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National Association of Councils on Developmental Disabilities

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National Association of Councils on Developmental Disabilities

NACDD serves as the national voice of State and Territorial Councils on Developmental Disabilities.

We support Councils in implementing the Developmental Disabilities Assistance and Bill of Rights Act and promoting the interests and rights of people with developmental disabilities and their families.

12/20/2025

Project Impact Highlight: Illinois

Read more about the work the Illinois State Alliance Team (SAT) is doing here: https://nacdd.org/state-profiles/illinois/

The Bridging and Aging Disabilities Network (BADN) project in Illinois focuses on understanding challenges in and improving coordination in Case Management, Service/Information Referral across Aging and Developmental Disabilities (DD) Systems

Their #1 goal: Seamlessly connect individuals with intellectual and developmental disabilities (I/DD) who are aging, and aging caregivers, to needed services.

To date, they have
-Created goals and a work plan
- Worked with BADN Technical Assistance (TA) team to create a survey for the Aging and Disability Network to understand the needs for training, education, and resources for case managers and service providers
- Worked with BADN TA to create a survey for individuals with intellectual and developmental disabilities (I/DD) who are aging and aging caregivers to understand their unmet needs for support
- Included I/DD engagement in the Multi-Sector Plan on Aging
- With the collaboration from the NACDD grant, expanded collaboration between I/DD and Aging to three additional grants/projects

The results so far (projects are ongoing):
- 55 responses from providers of developmental disabilities services
- 59 responses from the aging network
- 12 responses from providers of both aging and disability services, and 5 other entities
- 125 responses from caregivers

Read more about the work the Illinois State Alliance Team (SAT) is doing here: https://nacdd.org/state-profiles/illinois/

For the past five years, NACDD has been leading the BADN project across this country. Seventeen (17) states have worked to bridge services and collaborate across agencies that serve people with disabilities and Older Americans all to enhance independence and opportunities for the disability and aging communities.

Learn more about BADN and the projects taking place all over the nation here: https://nacdd.org/bridging-and-aging-disability-network/

12/19/2025

Project Highlight: What is BADN?

For the past five years, NACDD has been leading the Bridging and Aging Disabilities Network (BADN) project across this country. Seventeen (17) states have worked to bridge services and collaborate across agencies that serve people with disabilities and Older Americans all to enhance independence and opportunities for the disability and aging communities.

Learn more about BADN here: https://nacdd.org/bridging-and-aging-disability-network/

BADN is a Projects of National Significance (PNS). These projects are funded through grants provided by the Administration for Community Living. The projects focus on the most pressing issues affecting people with developmental disabilities and their families, creating and enhancing opportunities for these individuals to contribute to, and participate in, all facets of community life.

NACDD is currently highlighting the work of the BADN partners and what they are achieving through this important project. Partners have developed key resources, promising practices, and so much more to enhance services, resources, and supports for people with disabilities and Older Americans.

Look out for highlights in the coming weeks on BADN State Alliance Teams (SATs) from the following states:
Alabama Council on Developmental Disabilities
Arizona Developmental Disabilities Planning Council
California State Council on Developmental Disabilities
CT Council on Developmental Disabilities
Florida Developmental Disabilities Council
Hawaii State Council on Developmental Disabilities
IL Council on Developmental Disabilities
Iowa DD Council
Kansas Council on Developmental Disabilities
Michigan Developmental Disabilities Council
New Jersey Council on Developmental Disabilities
New Mexico Developmental Disabilities Council
New York State Council on Developmental Disabilities
North Dakota State Council on Developmental Disabilities
Developmental Disabilities Council of Oklahoma
Texas Council for Developmental Disabilities
DC Developmental Disabilities Council

12/19/2025

Meet Emma from Texas!

On her YouTube channel “Talking Mickey Project” everyone is welcome -- regardless of their abilities -- to share in Disney Fandom!

Read more We're Here All Year stories in our gallery: https://nacdd.org/2025-dd-awareness-month-we-are-here-all-year-photo-gallery/

Each week, we share a real story from a person with an intellectual or developmental disability (I/DD). These stories show how people with I/DD live, lead, and speak up in their communities across the U.S.

