Fighting Sickle Cell

Fighting Sickle Cell Living with Sickle Cell Disease The only way that we can do this is by drawing the publics attention to the severity of the disease.

A video diary and blog of a person living with Sickle Cell Anemia where people can add content and discuss the difficulties of living with the disease. I want us to make some nose , I want us to be heard and I want to make sure that we make a change so that in future people do not have to suffer the way that I have! By highlighting the effects it has on the suffers life and their family. I believe that this is the start of something good and I am going to be adding content to this site at least once a week with a video blog diary. I'm going to be responding to questions asked previously from the Fighting the Stigma series as well as talking about some of the issues that people with Sickle Cell face, while trying to find solutions and living LOL! :)

So please continue to check this site out and add your own content so that we can create a brighter future for those to come.

01/06/2021

Firstly, HAPPY NEW YEAR! I have been lucky enough to see 2021. This year I am finally prepared to share what I have been working on for years. I will be launching a full "Fighting Sickle Cell" website and starting a program called "Sickle Succeed" within the DMV.

I am also trying to find women who have sickle cell (any type) and have children to share their stories. I have been searching the internet for personal stories about conception, pregnancy, delivery and raising a child while having Sickle Cell. Unfortunately I have found nothing but medical abstracts listing a monumental amount of information about how dangerous it is and all the things that can go wrong. Or information about how to prevent having a child a with sickle cell.

Although I am focusing on the mother I would also like to hear from men with sickle cell that have children also.

Or a person that doesn't have sickle cell but their partner does.

I'm also on the hunt for personal testimonials of people that have had any form genetic alteration that has cured them of sickle cell.

So if you feel like you fit any of the above scenarios, know somebody or have the some similar questions; please reach out!

🥰
11/18/2020

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Health related stigma destroys human dignity. Stigma, when associated with HIV, another medical condition, mental illness or disability, prevents a person from seeking evaluation and treatment, disclosing the diagnosis to those most likely to provide support, and following treatment guidelines.

I hope you guys have had an opportunity to enjoy this month's Sickle Cell Event!
09/29/2020

I hope you guys have had an opportunity to enjoy this month's Sickle Cell Event!

Some severe complications of SCD include stroke, acute chest syndrome and organ damage.

Daily Challenge:
Read for 30 minutes.

Ok guys I know I've been on a social media hiatus 🙃 😅 but I'll be back next week with everything I've been working on! L...
09/17/2020

Ok guys I know I've been on a social media hiatus 🙃 😅 but I'll be back next week with everything I've been working on! Life has been chaotic to say the least. As I'm SURE life has been for you! Yes I've been playing that silly game and sorry for those of you I bugged with it. I've been trying to catch up with people via DM.

Yes, that is my voice you've heard on the radio 📻 this Sickle Cell month. I did a PSA with Howard University Sickle Cell department in the DC, it doesn't matter where you are, the info can be found below.

Now, I have been following/reading what people are posting. Sometimes I'm disappointed 😞 by what people have posted and even more upset about the people being scammed by misinformation; on all the subjects! I realize I've been hoodwinked too, however not anywhere near as many times as some 😏 😅. I don't mock people nor do I think they are stupid 🤔 I just don't think some are as capable nor do they have the want and, or the drive to source check.

I won't belittle anybody that has found, a tiny, bit of peace in a simmering lie! As long as they do it without causing unjust harm to themselves or others!

Nevertheless I don't look to Facebook for my news. I consider Facebook to be a talk show! I even avoid the BBC page. Unfortunately I've found a ton of Sickle Cell blogs and forums to be full of scams and con artist 🎨.

Yet still there IS a lot of truth to be found here so just be vigilant and check ✔ your sources, double check ✔✔😀

As per usual I have a lot to say and I will 😀 😊. I've some lovely collaborative stuff coming with a few people you know 😉 which I'm very excited about.

In the meantime I'm going to crawl back into my hole and plot about how 🤔 to take over the world 🌎 mwhaha.....

P.S.
For a good reliable source 👍 of information please visit the site below.

Never, ever stop questioning the world 🌎 around you. Nothing worth having ever comes easily and that includes the truth!

The Howard University Center for Sickle Cell Disease is calling on the community to join its annual Cure Sickle Cell Now Move-On event for 2020.

Just having some fun as I clean up.
05/06/2020

Just having some fun as I clean up.

New week, new hair style. After and before.
05/03/2020

New week, new hair style. After and before.

Guess who moved out?!?!
04/28/2020

Guess who moved out?!?!

        No Hip Hop, jus' Flip Flop. Bunny slip and slide.
04/23/2020

No Hip Hop, jus' Flip Flop.
Bunny slip and slide.

      "Shhh I'm in hiding!"What title would you give this picture?
04/18/2020



"Shhh I'm in hiding!"

What title would you give this picture?

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