concerns—and don’t forget to complete your registration soon!

Thanks so much—we’re looking forward to another amazing campout!

Rebecca Hunter
B.E.S.T. Campout Coordinator
Vice President, B.E.S.T. Board

Check us out on social media!

Website: [https://www.besupportteam.org/]
Facebook: [https://www.facebook.com/TheB.E.SupportTeam]
Instagram: .e.supportteam
Email: info@besupportteam.org

03/20/2026

⏰🐦Early bird registration is now open for the Annual Exstrophy Conference! Register before April 26th for discounted rates.

Individual: $55 ($65 after 4/26/26)
Families: $85 ($95 after 4/6/26)

Proudly hosted in partnership with Children's Hospital Los Angeles
SIGN UP NOW - https://www.bladderexstrophy.com/annual-conference/

03/18/2026

I hope you will all be able to join us this year for our annual Bladder Exstrophy Support Team group campout at Lake Tahoe. It’s not just for the west coast and we invite those with similar conditions. We have families join us from all over the country and from around the world. Let me know if you have any questions. ~Rebecca

What: It's time to REGISTER for the B.E.S.T. Campout in 2026!
When: THURSDAY, July 23rd - TUESDAY, July 28th
Where: South Lake Tahoe at Tahoe Valley Campground (Do not call the campground to book your site(s). You need to book directly with B.E.S.T.)
Cost: Pricing is listed on the registration form. This year we are receiving another great discount from the campground!
*Payments are accepted via credit card only.
Who: Anyone with Exstrophy or Related Conditions is Invited to Attend, along with their families. *Childcare is not provided.

CLICK HERE for the 2026 B.E.S.T. Campout Registration Form: https://www.cognitoforms.com/BEST2/TheBESTCampoutRegistrationFormLakeTahoe2026

We would like a headcount of attendees as soon as possible. So, if you could please fill out the form as your earliest convenience, we would really appreciate it.

EVERYONE attending, no matter in what capacity, needs to fill out a registration form. Please also list everyone visiting the campout as a campout attendee. *This is very important for our records.

Why should you attend the campout this year?
It's at Lake Tahoe 🌲
You will have a ton of fun!
We have excellent speakers join us every year
You will enjoy all the kindness and love you could ever want in a support group
It's beautiful!
Activities for the entire family
Crafts for the young ones
Organized Dinners every night
S'mores by the campfire
Games
Networking
Support ❤️

What more could you want?

Here is a link to our event: https://www.facebook.com/events/2688881504819814/

Please also let me know if you would like to be added to our B.E.S.T. (Bladder Exstrophy Support Team) email distribution list.
Feel free to reach out to me with any questions or concerns.
Rebecca Hunter
B.E.S.T. Campout Coordinator
Vice President, B.E.S.T. Board

Check us out on Social Media!
Website: www.https://www.besupportteam.org/
Facebook: https://www.facebook.com/TheB.E.SupportTeam
Instagram: .e.supportteam
Email: info@besupportteam.org

12/18/2025

This is a great resource.

YouTube channel for the Bladder Exstrophy app, We the BE. This is a Bladder Exstrophy app from OKC Kids Urology, a Bladder Exstrophy Center of Excellence.For...

12/05/2025

SAVE THE DATE
July 23-28, 2026
The B.E.S.T. Campout South Lake Tahoe www.besupportteam.org

11/19/2025

Introducing the Adult Exstrophy Provider Directory!

Adults with bladder exstrophy often struggle to find providers familiar with their condition.For , we’re helping change that.
The Adult Provider Directory makes it easier to connect with healthcare teams who understand exstrophy — no repeated explanations required.
Browse providers: https://www.bladderexstrophy.com/adult-provider-directory/

08/16/2025

Our 2025 B.E.S.T. Campout had remarkable attendance and featured outstanding speakers. The event was truly unforgettable, with many memorable moments created. Participants had a blast engaging in various activities both on land and in water. Moreover, numerous crafts were created, games played, and delicious meals savored. We look forward to welcoming those who missed this year's event next year. Save the dates: Thursday, July 23 - Tuesday, July 28, 2026.

06/29/2025

😎 LAST CALL to Register for the 2025 B.E.S.T. Campout!

If you haven’t signed up yet for the Bladder Exstrophy Support Team’s 26th annual Campout, now’s the time! You won’t want to miss this incredible family-friendly event filled with:

✨ Inspiring speakers (seriously, we have our best lineup ever!)
🍽️ Group dinners to relax and connect
🎉 Fun activities for all ages... and more

You can choose to stay at a nearby hotel or save by camping on-site — just note: campground reservations must be made directly with B.E.S.T.

👉 Register now: https://www.cognitoforms.com/best2/thebestcampoutlaketahoe2025
👀 Check out our speakers & topics: https://docs.google.com/document/d/1CYJ-Yve9MKp5ChZaVEFjRz_WkyvzBJwbWEcLkePSGys/edit?usp=sharing

Have questions? We're here to help!
You can also find all the details on our website: 🌐 www.besupportteam.org

We can’t wait to see you there! 💙

MEET OUR B.E.S.T. Campout 2025 SPEAKERS In alphabetical order Dr. Patrick Cartwright - MD, is a pediatric urologist and surgeon-in-chief at Primary Children’s Hospital and the University of Utah. He has known and cared for many families and their children/teens with exstrophy and he has spec...

06/17/2025

Our B.E.S.T. Campout is ONLY 5 WEEKS AWAY! If you are planning to attend and haven’t registered, please do so asap. Also, if you are considering attending or are on the fence, please contact us. We need a final head count and would like to know how many “maybes” we still have out there. Hope to hear from you! Please let us know if you have any questions.

Reminder: Our campout is for the entire family. And yes, we do provide crafts for the children while the speakers are speaking. We also have organized group dinner potlucks and fun activities.

Registration Link: https://www.cognitoforms.com/best2/thebestcampoutlaketahoe2025

Website Link (for campout information): www.besupportteam.org

Link to view our Speakers & their Topics: https://docs.google.com/document/d/1CYJ-Yve9MKp5ChZaVEFjRz_WkyvzBJwbWEcLkePSGys/edit?usp=sharing

06/17/2025

Our B.E.S.T. Campout is ONLY 5 WEEKS AWAY! If you are planning to attend and haven't registered, please do so asap. Also, if you are considering attending or are on the fence, please contact us. We need a final head count and would like to know how many "maybes" we still have out there. :) Hope to hear from you! Please let me know if you have any questions.

Reminder: Our campout is for the entire family. And yes, we do provide crafts for the children while the speakers are speaking. We also have organized group dinner potlucks and fun activities.

Registration Link: https://www.cognitoforms.com/best2/thebestcampoutlaketahoe2025

Website Link (for campout information): www.besupportteam.org

Link to view our Speakers & their Topics: https://docs.google.com/document/d/1CYJ-Yve9MKp5ChZaVEFjRz_WkyvzBJwbWEcLkePSGys/edit?usp=sharing

06/05/2025

REMINDER - YOU ARE ALL INVITED! Please come join us at Lake Tahoe next month to listen to an incredible lineup of amazing speakers! You will have the opportunity to speak with them individually. This is a rare opportunity. Scan the QR code with your phone. It will take you to our website www.besupportteam.org, where you will find all the information you need about our campout. Also included, will be a link with more details on our speakers and a link to register for the campout. This event is for the entire family. Please contact me if you have any questions. We look forward to meeting you and having you join our B.E.S.T. (Bladder Exstrophy Support Team) family! ❤️