The Mast Cell Disease Society, Inc.

05/03/2026

TMS support groups create a space where patients and caregivers can connect.
Whether you’re newly diagnosed or have been on this journey, there’s a community here for you.

View the full schedule and find a group that fits you: https://buff.ly/iPS3BQo

05/01/2026

Become a mentor today!

Apply now to be a part of the RDLA Advocacy Mentorship Program. Advocates with any level of experience can apply. The program is a year-round support system for advocates seeking more 1:1 assistance in their advocacy development and allows experienced advocates to hone their leadership skills.

Apply here: https://hubs.ly/Q04f7C-X0

05/01/2026

05/01/2026

This May, we’re recognizing Ehlers-Danlos Syndrome (EDS) Awareness Month and want to acknowledge members of our community also affected by EDS.

There is often overlap between EDS and mast cell conditions, and raising awareness can help improve understanding and support.

This video is shared from our friends at Ehlers-Danlos Society.

We encourage you to explore their page for additional resources and information: https://buff.ly/Hg2rZTS

04/30/2026

by: Genentech

Tune in to FAACT's Roundtable Podcast on FAACT's 'Invisible No More' Theme for Food Allergy Awareness Month

Food Allergy Awareness Month is almost here—and it’s our moment to be seen, heard, and understood. This year, FAACT is launching an exciting new campaign, 'Invisible No More', shining a light on the reality that food allergies may be unseen, but they are very real. We’re sitting down with FAACT’s Director of Marketing, Lisa Horne, to share how you can get involved and help bring this message to life in your community.

Listen to 's Ep. 279:
https://www.buzzsprout.com/848314/episodes/18966390-ep-279-faact-s-invisible-no-more-theme-for-food-allergy-awareness-month

04/30/2026

Registration Open Now!

Registration for virtual Youth and Teen Advocacy Day is now open. RDLA invites members of the rare disease community between 10 and 18 years old with a connection to rare diseases to participate in this amazing opportunity. Advocates will meet virtually with their Members of Congress and share their rare disease story.

Prior to these meetings, participants will attend virtual trainings on how Congress creates laws, how to use their voice and share their story with legislators, and how to understand key issues affecting the rare disease community, designed for youth and teens.

Registration closes on Friday, May 22. Register now using the following link: https://hubs.li/Q04dP3kg0

04/30/2026

May is Asthma & Allergy Awareness Month! Join us in raising awareness for , , and related conditions all month long. Visit AllergyAsthmaNetwork.org for educational resources and more!

15 ways to recognize and celebrate and all month long with us: https://allergyasthmanetwork.org/news/ways-to-support-asthma-and-allergy-awareness-month/


Thank you to Amgen, AstraZeneca, Sanofi, and Regeneron for your support in raising awareness and recognizing Asthma & Allergy Awareness Month.

04/29/2026

We’re breaking down the latest mast cell research from AAAAI 2026.

Join The Mast Cell Disease Society (TMS) for an upcoming webinar with Shonna Snyder, PhD, focused on key research presented at the AAAAI 2026 meeting.

This session will provide an overview of important findings and their relevance to patients, caregivers, and clinicians.

Register here: https://buff.ly/yDFxZJB

04/28/2026

You’re invited to Together in Strength: Community Conversations on Living with Systemic Mastocytosis, an in-person event that brings together patients, advocates, and experts.

This session offers an opportunity to connect and engage in meaningful discussion within the mast cell disease community.

Tuesday, May 12, 2026
Knife Steakhouse, Plano, Texas

Register here:
buff.ly/ijFcCXZ

04/28/2026

Delayed or missing epinephrine is common in fatal pediatric anaphylaxis, with cardiac arrest often occurring within minutes.

04/27/2026

This spring, your purchase can help support those living with mast cell disease.

Through our Flower Power fundraiser, 50% of every purchase goes directly toward patient education and community support. Orders are shipped straight to you, offering a simple way to give back.

The fundraiser runs through May 15. Shop here: https://buff.ly/bE9b3Ii

04/25/2026

We’re hiring: Development Director

The Mast Cell Disease Society is seeking a Development Director to lead fundraising efforts and strengthen donor relationships in support of our patient community. This role focuses on growing sustainable support while building meaningful connections with those impacted by mast cell disease.

If this sounds like a fit, we encourage you to learn more.

Explore the role and apply: https://buff.ly/QQGiqC8