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Monday 8am - 5am Tuesday 8am - 5pm Wednesday 8am - 5pm Thursday 8am - 5pm Friday 8am - 5pm

The Mast Cell Disease Society, Inc.

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Sterling, MA
The Mast Cell Disease Society, Inc.

If you are having any medical emergency such as anaphylaxis, chest pain, difficulty breathing, severe abdominal pain, you must call 911.

We are dedicated to providing multi-faceted support to patients, families and medical professionals in our community and to leading the advancement of knowledge and research in mast cell diseases through education, advocacy and collaboration. The Mast Cell Disease Society, Inc (TMS) volunteers are not doctors and not on call 24/7. TMS is not liable for emergency posts on this FB page. The Mast Cell Disease Society, Inc. is a nonprofit organization dedicated to supporting patients affected by Mast Cell Disorders as well as their families, caregivers, and physicians through research, education, and advocacy. We are here on this forum to support you and give you a safe place to find information and communicate with others in similar situations. We are not liable for any posting from our membership. TMS does not accept responsibility for content of any external links posted on this FB page. We are unable to monitor the content of third-party websites.

03/24/2026

The Mast Cell Disease Society is partnering with Project ECHO to support healthcare professionals through the Mast Cell Disease TeleECHO program. This series provides case based learning and expert guidance to strengthen the evaluation and treatment of mast cell diseases. Continuing education credit is available for physicians and other members of the healthcare team.

Learn more: https://buff.ly/cxfAllk

03/22/2026

TMS support groups provide a welcoming space for patients and caregivers to connect and feel understood. View the full schedule and join a group here: https://buff.ly/iPS3BQo

03/20/2026

Finding the right physician can be an important step when navigating mast cell diseases. The TMS Find a Physician resource helps patients and caregivers explore clinicians connected to mast cell disease care, including Centers of Excellence, TeleECHO alumni, clinical trial sites, and mast cell condition expertise.

You can filter results by condition, expertise, or location to help guide your search.

Learn more:
https://buff.ly/CaZonoL

03/18/2026

📢 Research Update
We’re glad to share an encouraging step forward for the mast cell disease community.
The U.S. Food and Drug Administration (FDA) has accepted the New Drug Application for bezuclastinib, a potential treatment for people living with non-advanced systemic mastocytosis.

Read the Press Release: https://buff.ly/CHzjsAF
Read the SM Community Letter: https://buff.ly/0q940Ig

This is an important step in the review process. Bezuclastinib is not yet approved, but this progress reflects continued momentum in research and drug development for our community.

We will keep you updated as we learn more.

03/16/2026

A look back at our ISM Patient and Family Seminar in Mountain View, CA. In partnership with Medscape Education and the American Initiative on Mast Cell Diseases, this event brought patients and families together for education and connection.

Watch the full recording in our webinar library at tmsforacure.org

03/11/2026

Some webinars in our library are available for purchase and help support our work.

Explore the library here: https://buff.ly/UQ4Go42

Share in the comments what webinar topics you would like to see next!

03/10/2026

Growing our team helps us continue expanding patient education and community support. We’re grateful for the people who contribute their time and expertise to help strengthen the work of TMS.

Please join us in welcoming Robin in the comments.

03/09/2026

Join Cogent Biosciences and TMS on March 18th at 6:30 PM EST for Finding Your Rhythm: Managing Life with Systemic Mastocytosis. A virtual webinar offering practical approaches to help with the day-to-day unpredictability of systemic mastocytosis and supporting daily life in ways that feel realistic and manageable. Register here: https://buff.ly/zD6MDEV

03/05/2026

Thank you to everyone who participated in our February community poll. Your feedback helps guide the education, advocacy, and support we prioritize throughout the year. If you are not already receiving our newsletter and community updates, you can sign up here:
https://buff.ly/XdgtFtP

Address

PO Box 416
Sterling, MA

Opening Hours

Monday	8am - 5am
Tuesday	8am - 5pm
Wednesday	8am - 5pm
Thursday	8am - 5pm
Friday	8am - 5pm

Website

https://tmsforacure.org/

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