Florida Rare Action Network

Florida Rare Action Network Focusing on the needs of people impacted by rare disorders in the state of Florida to relay legislative action, local events and rare community happenings.

10/13/2025

Our Virtual Turkey Trot is back for year two! 🦃 Join from anywhere, Nov. 22-30. Walk, jog, run, or roll at your own pace to support NORD and the 1 in 10 Americans living with a rare disease.

Register by Oct. 24 to get your T-shirt in time for Thanksgiving! Sign up today: https://donate.rarediseases.org/TurkeyTrot2025

Today marks the start of National ! Join us as NORD Rare Action Network State Ambassador for Florida, Jhoanny, shares a...
09/15/2025

Today marks the start of National ! Join us as NORD Rare Action Network State Ambassador for Florida, Jhoanny, shares a special message in English and Spanish to celebrate the rich contributions of Hispanic Americans in the rare disease community.

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