01/05/2025
Good evening support squad.
Tomorrow Silas starts phase 6 of his cancer treatment. This next phase is called “Delayed Intensification” and I am nervous and scared as hell.
You may remember at the start of this terrible nightmare, I mentioned that Silas is in the “high risk” category in order for him to beat this, based off a genetic test he had done (FISH test). This next phase is where that comes into play.
Silas will receive 9 different chemotherapy medications during the next 2 months. Some he has received before, and some he has not.
Tomorrow (May 1st) Silas will go under anesthesia again for a lumbar puncture and chemo injection through his spinal fluid (methotrexate) and he will also receive doxorubicin through his port.
Doxorubicin is nicknamed “the red devil” mainly because of the color of the medication (red) but also because this specific chemo has the potential to attack and shut down his heart overtime.
Since he will be receiving this specific chemo throughout this phase, Silas had to have an echocardiogram (ultrasound of the heart) on April 17th. Thankfully the results from that have come back “normal” but we were told that he will need to have routine echocardiograms for the rest of his life because of doxorubicin. 💔
Also during this phase Silas will receive the chemo that he is allergic to, in an effort to desensitize his body to it. Since the potential is so high for another reaction, they will directly admit Silas the ICU (intensive care unit) on May 5th.
Silas’ medical team has been mentally preparing us for this phase for several weeks now, so I have decided that I will take a leave of absence from my job towards the end of May when they are anticipating his blood counts to hit rock bottom, and to start seeing more intense side effects, worse than any phase so far combined.
I have come to the reality that I will be paying for medical bills from this nightmare for the rest of my life, but for right now I need to be there for my Son, during the hardest part of the worst chapter in our lives. 🧡
For now…enjoy a picture of Silas doing what he loves most…riding his quad!