Pulmonary Hypertension Association

Pulmonary Hypertension Association The Pulmonary Hypertension Association (PHA) is the country’s oldest and largest nonprofit patient
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Headquartered in Washington, D.C., the Pulmonary Hypertension Association (PHA) is the country’s oldest and largest nonprofit patient association dedicated to the pulmonary hypertension (PH) community. Pulmonary hypertension is a rare, chronic and life-threatening disease of the lungs for which no cure currently exists. PHA’s mission is to extend and improve the lives of those affected by PH. To achieve this mission, PHA engages people with PH and their families, caregivers, health care providers, and researchers worldwide who work together to advocate for the PH community, provide support offer up-to-date education and information on PH, improve quality patient care, and fund and promote research.

Join us on Wednesday, Nov. 19, at 8 p.m. EST for our monthly virtual Young Adult Support Group.   Connect with other you...
11/18/2025

Join us on Wednesday, Nov. 19, at 8 p.m. EST for our monthly virtual Young Adult Support Group.

Connect with other young adults with and share experiences, support and tips to thrive with .

Register now: https://ow.ly/E33C50XtAWb

Join us tonight at 8 p.m. EST for our nationwide CTEPH support group meeting. Anyone living with   can share experiences...
11/18/2025

Join us tonight at 8 p.m. EST for our nationwide CTEPH support group meeting. Anyone living with can share experiences, receive support and foster community.

The virtual meeting will be held via Zoom and facilitated by a PHA support group leader. Register now: https://ow.ly/iBaX50XrjRl

Alberta Wright of Detroit, Michigan, was diagnosed with idiopathic pulmonary arterial hypertension in 2018 after experie...
11/18/2025

Alberta Wright of Detroit, Michigan, was diagnosed with idiopathic pulmonary arterial hypertension in 2018 after experiencing shortness of breath and swelling for more than a year. Today, she finds strength through her faith, family and the PH community.

“I take one day at a time, I live life to the fullest and I take nothing for granted,” Alberta says. “I get hope from knowing that medicine for PH is advancing daily and that you can live a long life with the right medicine.”

Read Alberta’s story: https://ow.ly/luvc50XrjMS

Join us on Wednesday, Nov. 19, at 7 p.m. EST for our monthly virtual Caregiver Support Group meeting.   Connect with oth...
11/17/2025

Join us on Wednesday, Nov. 19, at 7 p.m. EST for our monthly virtual Caregiver Support Group meeting.

Connect with others who understand what it’s like caring for someone with and share caregiving strategies and advice.

Register now: https://ow.ly/11tO50Xt6bI

Reminder that PHA is accepting patient and professional speaker applications for   breakout sessions! All those affected...
11/17/2025

Reminder that PHA is accepting patient and professional speaker applications for breakout sessions!

All those affected by pulmonary hypertension are encouraged to apply and share their expertise with the PH community. PHA 2026 International PH Conference and Scientific Sessions is set for June 11-14, 2026, in Dallas.

Visit the application portal to view topics of interest, submission criteria and submit your application today!

https://ow.ly/gIq650XrjH9

Stretch to relieve stress. Yoga can help improve flexibility, balance, breathing and the connection between mind and bod...
11/17/2025

Stretch to relieve stress. Yoga can help improve flexibility, balance, breathing and the connection between mind and body.

Learn how yoga and other gentle exercises can benefit people living with pulmonary hypertension:

https://ow.ly/xAoE50Xrn4i

Here are some exercise programs designed for the PH patient along with questions to ask your medical team before you begin.

This PH Awareness Month, members of the PH community share what it means to EmPHasize Your Health. Louise Bouman of the ...
11/16/2025

This PH Awareness Month, members of the PH community share what it means to EmPHasize Your Health. Louise Bouman of the Netherlands shares:

“Living with PH means I have to balance more than just my medical care. I prioritize my health by listening to my body, saving energy for what truly matters and staying connected with loved ones. That combination of medical, emotional and social well-being gives me the strength to move forward.”

Join us in highlighting the many ways people with PH prioritize their health and well-being: https://ow.ly/HPi850XnV92


Did you know between 17–53%  of people with sleep apnea also have pulmonary hypertension?  Sleep apnea is a potentially ...
11/15/2025

Did you know between 17–53% of people with sleep apnea also have pulmonary hypertension?

Sleep apnea is a potentially serious sleep disorder in which breathing repeatedly stops and starts while one is asleep.

If you have sleep apnea and experience symptoms like shortness of breath, fatigue, or chest discomfort, talk to your doctor about being screened for PH.

Download PHA’s free PH and Sleep Apnea brochure to learn more: https://ow.ly/nCE250XnV0n

Elizabeth Freyr of Warrenton, Oregon, was born with a congenital heart defect in 1991 and diagnosed 30 years later with ...
11/14/2025

Elizabeth Freyr of Warrenton, Oregon, was born with a congenital heart defect in 1991 and diagnosed 30 years later with pulmonary arterial hypertension.

Since her diagnosis, she’s learned to be courageous, live in the moment and put herself first.

“Practicing mindfulness and listening to my body has helped mitigate some of my fears,” Elizabeth says. “To anyone who is newly diagnosed, just know that you are always stronger than you think you are. Give yourself grace and time to work through what you are feeling. Never give up and keep picking yourself back up again.”

Read Elizabeth’s story: https://ow.ly/hCCo50XnUQq

Nearly 2 million U.S. adults have congenital heart disease, and between 3% and 10% of people with CHD will develop pulmo...
11/14/2025

Nearly 2 million U.S. adults have congenital heart disease, and between 3% and 10% of people with CHD will develop pulmonary hypertension.

If you’re living with CHD and experience shortness of breath, fatigue, swelling or chest pain, talk to your doctor.

Early screening and regular follow-up with a specialist can help detect PH sooner and improve outcomes.

Learn more about PH and CHD from Pulmonary Hypertension Association and Adult Congenital Heart Association.

“I’ve learned to treat [my illnesses] as companions and live peacefully alongside them,” says Cai Xiumei, 85, of China, ...
11/13/2025

“I’ve learned to treat [my illnesses] as companions and live peacefully alongside them,” says Cai Xiumei, 85, of China, who lives with pulmonary hypertension, interstitial lung disease and Sjögren’s syndrome.

When she was diagnosed six years ago at age 79, Cai thought of giving up treatment. “Why fight an incurable disease at my age?” she said. “But my daughters and friends all persuaded me to continue, reminding me that treatment could ease my suffering and allow me to live more happily.”

“I just want to enjoy each day and let things be,” she says. “I hope all fellow patients can also find joy in each day.”

Join us in highlighting how people around the world EmPHasize their health and well-being.

https://ow.ly/ULTn50XnTnk


The most common cause of PH worldwide is left heart disease.  Symptoms of PH caused by left heart disease include shortn...
11/13/2025

The most common cause of PH worldwide is left heart disease.

Symptoms of PH caused by left heart disease include shortness of breath, difficulty breathing while lying down, swelling in the legs or stomach and abdominal pain.

Because these symptoms can mimic other conditions, ask your doctor about PH screening.

Learn more about the connection between PH and left heart disease, risk factors and treatment options: https://ow.ly/NOCH50Xrglv

Group 2 pulmonary hypertension caused by left heart disease is the most common cause of pulmonary hypertension in the Global North.

Address

1121 14th Street NW, Suite 150
Washington D.C., DC
20005

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+13015653004

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