12/15/2025
Data collection is a common-sense component of identifying and addressing disparities in health and healthcare access, yet demographic data is being stripped from federal surveys and forms at an alarming rate.The Department of Health and Human Services (HHS) has emphasized the need for better health data to address persistent health disparities for at least forty years, starting with the 1985 Report of the Secretary’s Task Force on Black and Minority Health and the resulting establishment of the Office of Minority Health (OMH) in 1986. OMH is charged with providing national leadership, resources, and coordination to improve the health of people of color and eliminate health disparities. In 2010, the Affordable Care Act directed the Secretary of HHS to promulgate uniform data collection standards for race, ethnicity, s*x, primary language, and disability. The resulting HHS guidance acknowledged that “while data alone cannot reduce disparities,” it is foundational to addressing them.
By Dylan de Kervor https://healthlaw.org/how-do-we-address-health-disparities-if-we-cant-prove-they-exist/