These are real stories that remind us why disability rights and inclusion matter every day — not just during a specific day or month of the year.

Thank you to our friends at Texas Council for Developmental Disabilities for helping us collect these stories!

12/17/2025

NACDD’s 2025 theme, We’re Here All Year, emphasizes that community, accessibility, and opportunities for people with developmental disabilities should be recognized and championed.

State Developmental Disabilities Councils — often called DD Councils — work to support those ideals every day, in many different ways.

Swipe through the images below to learn all about what DD Councils are, what they do, how they work, and (most importantly) how YOU can get involved!

Visit the We're Here All Year gallery to learn more about this year's theme and read personal stories from people with intellectual and developmental disabilities (I/DD) from across the nation.

Gallery link: https://nacdd.org/2025-dd-awareness-month-we-are-here-all-year-photo-gallery/

12/16/2025

Webinar Alert!

Wednesday, December 17th
4:00pm - 5:00pm ET
Free to attend; registration is required
Link to register is in first comment

Join NACDD for a community webinar that will provide an overview of changes to Medicaid stemming from the 2025 reconciliation law, based on KFF's recent report "States' Management of Medicaid Home Care Spending Ahead of H.R. 1 Effects." The report will be presented by KFF, a non-partisan information organization.

Zoom captioning is available for this event. If you require other accommodations to participate, please detail them in your registration. We will have the most success fulfilling your accommodation requests if they are submitted by December 10th.

12/12/2025

Webinar Alert!

Wednesday, December 17th
4:00pm - 5:00pm ET
Free to attend; registration is required
Link to register is in first comment

Join NACDD for a community webinar that will provide an overview of changes to Medicaid stemming from the 2025 reconciliation law, based on KFF's recent report "States' Management of Medicaid Home Care Spending Ahead of H.R. 1 Effects." The report will be presented by KFF, a non-partisan information organization.

Please note: NACDD removed the original post about this webinar due to an error in the image. If you registered already, there is no need to sign up again.

12/09/2025

Meet Luis from New York!

Luis has been enjoying colors for years; he loves the idea of painting and coloring and also events that involve colors. He also uses art to help him feel calm!

Read more We're Here All Year stories in our gallery: https://bit.ly/WereHereAllYear

Each week, we share a real story from a person with an intellectual or developmental disability (I/DD). These stories show how people with I/DD live, lead, and speak up in their communities across the U.S.

These are real stories that remind us why disability rights and inclusion matter every day — not just during a specific day or month of the year.

Thank you to our friends at New York State Council on Developmental Disabilities for helping us collect these stories!

12/07/2025

Project Impact Highlight: Alabama

The Bridging and Aging Disabilities Network (BADN) project in Alabama focuses on local training initiatives with Aging and Disability Resource Centers (ADRCs) and other community organizations.

To date, they have trained fourteen (14) ADRCs on:
- disaster preparedness
- training
- volunteer coordination
- distribution of resources through Meals on Wheels

As resources allow, the State will also be expanding training opportunities through:
- senior centers (Phase 2)
- faith-based communities (Phase 3)

The training will lead to greater awareness and engagement of Older Americans Act (OAA) grantees with the target population and would likely foster future collaboration in other areas.

Read more about what the State Alliance Team (SAT) in Alabama is up to here: https://nacdd.org/state-profiles/alabama/

For the past five years, NACDD has been leading the BADN project across this country. Seventeen (17) states have worked to bridge services and collaborate across agencies that serve people with disabilities and Older Americans all to enhance independence and opportunities for the disability and aging communities.

BADN is a Projects of National Significance (PNS). These projects are funded through grants provided by the Administration of Community Living. The projects focus on the most pressing issues affecting people with developmental disabilities and their families, creating and enhancing opportunities for these individuals to contribute to, and participate in, all facets of community life.

Over the next few weeks, NACDD will be showcasing the work of the BADN partners and what they are achieving through this important project. Partners have developed key resources, promising practices, and so much more to enhance services, resources, and supports for people with disabilities and Older Americans.

