12/26/2025
Day 326: Not the news I wanted to hear, but his port has to be removed as soon as possible. They scheduled surgery for 4 hours out, so he could be NPO (no food or drinks) long enough, but then his bloodwork came back that his platelets are too low for surgery. They are going to give him platelets for the next several hours in hopes they can have surgery through the night or first thing in the morning.
They will continue to monitor his blood cultures to make sure the the infection is only in his port and not in his body’s bloodstream. He will be hospitalized for a minimum of 10 additional days, but will probably be longer.
His ANC has bottomed out, which is expected. Most likely it will stay this way through the weekend, then hopefully start to rise. His ANC levels put him on a chemo hold, therefore he can’t start maintenance until his counts completely recover.
He goes through little spurts of energy. He will wake up for about 30-45 minutes, then sleep for several hours. His body is working hard to get his counts back up!!
If anyone would like to send him mail you can send it to the following address:
Ronald McDonald House
Carson Wilson
550 S 1st Street
Louisville, KY 40202
Room 215
Here is his wishlist:
https://www.amazon.com/registries/gl/guest-view/266JDTSQVWQS7?ref_=cm_sw_r_mwn_ggr-subnav-share_SD96599BS8BSDCG3HETR&language=en-US
I put the $20 and $25 gift cards on his wishlist, but it keeps defaulting to the more expensive ones for some reason.