Perfectly Imperfect: Navigating Life as a Special Needs Mother

Perfectly Imperfect: Navigating Life as a Special Needs Mother Navigating Life as a Special Needs Mother but to also listen to the voices of other advocates.

10/16/2025

Hi all !
As you know our federal employees haven’t been paid which means my kid’s therapist’s & teachers haven’t been paid !

If anyone would love to contribute any funds to get them a coffee & meal.. That would be wonderful.

Alaiya J - 2 therapists ( 40$)
Jayse - 2 teachers , 2 aides , 2 therapists ( 120$ )
Josiah J - 2 teachers , 2 therapists & 2 teachers from last year ( 120$ )

= 280$

My cash app is $KenziCabrera , Venmo is -Cabrera2 , Apple Pay is my # !

Thank y’all in advance!

https://gofund.me/bbd276e03Thank you ❤️
09/19/2025

https://gofund.me/bbd276e03

Thank you ❤️

Hi! My mother was diagnosed with lymphoma in her intestinal … Makenzie Cabrera needs your support for Help my family fight this upcoming battle, thank you.

The official tally is up from our Josiah Strong - Autoinflammatory Awareness Bamboo Pajamas collaboration with Whimsy & ...
08/02/2025

The official tally is up from our Josiah Strong - Autoinflammatory Awareness Bamboo Pajamas collaboration with Whimsy & Co Bamboo 🐻

We are so happy to say we raised 200$ to give back! I plan to donate this money to one non profit that is near & dear to our heart, Children's Miracle Network Hospitals at Monroe Carell Jr. Children's Hospital 🤍

Josiah has been a CMN child since before his FCAS diagnosis and without them, im not sure how we would’ve gotten through the ICU stays, the long travels to doctors, even gotten his medical wagon through CMN. We are very new to Vandy’s CMN but we are so excited to splash into this pond.

Thank you to everyone who bought the pajamas, I cant wait to see pictures! ✨🤠

How fitting is it that Autoinflammatory Awareness month is coming up and we got the go ahead that the Josiah Strong BAMB...
07/23/2025

How fitting is it that Autoinflammatory Awareness month is coming up and we got the go ahead that the Josiah Strong BAMBOO custom pajamas are UP & RUNNING!

Ive worked my butt off to find a bamboo person to bring my vision to life, and here we are.

Thank you, Whimsy Wave Seamless • Whimsy Wave Seamless VIP for this.



To Order:
https://www.facebook.com/share/g/16aaSu6seR/?mibextid=wwXIfr

07/18/2025

Having a son who has a incurable disease and needs to take daily injections to give a healthy life - we are always looking for ways to keep him calm and we are so thankful for . Worry Pals sent Josiah little worry dolls to hold onto for his injection but also a Worry Pal book to read all about his friends and a diary journal so we can document his feelings, needs, wants, emotions.
Thank you Worry Pals for being so good to our community!

Miss Alaiya had her first model call for Crane Baby 🤍 We know first hand how amazing this nursery company is! From the q...
07/08/2025

Miss Alaiya had her first model call for Crane Baby 🤍

We know first hand how amazing this nursery company is! From the quality, the designs but what truly sold me is that they are eco friendly and organic.
I highly recommend this brand to all my parents out there! 🎀



📸: Sierra Ruiz Photo Company

07/01/2025

Unbox Josiah’s injection package from Vandy with me. How fitting it got approved and delivered on the first day of Juvenile Arthritis Awareness Month 💚 🫶🏽🔥

july is juvenile arthritis awareness month 💚josiah suffers from Polyarthralgia which is arthritis and joint pain in mult...
07/01/2025

july is juvenile arthritis awareness month 💚

josiah suffers from Polyarthralgia which is arthritis and joint pain in multiple joints due to his rare genetic disease, familial cold autoinflammatory syndrome.

2 years ago Josiah couldnt walk up and down the stairs, has a limp or sometimes couldnt bare weight on his legs due to how severe his pain was, fast forward 2 years later.. we cant keep up with this child.
Anakinra (Kineret) saved our baby boy’s life. 🫶🏽

🤍

Our yearly “Josiah Strong” shirts are up! 🧡Celebrate Autoinflammatory Awareness Month & our Josiah with a shirt! 🥰Josiah...
06/30/2025

Our yearly “Josiah Strong” shirts are up! 🧡

Celebrate Autoinflammatory Awareness Month & our Josiah with a shirt! 🥰

Josiah is an inspiration to many of us and such a warrior.

**All proceeds goes back to researching for AID’s**

https://www.monkeybearclothing.com/boys-girls

Exciting new adventures are coming to life!I joined and collaborated with a local non profit organization Fort Campbell ...
06/29/2025

Exciting new adventures are coming to life!
I joined and collaborated with a local non profit organization Fort Campbell Spouses' Club!💙

As yall know our medical journey has been a world wind from Josiah’s rare disease diagnosis and both Jayse & Josiah having autism, I been working effortlessly finding ways to get our mission out there!

Coming to Fort Campbell i’ve found we needed more inclusive activities, sports, events and even parent meet ups. I’m so excited to work with this group of beautiful women to get the ball rolling!

** If any of my local special needs families have any ideas or visions you want to see please drop them in the comments!**

🎀

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Syracuse, NY

Telephone

+13158040664

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