Marlene's Dysautonomia Journey

10/04/2023

09/28/2023

Can identify. Life 😞

05/02/2023

Please see Marlene's update. Funds have been used on medical expenses only but will be depleted as of tomorrow. We appreciate your generosity. Please share the continued need with your Facebook friends!

Hi, my name is Terri McKenzie and I'm raising money to help my friend, Mar… Terri McKenzie needs your support for Help Marlene Edden Beat Dysautonomia's Odds

04/30/2023

22155 likes, 2684 comments. Check out CINNAMON's video.

04/29/2023

Rough day, but I made it through. Right now I’m having chest pain that followed heart flutter. Hoping to fall asleep soon, and praying it will be a better day tomorrow.

04/20/2023

SPEAKER SPOTLIGHT:
Meet Dr. Elisabeth Golden, the Keynote Speaker for DysCourse!

Dr. Golden is a board-certified neurohospitalist at UT Health Tyler who specializes in neuromuscular and autonomic disorders. She believes every patient has a unique story, and paying attention to the story is key to a therapeutic relationship. Dr. Golden is UCNS board-certified in Autonomic Medicine, a member of the American Autonomic Society and faculty member of The Residents Course. Dr. Golden's presentation topic for DysCourse is "Tools for Managing Autonomic Disorders". Please continue to follow TDP for updates on when registration opens for this event!

Thank you again to our partner organizations for joining us in creating a global community of dysautonomia patients and caregivers through DysCourse: Standing Up to POTS, Dysautonomia Support Network, Australian POTS Foundation, The Multiple System Atrophy Coalition, Dysautonomia Information Network - DINET, Hope for Team Tara (More TBA).

04/20/2023

Share this video to help raise awareness about postural orthostatic tachycardia syndrome (POTS), a neurological condition that is one of the most common forms of…

03/31/2023

Yeah!!!! Home again. I feeling much better now that I just have dysautonomia/POTS to deal with. The ER, PCU, and cafeteria staff prioritize patients’ needs. I was blessed to have awesome nurses taking care of me. I don't remember all the names, but Grace has been exceptional from the time I met her back in December 2022 and again this last admission. I also had a very nice, prayerful, joyful roommate. We planned to keep in touch.

Overall, God is good, and His mercy endures forever. They are new every morning. Thanks to everyone who took the time out to pray for me. May God Bless You!
🙂❤️🙂

03/30/2023

Got to visit this sweet soul and it was very good to see an even brighter smile on her face. She is feeling "better". (Better for Marlene = back to baseline = still with Dysautonomia but without the scarier symptoms from new meds which have now been D/C'd). I really like the conservative approach they are taking at Lawnwood. Backing way off of meds and not rushing into new meds before thorough evaluation.
God gave Marlene a mutual encourager for a roommate and when she introduced me, her roommate said, "We've just been sharing the love of Jesus." They are joining one another in prayer - so very sweet. Marlene appreciates all the prayers and kind words that have been sent her way! She is still awaiting the results of her stress test.
Specific prayer requests:
1) Wisdom for staff
2) Relief from pain, especially headache
3) A good night's sleep (which we all know is a miracle in a hospital!)
4) Financial needs to be met.
5) (Last but not least) For this setback to be used for God's glory.

03/28/2023

Heart rate is low blood pressure a little high. I'm here trying to smile through the pain. I'm admitted and waiting for a room. Thank you all for praying for me.

03/28/2023

UPDATE: Marlene is still awaiting a hospital room. They have taken her off of all of her meds except one I guess to try and get things under control and start from scratch, which seems a good plan. Her heart rate is still low and she is experiencing pain, thirst, and fatigue as well. Your continued prayers are appreciated.

Urgent prayer request for Marlene Logan-Edden. She went to the ER today with a multitude of symptoms that mirror the side effects of a medicine she was placed on 4 weeks ago. (We do not know for sure that the medicine is the cause, but are concerned that it may be.) When she got to the ER, her heart rate was 41, so they immediately did an EKG and it showed an abnormality so they are getting a room ready for her. Please pray that the doctors would be able to accurately diagnose the cause of this new cluster of symptoms and that her concerns are heard. I (Terri) will keep you posted as soon as I have updates. Thank you so much to all who continue to support, encourage, and pray for her!