Victory for Vera

04/21/2026

😸💜

04/14/2026

💜

04/03/2026

This hits close to our hearts, Madilyn and Vera are in the same grade.
Please come out, APRIL 25th and show the Beisker family our support💚

All the details are below 👇

03/29/2026

This is so incredibly sad💔 keep her family in your prayers.

In loving memory of a member of our AHC family, Cori Nicole Moran. Gone much too soon.

We will not forget you.
We will continue to fight AHC in honor of you.
🖤

03/29/2026

We haven’t seen this side of AHC in awhile, it’s always heartbreaking💔
Hold on sweet girl, this shall pass🙏

03/26/2026

Many prayers to his family❤️‍🩹
Rest now Toby

In loving memory of a member of our AHC family, Toby Benjamin Steele. Gone much too soon.

We will not forget you.
We will continue to fight AHC in honor of you.
🖤

03/16/2026

02/28/2026

A “rare disease” is defined as one affecting fewer than 200,000 people.

AHC affects approximately 𝟭,𝟬𝟬𝟬 𝗶𝗻𝗱𝗶𝘃𝗶𝗱𝘂𝗮𝗹𝘀 𝘄𝗼𝗿𝗹𝗱𝘄𝗶𝗱𝗲.

That makes AHC not just rare — but 𝘂𝗹𝘁𝗿𝗮-𝗿𝗮𝗿𝗲.

On Rare Disease Day, we stand with families living with one of the rarest neurological conditions in the world — and working toward progress every day.

💜 Ultra-rare does not mean alone.
💙 Learn more, get involved, or support research and families at 𝗮𝗵𝗰𝗸𝗶𝗱𝘀.𝗼𝗿𝗴

02/28/2026

International Rare Disease Day is here!🦓
Take a minute today and search
Alternating Hemiplegia of Childhood
Spreading awareness can lead us to a cure.

🦓International Rare Disease Day 🦓

Today is about raising awareness and raising each other up. It’s about connection. It’s about letting every family fighting a rare disease know that rare does not mean invisible.

We’ve all heard the saying, “When you hear hoofbeats, think horses, not zebras.” It’s meant to remind doctors to look for common explanations first. But for families like ours, the sound wasn’t horses. It was zebras.

When you first receive a rare diagnosis, it can feel isolating. Overwhelming. Like you’ve stepped into a world no one else understands. What you don’t realize in that moment is just how strong a herd of zebras can be.

The rare disease community is unlike anything you’ve ever experienced. It stretches far beyond a single diagnosis. It’s parents who become experts overnight. It’s scientists who dedicate their careers to solving what others overlook. It’s researchers who refuse to give up. It’s advocates who turn heartbreak into action. And it’s families who, despite exhaustion and fear, stand shoulder to shoulder.