Sjögren’s Syndrome Journey and Support

11/09/2025

🍁 Easy Fall Recipe Alert! 🍂
Looking for a simple, cozy dish to make this season? Try this 3-ingredient Pumpkin Spice Muffin recipe — perfect for busy days, family gatherings, or just a treat with your morning coffee!

✨ Ingredients:
• 1 box of spice cake mix
• 1 can (15 oz) pumpkin purée
• Optional: chocolate chips, nuts, or a dash of cinnamon

👩‍🍳 Directions:
1. Preheat oven to 350°F.
2. Mix the pumpkin purée and cake mix together in a bowl (that’s it—no eggs, no oil!).
3. Spoon into a muffin pan and bake for about 18–20 minutes.
4. Cool, serve, and enjoy the taste of fall! 🍂🧡

Perfectly moist, super quick, and smells amazing while baking! 😍

07/02/2025

Hi everyone, Healthlink Solutions is working with a medical market research company to conduct a research study. We are looking for 10 patient diagnosed with Sjogren’s Syndrome to participate in a research study to gain a better understanding for future needs and experiences of the community.
About the study:
Must be a US Residents
Must be formally diagnosed with Moderate to Severe Sjogren’s Syndrome
Must not be diagnosed with any other autoimmune diseases
Participation for this study will require a 30 minute written homework followed by a 60 minute web-based interview. As a thank you for your time you will receive an honorarium of $200.00.
If this is something you or someone you know might be interested in, please feel free to reach out to Chiarra at Chiarrarohr@healthlinksolution.org or 858-805-5009-call or text is fine (EST). Below is the link to the preliminary questionnaire to see if you are qualified.

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11/01/2024

Fun at work yesterday

10/24/2024

Good morning everyone. Well got most of my blood work back today to start benlysta for my lupus I will say the steroid shot did help with my pain but I doubt want to take those every month. Also my parathyroid is good so that isn’t a reason for my osteoporosis Thata is good too!

10/15/2024

I made a private page and made in more inclusive to all autoimmune disease since we all seem to have multiple please look for

Living with strength:autoimmune support

10/15/2024

Is anyone here taking BENLYSTA for their lupus

10/15/2024

Please look for the new private page that is on the feed

10/13/2024

Look for this page

10/12/2024

The group i made is private! I could not convert this page

10/12/2024

Hello everyone. I created a private group page that you can join you should have received an invite I decided with a diverse group of autoimmune diseases I would make a new name

Living with Strength: Autoimmune Support

https://www.facebook.com/profile.php?id=100084750445929

Sjögren’s support

10/11/2024

Iwill work on making our FB private tonight when I get home from work