Pulmonary Hypertension Association

12/19/2025

For people living with pulmonary hypertension, access to supplemental oxygen can mean the difference between living fully and merely surviving.

This year, we mobilized more than 450 advocates who connected with over 300 congressional offices.

As a result, we've helped secure 34 bipartisan cosponsors for the Supplemental Oxygen Access Reform Act.

Your gift today empowers our advocates to speak up for themselves and the PH community.

Donate now: https://ow.ly/Pw7Y50XHsup

12/18/2025

On the latest episode of PH Insights, we highlight the women innovators who are transforming how we understand and treat pulmonary hypertension in children.

Guest host Elizabeth Joseloff sits down with PHA’s 2025 Pediatric PH Research Award recipients, Ripla Arora and Katelyn Enzer, to discuss how their work could lead to earlier answers for families and pave the way for better care in the future.

Listen now: https://ow.ly/RGne50XHrzG

The Pulmonary Hypertension Association’s PH Insights podcast amplifies the voices of the pulmonary hypertension community.

12/17/2025

Join us on TODAY at 8 p.m. EST for our monthly virtual Young Adult Support Group.

Connect with other young adults with and share experiences, support and tips to thrive with .

Register now: https://ow.ly/k7uH50XHrwM

12/17/2025

Recently, Tiffani Brown and Debbie Kittel, co-leaders of the Ohio State University Support Group, gathered 66 pulmonary hypertension patients, caregivers and health care providers for Friendsgiving.

“Each year, we dedicate weeks to preparing for this event: planning the menu, gathering ingredients, making countless grocery runs and cooking for days. It’s a big undertaking, but one we truly love,” Tiffani said.

Learn more about the event and low-sodium holiday recipes: https://ow.ly/q1mr50XHrhl

12/16/2025

Join us tomorrow, Dec. 17, at 7 p.m. EST for our monthly virtual Caregiver Support Group meeting.

Connect with others who understand what it’s like caring for someone with and share caregiving strategies and advice.

Register now: https://ow.ly/vR8f50XHqEI

12/16/2025

PHA’s Peer Mentor program connects you with a trained volunteer who understands life with pulmonary hypertension, whether they’re living with PH or caring for someone who is.

Mitzi McIver-LaBarge volunteers as a peer mentor to connect with and support parents of children with PH.

Learn more and volunteer to support others in the PH community: https://ow.ly/ejY050XHqzv

Connect with trained pulmonary hypertension peer mentors who offer support, practical guidance, and shared experiences for patients and caregivers.

12/15/2025

Join us tomorrow, Dec. 16, at 8 p.m. EST for our monthly virtual CTEPH Support Group meeting.

Connect with others to discuss challenges and coping strategies to best manage life with .

Register now: https://ow.ly/rb6O50XHqyb

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

12/15/2025

There is just one month left for patients and professionals to submit breakout session speaker applications for the PHA 2026 International PH Conference and Scientific Sessions.

All those affected by pulmonary hypertension are encouraged to apply and share their expertise with the PH community.

PHA 2026 International PH Conference and Scientific Sessions is set for June 11-14, 2026, in Dallas.

Visit the application portal to view topics of interest, submission criteria and submit your application today!

https://ow.ly/5U7Y50XHqr6

12/14/2025

In 2012, Debbie and Steve McCarthy started sMiles for Katie after their 29-year-old daughter, Katie, was diagnosed with pulmonary hypertension.

As a tax-exempt public charity, sMiles for Katie raises PH awareness and financial support for PHA.

To honor sMiles for Katie, Pittsburg Steelers kicker Chris Boswell designed PH-themed cleats for the NFL’s My Cause, My Cleats campaign.

The player-led initiative allows players, coaches and staff to create custom cleats to spotlight causes they care about.

Learn more: https://ow.ly/VIK450XC42c

12/13/2025

As you review your insurance options during open enrollment season, beware of plans that seem too good to be true.

You might encounter offers for seemingly affordable plans that won't cover your health services because you have a pre-existing condition like PH.

Learn more on the PHA website: https://ow.ly/uwiW50XC3Zh

12/12/2025

Following her idiopathic pulmonary arterial hypertension diagnosis in 2010, Rachel Gabbert Roberts of Lemoore, California struggled to find others living with her rare disease.

She eventually found connection through a PH support group and now leads the Central Valley PH Support Group.

“I have learned to listen to my body and rest when needed. I’ve come to understand the importance of family and friends and to nurture relationships that help me grow. I’ve learned to say no or cancel at the last minute if my health isn’t cooperating and that it’s OK to be patient with myself.”

Read Rachel’s story: https://ow.ly/hTiU50XuL21

12/11/2025

Since the founding of PHA, volunteers have been an integral part of our work to improve the lives of those affected by PH.

Thank you to every support group leader, support line volunteer and peer mentor who helped support our Peer Support programs in 2025.

We are so grateful for your time and dedication.