HDSA Center of Excellence at Washington University

12/02/2025

Missouri is searching for a 2026 St. Louis Walk Coordinator. We are looking for someone with fundraising experience and a desire to help make a difference. For more information reach out to Kim Landewee, 573-986-8777 or Peggy Cribbin, 314-537-1539.

12/02/2025

Help 4 HD International is again offering it's holiday help food program. Apply here!

12/01/2025

Reminder to Medicare beneficiaries: You have until December 7 to re-evaluate your Part D (prescription) coverage for 2026. Even if you were happy with your 2025 plan, the prescriptions covered and insurance costs often change (sometimes a lot) from year to year. I HIGHLY recommend that you re-evaluate your Part D coverage EVERY year using the Medicare plan finder tool. It is pretty straightforward to use, but if you need help, contact your HD social worker, or other resource! https://www.medicare.gov/plan-compare/

12/01/2025

https://www.psychologytoday.com/us/blog/living-with-huntingtons-disease/202511/gratitude-and-huntingtons-disease/amp

Personal Perspective: This Thanksgiving, the Huntington's Disease community has reason to celebrate.

12/01/2025

End the year with fellowship and support by attending the final support groups of 2025!

Send a message to learn more

12/01/2025

End the year with fellowship and support by attending the final support groups of 2025! St. Louis's group ends each year with a pot luck. Details from support group leader Alyssa: Each December, we do a potluck style group. In my opinion, there is almost nothing better than feeding ourselves and feeding others. If you are able, please bring a dish to the support group. Absolutely NOT A BIG DEAL if you are not able; we always have a TON of food. I will bring plates, utensils, and to-go containers for everyone to take food home. If you are able to bring food, I do ask that you try to bring an ingredients list in case there are any concerns about food allergies from one of the attendees.

I cannot wait to see everyone and fill our bellies! Hope you all taking care of yourselves!

Send a message to learn more

11/17/2025

https://huntingtonsdiseasenews.com/columns/dont-overlook-importance-care-caregiving/?mc_euid=f48c95a1df&utm_source=HUN&utm_campaign=458fa1389e-Email_ENL_US_HUN&utm_medium=email&utm_term=0_f42d6c3322-458fa1389e-73211485

For National Family Caregivers Month, columnist Carlos Briceño pays tribute to the folks who choose love over despair every day.

11/15/2025

In an effort to provide additional support, HDSA will be hosting another session this Tuesday, November 18th, at 6 PM EST. The session is open to anyone under the age of 35 years old who wants to ask additional questions and/or discuss the most recent news from uniQure and the FDA.

This session will be facilitated by MaryAnn Emerick, LMSW and Katie Dykman, LISW.

To join us, please visit: https://www.heypeers.com/meetings/47329/details

If you are not able to make this session, check out additional support group opportunities: https://hdsa.org/find-help/community-social-support/hdsa-support-groups/

11/11/2025

https://huntingtonsdiseasenews.com/columns/cuts-research-steal-time-we-cant-buy-back-huntingtons-disease/?mc_euid=f48c95a1df&utm_source=HUN&utm_campaign=319912ee17-Email_ENL_US_HUN&utm_medium=email&utm_term=0_f42d6c3322-319912ee17-73211485

Columnist Carlos Briceño argues for the importance of funding for studies into Huntington's disease in the face of cuts to medical research.

11/04/2025