JJ's Journey

02/02/2026

My precious, perfect little boy , mama loves you so so much!

01/31/2026

‼️I’m up , closely monitoring JJ ‼️(now 4am)
His ventilator has been alarming a lot. He’s not been initiating his breathing. Several of the numbers on his screen have been alarmingly bad/low… I had to put him on his “exasperated “(sick) settings… He’s still not a lot better..
his temperature is Low as well. Last reading was 95°.. I added blankets and am keeping a close eye on him and his breathing and ventilation levels.
This is soo hard and stressful…
But I’ll do anything for my precious son.
Please continue to pray for us to have wisdom in how we handle his cares… He isn’t really stable , but at least he is Slightly improved fin r the moment.. anything can/does change from moment to moment. 🥺🥺🥺💔💔🩵🩵

01/30/2026

A friend of mine created this for us. She asked me to share it.
Thank you for everyone who has prayed for us and helped us. It means the world to us. This is such a hard time in our lives. Most of all we covet your prayers, .

Please help us bless and lift the load of Jeremy and Olivia Lindley,They’re son JJ , his dysautonomia is really progressing and causing him a lot of health issues that are extremely hard on his body, causing fevers and high blood pressure and high respirations high heart rate during the day and th...

01/30/2026

This is not a post that I have been looking forward to doing, but I just feel like it’s probably time to let everybody know about our decision to put JJ on hospice. We have decided that we want to keep him home and not have him get poked every other week in the hospital and always be bruised all up and just go through all of that over and over.And in no way does this mean that we have given up on him.. we will continue his therapies, special Education, doctors appointments, etc. It is no small pill to take when the doctors tell you they really have nothing more the ycan do to help him. His neurological issues are causing a lot of trouble for his little body. It is so hard on him when during the day, his heart rate blood pressure, body temperature, etc., are high and then at night it’s the complete opposite. During the day there’s times when he goes up to 101° and at night ,down to 94.5°.. this affects him in more ways than you can imagine. Eventually, his already compromised body and organs will give out.
It’s been such an extremely hard last few weeks for me. I wish it was all a bad nightmare. I cannot imagine being without my perfect ,precious ,little boy. But my biggest fear is that I don’t want him to suffer. Is he okay?? NO. Am I ok?? ABSOLUTELY NOT. Will I ever be okay? The answer is NO. I am soo heartbroken and sad. Why should a parent have to make such hard decisions for their baby??? There are soo many moments I can’t stop crying. I can hardly function..

Doctors say that he could live up to a year or several more years or maybe just a few more weeks or months.. we don’t have any idea… we have had several scares lately. 

JJ has good days and lots of bad days. He is such a tough little boy. I am so proud of my sweet, precious little boy! 🥹🩵

Please pray that the Lord would help us in this harsh reality. 💔💔💔😭😭😭

01/28/2026

. Spending time snuggling with my precious little guy! I love him soo much!

01/27/2026

JJ is in a good mood today! It makes my heart happy 😊 🥰

01/27/2026

JJ enjoyed the sleet/ice 🩵

01/25/2026

JJ is happy this evening. I’ve been holding him ,singing to him, playing with him ,and he loves when we shake his legs! He was almost laughing!

01/24/2026

Last night was a long hard night with trying to keep JJ as comfortable as possible. He was awake off and on throughout the night. He is such a brave little boy, but this surgery has a painful recovery. So far he’s doing OK. Hopefully tonight goes better. Just pray that he sleeps better tonight and that he can recover soon.

01/23/2026

JJ hasn’t been able to sleep good so far tonight… he nods off for a little bit and wakes up and his restless, and I’m just trying to find a comfortable position for him so he can sleep. I’m on the Night Shift and I just hope he’s OK. Been giving him pain meds every three hours alternating between two different ones and just trying to keep him comfortable.

01/22/2026

All comfy at Home!