04/19/2026
This is such an important area of CP research and clinical practice as it allows us to look at interventions, prognosis, and more, in a different way potentially!
āIn 1990, I was diagnosed with cerebral palsy. Like many in the community, my parents were told explicitly that the condition has no genetic roots. Now, as research suggests that up to 30% of cases have genetic etiologies, robust community engagement is needed to ensure that the perspectives of the community shape the future of genetic research into cerebral palsy.ā
ā Kevin Mintz, PhD, Department of Bioethics, Stanford University
Source: https://doi.org/10.1038/s41588-025-02445-2
Dr. Mintz, a researcher who also has cerebral palsy, focuses on disability bioethics and the ethical, legal, and social implications of genetics and genomics at the Stanford Center for Biomedical Ethics. Right now he is working with the Network to study community views in studying genetics in people with CP. Thank you Dr. Kevin for spearheading this important research that will bring awareness of community views in CP research!
ID: A beige graphic from the Cerebral Palsy Research Network features a large stylized quotation mark and the CPR Research Network logo in the upper right corner. The quote reads: āIn 1990, I was diagnosed with cerebral palsy. Like many in the community, my parents were told explicitly that the condition has no genetic roots. Now, as research suggests that up to 30% of cases have genetic etiologies, robust community engagement is needed to ensure that the perspectives of the community shape the future of genetic research into cerebral palsy.ā The words ācerebral palsyā and āgenetic etiologiesā are highlighted in bright green. At the bottom, the quote is attributed to Dr. Kevin Mintz in a green nameplate.