10/09/2025
CMS parents: There is a law school project at FSU College of Law focusing on medically fragile children and making sure Florida is providing all of the services they are supposed to be for these children. The project's lead professor is seeking statements from parents whose children have endured loss of a P*P for terminations without cause (us!), a decrease in private duty nursing hours being covered that the child needs, removal of resources or obstacles in the way.
We are unable to attach the file here so email us and we can send you the actual file, or see below for the information they are wanting!
Send responses to sch19d@fsu.edu or mail responses to 425 W
Jefferson St., Law Advocacy Center, Room A010 Tallahassee, FL
32306-1601
Your Name: _______________________________________________________________________
Home address, cell phone number, and email:_______________________________________ ___________________________________________________________________________________
Name of the medically fragile child: _________________________________________________ Date of birth of the medically fragile child: __________________________________________
Medicaid Insurance Provider (Straight Medicaid, Sunshine, CMS, etc.):_______________ ____________________________________________________________________________________
Date of Reduction/Termination of PDN (if applicable): _______________________________
Is your child receiving the PDN hours that he or she was prescribed ( yes or no)? If not, provide a brief explanation: ___________________________________________________ ____________________________________________________________________________________
Would the PDN Recipient Require Hospitalization without PDN ( yes or no)?: ____________________________________________________________________________________
Briefly describe PDN Recipient’s Needs, Requests for PDN, PDN no-shows, and denial/termination/reduction by health plan:
____________________________________________________________________________________ ____________________________________________________________________________________ ____________________________________________________________________________________ ____________________________________________________________________________________
Send a message to learn more