01/06/2021
Firstly, HAPPY NEW YEAR! I have been lucky enough to see 2021. This year I am finally prepared to share what I have been working on for years. I will be launching a full "Fighting Sickle Cell" website and starting a program called "Sickle Succeed" within the DMV.
I am also trying to find women who have sickle cell (any type) and have children to share their stories. I have been searching the internet for personal stories about conception, pregnancy, delivery and raising a child while having Sickle Cell. Unfortunately I have found nothing but medical abstracts listing a monumental amount of information about how dangerous it is and all the things that can go wrong. Or information about how to prevent having a child a with sickle cell.
Although I am focusing on the mother I would also like to hear from men with sickle cell that have children also.
Or a person that doesn't have sickle cell but their partner does.
I'm also on the hunt for personal testimonials of people that have had any form genetic alteration that has cured them of sickle cell.
So if you feel like you fit any of the above scenarios, know somebody or have the some similar questions; please reach out!