Rare Patient Voice

Rare Patient Voice Wes Michael, President and Founder
We connect patients and caregivers with research opportunities.
(303)

Rare Patient Voice helps patients and caregivers in the US, Australia, Canada, France, Germany, Italy, New Zealand, Spain, and the UK voice their opinions through paid, confidential surveys and interviews to improve medical products and services.

For anyone holding loss, change, or absence this season, you’re not alone.
12/21/2025

For anyone holding loss, change, or absence this season, you’re not alone.

Calling all patients who have been diagnosed with Philadelphia chromosome–positive chronic myeloid leukemia (Ph+ CML).Pa...
12/21/2025

Calling all patients who have been diagnosed with Philadelphia chromosome–positive chronic myeloid leukemia (Ph+ CML).

Participate in Focus Opportunities!

The interview takes place first with both the patient and the caregiver. If selected, participants will be eligible for upcoming events, which may include opportunities such as video shoots, photo shoots, and speaking engagements!

If you're interested in sharing your insights, click below to join:
https://www.rarepatientvoice.com/rp/GOLD

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.

🔍 Study Opportunity: Prostate Cancer 🔍Participate in a 10-minute online survey and contribute to research. Compensation:...
12/21/2025

🔍 Study Opportunity: Prostate Cancer 🔍
Participate in a 10-minute online survey and contribute to research. Compensation: $25.

If you're interested in sharing your insights, click below to join:
https://www.rarepatientvoice.com/rp/GOLD

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.
Let's work together to make a difference! 🌟

🌟 Join Our Diffuse Large B Cell Lymphoma on CART Therapy Study! 🌟Your opinion matters! Take part in our upcoming study. ...
12/20/2025

🌟 Join Our Diffuse Large B Cell Lymphoma on CART Therapy Study! 🌟
Your opinion matters! Take part in our upcoming study. Plus, you'll earn compensation for your time and insights!

📅 Quick and Easy: Just a 60-minute interview.
💸 Get Paid: Receive $120 for your participation.
🔗 Sign up: https://www.rarepatientvoice.com/rp/GOLD

Already a member? DM us your email and the study you're interested in!

Don't miss this chance to make your voice heard and get rewarded!

🌟 Join Our Thyroid Eye Disease (TED) Study! 🌟Your opinion matters! Take part in our upcoming study. Plus, you'll earn co...
12/20/2025

🌟 Join Our Thyroid Eye Disease (TED) Study! 🌟
Your opinion matters! Take part in our upcoming study. Plus, you'll earn compensation for your time and insights!

📅 Quick and Easy: Just a 30-minute commitment.
💸 Get Paid: Receive up to $70 for your participation.
🔗: https://www.rarepatientvoice.com/rp/GOLD

Already a member? DM us your email and the study you're interested in!

Don't miss this chance to make your voice heard and get rewarded!

New Study Opportunity!Patients who have been diagnosed with Spinal Muscular Atrophy & or Facioscapulohumeral Muscular Dy...
12/20/2025

New Study Opportunity!

Patients who have been diagnosed with Spinal Muscular Atrophy & or Facioscapulohumeral Muscular Dystrophy or if you are a family caregiver to a loved one who has been diagnosed you may be eligible for a 60 minute in-person interview to share your insights!

We need your help! Sign up today.

Sign up here: https://www.rarepatientvoice.com/rp/GOLD

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.

Let's work together to make a difference!

🔍 Study Opportunity: Hepatitis C 🔍We’re looking for adults to share their experience with Hepatitis C in upcoming focus ...
12/19/2025

🔍 Study Opportunity: Hepatitis C 🔍
We’re looking for adults to share their experience with Hepatitis C in upcoming focus opportunities.

The interview occurs first, and then if selected, you will be eligible for upcoming events, which would include options such as video shoots, photo shoots, and speaking engagements that could involve travel.

If you're interested in sharing your insights, click below to join:
https://www.rarepatientvoice.com/rp/Platinum

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.
Let's work together to make a difference! 🌟

🔍 Study Opportunity: Breast Cancer 🔍Participate in a 5 minute online survey and receive free access to medical record co...
12/19/2025

🔍 Study Opportunity: Breast Cancer 🔍
Participate in a 5 minute online survey and receive free access to medical record collection service.

If you're interested in sharing your insights, click below to join:
https://www.rarepatientvoice.com/rp/GOLD

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.
Let's work together to make a difference! 🌟

📣 Your Voice is Needed: Join Our Open Studies!📣We are always looking for patients and family caregivers across a wide ra...
12/18/2025

📣 Your Voice is Needed: Join Our Open Studies!📣
We are always looking for patients and family caregivers across a wide range of conditions to share their experiences and help advance medical research.

Click the link below to sign up into our panel and get matched to one of our open studies!
➡️ https://www.rarepatientvoice.com/rp/PinPost

Your unique story helps researchers better understand your condition/disease and develop new treatments.

Have you been diagnosed with metastatic colorectal cancer or are you caring for someone who has? Your experience matters...
12/18/2025

Have you been diagnosed with metastatic colorectal cancer or are you caring for someone who has? Your experience matters.

The interview occurs first, and then if selected, you will be eligible for upcoming opportunities, which would include options such as in-home video shoots, photo shoots, and speaking engagements that could involve travel.

If you're interested in sharing your insights, click below to join: https://www.rarepatientvoice.com/rp/GOLD

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you. Let's work together to make a difference!

Your monthly dose of Rare Patient Voice has arrived! 🌟Our December newsletter is officially out. Whether you’re looking ...
12/18/2025

Your monthly dose of Rare Patient Voice has arrived! 🌟

Our December newsletter is officially out. Whether you’re looking for new research opportunities or want to see what the community has been up to, we’ve got you covered.

Check your inbox or click the link in our bio to read it now. 📖
https://rarepatientvoice.com/newsletter79/

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711 Hampton Lane
Towson, MD

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Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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Voice your opinion, improve medical products and services, and earn cash rewards

For patients and caregivers: we provide the opportunity to share opinions in surveys and interviews and earn cash rewards For patient advocacy groups: we partner to raise money for advocacy groups For market research firms: we help find hard-to-recruit patients and their caregivers in the US and Canada