Pulmonary Hypertension Association

Pulmonary Hypertension Association The Pulmonary Hypertension Association (PHA) is the country’s oldest and largest nonprofit patient
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Headquartered in Washington, D.C., the Pulmonary Hypertension Association (PHA) is the country’s oldest and largest nonprofit patient association dedicated to the pulmonary hypertension (PH) community. Pulmonary hypertension is a rare, chronic and life-threatening disease of the lungs for which no cure currently exists. PHA’s mission is to extend and improve the lives of those affected by PH. To achieve this mission, PHA engages people with PH and their families, caregivers, health care providers, and researchers worldwide who work together to advocate for the PH community, provide support offer up-to-date education and information on PH, improve quality patient care, and fund and promote research.

On the latest episode of PH Insights, host Jenna Olitsky, a PAH patient and estate planning attorney, and nurse practiti...
03/12/2026

On the latest episode of PH Insights, host Jenna Olitsky, a PAH patient and estate planning attorney, and nurse practitioner Silvana Mooney discuss how advance health care directives work in real-life medical situations.

They discuss power of attorney documents, HIPAA authorizations and the benefits of preparing for advance care.

Listen now: https://ow.ly/VHUF50Ypbgt

This week PHA joins National Sleep Foundation for Sleep Awareness Week. Did you know that between 17-53% of people with ...
03/11/2026

This week PHA joins National Sleep Foundation for Sleep Awareness Week.

Did you know that between 17-53% of people with sleep apnea also have ?

Learn more about the connection between and in our free brochure.

https://ow.ly/9zNb50Ypb0x

Join us tomorrow, March 11, at 8 p.m. EDT for our monthly virtual Parent Support Group. Connect with other parents and ...
03/10/2026

Join us tomorrow, March 11, at 8 p.m. EDT for our monthly virtual Parent Support Group.

Connect with other parents and learn strategies and tips on how to best manage your child’s .

Register now: https://ow.ly/7QGX50YqeQg

Did you hear the news? Scholarship applications are open for PHA 2026 International PH Conference and Scientific Session...
03/10/2026

Did you hear the news? Scholarship applications are open for PHA 2026 International PH Conference and Scientific Sessions!

Scholarships are available for U.S. adult and pediatric patients, international patients and patient speakers. A limited number of support group leader stipends are also available.

Your PHA membership must be valid through June 14 to be eligible. View scholarship criteria and submit your application today.

https://ow.ly/hlJh50YpaOx

There’s still time to register for PHA’s Puerto Rico Support Group patient education luncheon on Saturday, March 28! Att...
03/09/2026

There’s still time to register for PHA’s Puerto Rico Support Group patient education luncheon on Saturday, March 28!

Attend this free event for an afternoon of expert sessions, exhibitors and networking opportunities. Free lunch will be provided, and all members of the PH community are encouraged to attend.

Register to save your seat: https://ow.ly/lfEX50YpawU
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¡Aún hay tiempo para inscribirse en el almuerzo educativo para pacientes del Grupo de Apoyo de Puerto Rico de la PHA, que se celebrará el sábado 28 de marzo!

Asista a este evento gratuito y disfrute de una tarde de sesiones con expertos, expositores y oportunidades para establecer contactos. Se ofrecerá un almuerzo gratuito y se anima a todos los miembros de la comunidad de hipertensión pulmonar a asistir.

Inscríbase para reservar su plaza: https://ow.ly/lfEX50YpawU

PHA is on Capitol Hill today as 43 advocates meet with legislators to share their stories and push for progress for the ...
03/09/2026

PHA is on Capitol Hill today as 43 advocates meet with legislators to share their stories and push for progress for the community.

PHA’s main priority is to urge legislators to co-sponsor the Supplemental Oxygen Access Reform Act, a bipartisan bill that would make supplemental oxygen more accessible for Medicare beneficiaries.

We’re excited for today’s meetings and look forward to sharing updates with you!

PHA volunteer leaders are hard at work! This weekend, PHA’s Board of Directors, Scientific Leadership Council and PH Pro...
03/08/2026

PHA volunteer leaders are hard at work! This weekend, PHA’s Board of Directors, Scientific Leadership Council and PH Professional Network Executive Committee gathered in Washington, D.C. to advance PHA’s mission and prepare for Monday’s Capitol Hill visits with and from across the country.

During the meetings, the board approved dedicating a portion of PHA’s investment portfolio specifically to research. With this commitment, PHA will increase annual funding from $350,000 to more than $800,000, supporting new research grants and strengthening the PHA Registry program.

Happy International Women’s Day! Today we celebrate our four founders, Pat Paton, Judy Simpson, Teresa Knazik and Doroth...
03/08/2026

Happy International Women’s Day!

Today we celebrate our four founders, Pat Paton, Judy Simpson, Teresa Knazik and Dorothy Olson, who met around a kitchen table in 1991 and laid the groundwork for the Pulmonary Hypertension Association.

Since then, PHA has brought together thousands of patients, caregivers and health care professionals to build a community of support.

Visit our website to learn more about our history: https://ow.ly/63xk50Yn2Hm

The 2026 Tampa O2breathe Walk and 5K is two weeks away. Join the local community for a morning of celebration, connec...
03/07/2026

The 2026 Tampa O2breathe Walk and 5K is two weeks away.

Join the local community for a morning of celebration, connection and movement towards a cure.

The walk is free to attend, and registration for the 5K is $40. Learn more about the event and register: https://ow.ly/BOmI50Yn2Ct

Can’t attend? Join us Saturday, March 21, for the Orlando O2breathe Walk, 9-11 a.m. EST at Lake Eola Park. See the event link in the comments.

The first Orlando O2breathe Walk is two weeks away.Join the Orlando PH community on Saturday, March 21, at Lake Eola Par...
03/06/2026

The first Orlando O2breathe Walk is two weeks away.

Join the Orlando PH community on Saturday, March 21, at Lake Eola Park for a morning of movement, celebration and hope.

The walk is free to attend and is open to everyone affected by PH. Learn more about the event and register. https://ow.ly/mjbp50Yn237

Can’t attend? Join us Sunday, March 22, for the Tampa O2breathe Walk and 5K, 9-11 a.m. EST at Al Lopez Park. See the event link in the comments.

Do you know someone who goes above and beyond to serve the pulmonary hypertension community? Submit a nomination for th...
03/05/2026

Do you know someone who goes above and beyond to serve the pulmonary hypertension community?

Submit a nomination for the PHA Outstanding Member Awards. Nominations are open through April 20, and awards will be presented during PHA 2026, June 11-14, in Dallas.

View award categories and submit your nomination: https://ow.ly/Rur850Yn1AR

Michele Freeman has been a for her husband, Les, for 13 years as he lives with . As a licensed professional , Miche...
03/04/2026

Michele Freeman has been a for her husband, Les, for 13 years as he lives with .

As a licensed professional , Michele has developed strategies to cope with all aspects of caregiving.

“We’ve been programmed, especially with , to think the worst. But there’s so much hope now with different therapies and an increase in life expectancy, that we can train our minds to think more optimistically,” Michele said.

PHA has extensive caregiver resources to help support your physical and mental health while you care for a loved one.

Learn more: https://ow.ly/1b6m50Yn1ql

Address

1121 14th Street NW, Suite 150
Washington D.C., DC
20005

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+13015653004

Website

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