HDSA Center of Excellence at Washington University

02/11/2026

Upcoming education and support opportunities for HD families! Register now!

3/4/2026 Deadline for Scholarship application for HDSA Annual Convention: HDSA’s 41st Annual Convention Scholarship info: (All applications due by Wed. March 4, 2026):https://hdsa.org/wp-content/uploads/2026/02/scholarship-document-for-website-2.pdf

3/14/2026 Missouri Education Day https://hdsa.org/events/2026-education-day-missouri/

3/15/2026 Deadline for registration for HDYO North American Camp (for young people age 16-25, held Aug 10-14, 2026 at Camp St. Charles, Maryland) https://www.hdyo.org/a/881-hdyo-camp

6/24-6/28/2026 HDSA Annual Convention Registration now open (with early bird rates): https://hdsa.org/about-hdsa/annual-convention/

02/09/2026

https://en.hdbuzz.net/a-hitch-in-the-stitch-reveals-why-dna-sequence-patterns-matter-in-huntingtons-disease/

Two individuals with the same CAG repeat count can have vastly different HD journeys. A new study looking at individuals with 36-42 repeats shows that DNA sequence patterns play a major role in symptom onset and progression.

02/05/2026

MISSOURI CHAPTER UPDATES

Be on the look out for these upcoming planned Missouri Chapter Events that will take place this year!

More details coming soon! Keep an eye out for registration at https://missouri.hdsa.org/

• Missouri Chapter Education Day - March 14, 2026
• Team Hope Walk Southeast Missouri - April 11, 2026
• Huntington's Hope In Every Note - April 26, 2026
• Missouri Chapter Trivia Night - July 18, 2026
• Team Hope Walk St. Louis - September 19, 2026
• Missouri Hounds for HD - October 2026
• Celebration of Hope Missouri Chapter - November 7, 2026

Explore the Voice of the Patient Report to hear directly from people and families living with Huntington’s disease — their stories, struggles, and hopes that will help shape the future of care and advocacy.

02/02/2026

For the young people (ages 16-25) in your life, this camp presented by HDYO (Huntington's Disease Youth Organisation) is an amazing opportunity! Applications close soon!

02/01/2026

with Will Forte and Drew Barrymore

Check out this great clip from The Drew Barrymore Show Actor and comedian Will Forte details his families journey with HD, and partnering with Honestly HD to share their Story of Hope.

To watch the full interview, you can click: https://youtu.be/7BWWM5jjzjs?si=cJTXdhiSfAkk0xWI

And head to HonestlyHD.com, for information, inspiration and tools to help with HD, including chorea, one of the most visible and treatable symptoms of HD.

Like, comment and share to raise awareness for HD!

01/27/2026

Thanks KSHE 95 - Real Rock Radio for featuring American folk legend and Huntington's disease hero Woody Guthrie:

01/27/2026

A beautiful lesson for us all.

Finding middle ground between despair and hope taught columnist Carlos Briceño about healing from life challenges.