Ask Nan Patient Advocates

Ask Nan Patient Advocates Helping you make decisions especially regarding Cardiac Care...

Another!
04/20/2024

Another!

Today we saw the Epilepsy Doctor at UCSFMC for a video conference. ... It was very informative. If you don't know.. my ...
10/13/2021

Today we saw the Epilepsy Doctor at UCSFMC for a video conference. ... It was very informative. If you don't know.. my husband suffered from a colloidal cyst which plugged up the ventricles in his brain and caused hydrocephalus. He presented with frank memory loss, anger, confusion, and eventually grand Mal seizures. ...the sudden onset of his symptoms made me look back to what actually were symptoms that I did not notice. I thought anger was PTSD from his job as a CHP officer, but then he started believing things that didn't happen and became distrustful and suspicious of all of us in the family. I started to believe the awful things he would say to me, started doubting myself as a nurse..but he was sick and his seizure showed us just how sick he was..When we got to the transferring hospital he had an ee g done by neurology who told me this is a progressive problem and go home......I asked what neurosurgery said and they advised me that neuroradiology did not think the cyst was significant. Because of my position at the hospital I worked I was able to convince neurology to pass this case to neurosurgery. They saw him and were convinced that the MALT Lymphoma he had experienced had gone to his brain but after a ventriculostomy their findings were waaaaay different. The colloidal cyst had plugged the outlet to his ventricles and as soon as they dissected it the CSF started to flow and they determined a shunt was not necessary. It was purely a mechanical issue. So now comes the healing and it has been long. If you want to hear the ending let me know and I will tell you how it ended up. Let me know if you have suffered a similar road or know of someone....

In our current iRNPA class we have been discussing the intricate communication link that exists between the gut microbio...
06/10/2021

In our current iRNPA class we have been discussing the intricate communication link that exists between the gut microbiota and the brain and its ability to modulate individual homeostasis. Microbiota governs metabolic activity including neural, endocrine, and immune pathways. In normal individuals the gut microbiota is always changing. Dysbiosis (a reduction of microbial diversity) occurs in three forms-acute/primary, an example such as in streptococcal pharyngitis. If dysbiosis is not corrected in the acute phase (especially after antibiotic therapy) it leads to loss or suppression of function of health protective bacteria. This phase can still be corrected but if not, chronic dysbiosis occurs which then leads to a disease state that progresses to a chronic phase. The chart belows shows the association between gut microbiota and the implication for neurodegenerative disorders.
Let me know if you like to hear more!!

Please share your story.....
10/05/2020

Please share your story.....

10/05/2020

What to do if you don't agree with your doctor?

08/25/2018

This week was a very busy week. Tucson, AZ seems to be that place that keep calling my name. But if that was not enough I was also able to help one of my dearest and oldest friends change his life. An insulin dependent diabetic since the age of 27, I arranged to take him to a diabetic and endocrinology specialist where he received a FreeStyle Libre Sensor. The sensor is applied painlessly to the back of your arm for up to 10 days. The FreeStyle Libre sensor is calibrated to provide accurate blood glucose levels 12 hours after being activated. You can view a total of 90 days of glucose trends on your reader and interpret these with your patient care representative. To my patient friend: At this point please put a TILE tracker on it! You've already lost it once!!

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