Learn more about BADN and the projects taking place all over the nation here: https://nacdd.org/bridging-and-aging-disability-network/

12/04/2025

This week, meet Keaton from Missouri! He and his peers volunteer to cook meals for families staying at a local Ronald McDonald House.

Read more We're Here All Year stories in our gallery: https://bit.ly/WereHereAllYear

Each week, we share a real story from a person with an intellectual or developmental disability (I/DD). These stories show how people with I/DD live, lead, and speak up in their communities across the U.S.

These are real stories that remind us why disability rights and inclusion matter every day — not just during a specific day or month of the year.

Thank you to our friends at Missouri Developmental Disabilities Council for helping us collect these stories!

11/27/2025

Joint Statement Alert:

32 leading disability organizations—including NACDD—have released a joint statement expressing their disappointment with recent changes to the Centers for Disease Control and Prevention (CDC) website. �

The website now states: “’Vaccines do not cause autism’ is not an evidence-based claim.”

This is false.

We are calling for the CDC to:
- Revert their website to its previous version
- Commit to vaccine education initiatives around the country that emphasize the high-quality, scientific evidence that vaccines do not cause autism
- Invest in research projects and initiatives that are responsive to the needs of autistic people and their families

We stand united in our call for science-based decision-making and increased investment in the research, programs, and services the autism community needs to live fully.

This includes the belief that public health messaging must be grounded in science and protect all communities.

We urge public leaders, institutions, and media to uphold scientific integrity and work together to strengthen the infrastructure of support for the entire autism community.

Read the full joint statement on our website here:
https://nacdd.org/leading-autism-and-disability-organizations-statement-on-cdcs-vaccines-and-autism/

Access Ready Inc.
Allies for Independence
American Association on Health and Disability
Association of University Centers on Disabilities
Autism Science Foundation
Autism Society of America
Autism Speaks
Autistic Doctors International
Autistic People of Color Fund
Autistic Self Advocacy Network
Autistic Women & Nonbinary Network
Dan Marino Foundation
Disability Rights Education and Defense Fund (DREDF)
Easterseals, Inc.
Family Voices National
Felicity House
Hussman Institute for Autism
Institute for Exceptional Care (IEC)
International Council on Development and Learning (ICDL)
Lakeshore Foundation
Life’sPilot, Inc
National Association of Councils on Developmental Disabilities
National Association of County Behavioral Health and Developmental Disability Directors (NACBHDD)
National PLAN Alliance
National Respite Coalition
Organization for Autism Research
Profound Autism Alliance
SPAN Parent Advocacy Network, Inc.
The Arc of the United States
The National Alliance to Advance Adolescent Health
The Sibling Leadership Network (SLN)
United Spinal Association

11/19/2025

Meet Morgan, a 16 year old from California!

She recently got a chance to learn how trains work, directly from an Amtrak conductor himself!

Read more We're Here All Year stories in our gallery: https://bit.ly/WereHereAllYear

Each week, we share a real story from a person with an intellectual or developmental disability (I/DD). These stories show how people with I/DD live, lead, and speak up in their communities across the U.S.

These are real stories that remind us why disability rights and inclusion matter every day — not just during a specific day or month of the year.

Thanks to our friends at California State Council on Developmental Disabilities for helping us gather these photos and stories!

11/18/2025

Upcoming Webinar:

From Numbers to Action: Using Data to Strengthen the HCBS Direct Care Workforce

Wed, Nov 19 - 3:00 PM - 4:30 PM EST

This webinar will demystify how states can leverage what they have today, pinpoint
what they need next, and connect datasets across systems to forecast demand for
direct care workers and guide smarter investments and policy change to build the
workforce.

Register Here:
2ed5f1fd-0239-4f48-b84f-6514a191b4f5@64430c8a-03ad-4ddb-8eae-39389e00a4a3" rel="ugc" target="_blank">https://events.teams.microsoft.com/event/2ed5f1fd-0239-4f48-b84f-6514a191b4f5@64430c8a-03ad-4ddb-8eae-39389e00a4a3

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Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

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