Carson’s Crew

Carson’s Crew Carson is a 5 year old boy that has autism on a journey to kick leukemia’s butt.

Day 300: FaceTimed Carson today during church. With my emotions running crazy I needed to hear this message. Carson want...
11/30/2025

Day 300: FaceTimed Carson today during church. With my emotions running crazy I needed to hear this message. Carson wanted to watch Antonio play the drums and then asked for sometone to pray for him. Mrs. Joan prayed for his strength and to feel beter soon. 
He is definitely doing better today and just waiting to get his NJ tube replaced tomorrow.

Day 299: We've received great news - the cancer has not spread to his testicles! 🙌 Carson has been experiencing nausea l...
11/29/2025

Day 299: We've received great news - the cancer has not spread to his testicles! 🙌 Carson has been experiencing nausea lately, so the medical team conducted an x-ray of his stomach. They discovered that his NJ tube had shifted, and he'll receive a new one on Monday. Barring any complications, he's on track to go home Monday afternoon. The doctors are confident that his weakness and pain are dehydration-related, and it's reassuring to see his strength increase with fluid treatment.
*Added some Carson selfies. 😂😂😂


11/29/2025

He’s already starting to feel better!! 😍😍 (Ignore the yucky nose.)

Day 298:Carson was up all night in extreme pain. He kept, saying, “my femur and wewe hurt.” We had a clinic appointment ...
11/28/2025

Day 298:Carson was up all night in extreme pain. He kept, saying, “my femur and wewe hurt.” We had a clinic appointment for chemo this morning, so I just waited it out. He took tylenol and gabapentin, but nothing broke the pain. They did x rays to rule out a break. The x rays showed fluid in between his hip bone, but no fractures. They did an ultrasound of his groin area and we are waiting results to see if the leukemia has spread to his testicles. Carson has been admitted to his second home on 7 West as we wait for all the results to come in. The plan is to continue chemotherapy later today. (He was on a hold till they ruled out causes of his pain.) However, at this time he can barely sit up and even with assistance he is unable to stand.
On a good note all his labs look phenomenal. His blood cell counts, hemoglobin and ANC are all in the normal range. He doesn’t have any mouth sores this go around, which is what hospitalized him with this chemo last time.
At this point, we just need everyone to send positive vibes and pray. We need it first and foremost in hopes that the cancer did not spread his testicles. Second Carson has a trip planned next weekend that he has been waiting for since last year. It has been planned and booked for months. I’m really hoping he’s released and clear to go enjoy himself next weekend.


Day 297: Happy Thanksgiving From Carson’s Crew
11/28/2025

Day 297: Happy Thanksgiving From Carson’s Crew

Day 295: Carson got to visit with both his biological siblings today! It’s been awhile since he’s seen his sister, so gl...
11/25/2025

Day 295: Carson got to visit with both his biological siblings today! It’s been awhile since he’s seen his sister, so glad they got to visit each other.

Day 288: Chemo day.. one of the worst things about receiving chemo is the waiting. The two chemos that he received today...
11/18/2025

Day 288: Chemo day.. one of the worst things about receiving chemo is the waiting. The two chemos that he received today each only take five minutes to run through his port, however the visit took over 4 hours. Waiting to get his port accessed, waiting to draw blood, waiting for the results of the blood, waiting for them to release the chemo and then waiting to get deaccessed. The waiting is the worse part for Carson.

Carson wanted the red hair filter, but you have to have hair for it to work, so he put mine on his head. 😂



* just now realized I originally put this post on my personal page and not his page so now I’m posting it here.

Day 282: Before I make today’s post, I would like to make it clear that before any big decision can be made Carson’s hem...
11/13/2025

Day 282: Before I make today’s post, I would like to make it clear that before any big decision can be made Carson’s hematology and oncology team have to be on board.
With that being said Carson started at the Kidz Club today. It is not a daycare, but a pediatric medical day treatment center. Every classroom has a nurse in it and every child is carefully evaluated upon arrival. The classrooms are kept small and the child to adult ratio is low. They are trained to do all his meds and tube feedings, as needed. The nurses have experience with nj tubes and ports.
This is what was best for our family. I have to be able to work when I can, while having a reliable and trustworthy place for Carson to go.


Day 280: Carson  is starting to get mouth sores from the chemo. 😞But he’s still in good spirits and True to the Blue
11/12/2025

Day 280: Carson is starting to get mouth sores from the chemo. 😞
But he’s still in good spirits and True to the Blue

Day 279: Carson’s spinal results are in and his spine is still clear of cancer. 🙌Every spinal tap is nerve wrecking awai...
11/11/2025

Day 279: Carson’s spinal results are in and his spine is still clear of cancer. 🙌
Every spinal tap is nerve wrecking awaiting the results, but the chemo is working.
ETA: leukemia is a tricky Cancer that takes a long time to treat. This result means leukemia has not spread to his spine or testicles. He has never had leukemia in his spine or testicles. It’s been contained to his blood . If they can keep it contained his prognosis is a lot better. He will be in active chemo treatment until March 2027. 

Day 278: Today has been a very emotional day for me. I’m not 100% sure why. I haven’t received any more bad news and not...
11/10/2025

Day 278: Today has been a very emotional day for me. I’m not 100% sure why. I haven’t received any more bad news and nothing really has changed with Carson over the weekend. The only thing I can think of is that I’ve had some time by myself and I start thinking and overthinking.
I have shed so many tears today scared for his future. I try to stay positive and try to think about a positive prognosis but the reality is Cancer is scary. What if I have to put my baby through all this and he doesn’t win and Cancer does.? What if he relapses? What if he has negative side effects from chemo that last for the rest of his life that are hard for him to withstand? Life is just not fair and it’s taking its toll on me today I look at other families with children, happy and playing and get so jealous that my son doesn’t have that. I just wanna go back before diagnosis and everything be the same and not have to worry about so much.
Hug your babies extra tight and remember before February 3, 2025. My kid didn’t have cancer either. It could happen to anyone and it does more often than people think.
Carson is so much stronger than me and when I get down like this, I just have to think about him and look at that smile on his face. Cancer has attacked his body and he still continues to fight and not give up. I just have to hope and pray that Cancer doesn’t win and he does. 


Day 276: Carson finally met counts!!!!!! We started interim maintenance 2 today. Intermin maintenance 1 was hard on him,...
11/07/2025

Day 276: Carson finally met counts!!!!!! We started interim maintenance 2 today. Intermin maintenance 1 was hard on him, so I’m a little worried. However, this is the last cycle before he goes into maintenance, so we are ready to get this rolling. He was sedated today for a spinal. They pulled spinal fluid to check for leukemia in his spine and infused his spine with chemo. We will get the results in about a week.
**Wonderfold wagons are the best creation ever!**


Address

115 Debbie Drive
Vine Grove, KY
40175

Telephone

+12703901608

Website

Alerts

Be the first to know and let us send you an email when Carson’s Crew posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Carson’s Crew:

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram