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Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm

Eastern Pennsylvania Bleeding Disorders Foundation

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Eastern Pennsylvania Bleeding Disorders Foundation

Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Eastern Pennsylvania Bleeding Disorders Foundation, Medical and health, 937 Paoli Pike #1028, West Chester, PA.

The Eastern Pennsylvania Bleeding Disorders Foundation strives to bring together those affected by bleeding disorders in our 41-county coverage area through education, programming, advocacy, and financial assistance.

12/11/2025

Advocacy Alert! 🚨 Open Enrollment for Pennie plans is underway, and Congress still hasn't extended the tax credits that made marketplace insurance more affordable than ever.

Senators are expected to vote tomorrow on a healthcare plan that does not include an extension of these tax credits. Instead, they will vote on a proposal to make contributions to health savings accounts that won't make up for the increase in premiums, won't cover most people's deductibles, and isn't likely to have the votes to pass.

Reminder: if Congress doesn't act soon, Pennsylvanians will pay 102% more on average for their Pennie plans starting in just a few weeks.

Tell Congress you want them to extend tax credits that keep Pennie plans affordable ASAP! Click below to send a message to your legislators in Congress: https://pahealth.salsalabs.org/extendacasubsidies/index.html

12/03/2025

On Tuesday, December 2nd, the Western PA Bleeding Disorders Foundation and Eastern Pennsylvania Bleeding Disorders Foundation came together with representatives from all 7 Hemophilia Treatment Centers in Pennsylvania for a statewide Stakeholder Meeting at the Hilton Harrisburg. We were also joined by Matt Delaney of the National Bleeding Disorders Foundation, Karen Bowe of the Hemophilia Alliance, and Kerry Lange from Milliron Goodman.

When we plan, learn, and share knowledge together, we can accomplish so much more. By collaborating on advocacy, community programs, and resources, we’re finding new ways to better support the bleeding disorders community across Pennsylvania. Meetings like this highlight the power of teamwork and the meaningful difference we can make together. Thank you to everyone who participated and continues to strengthen support, education, and outreach for our community.

12/03/2025

🎉 2026 Gettin’ in the Game Junior National Championship!
📅 May 1–3, 2026
📍 Henderson, Nevada

We’re excited to share that CSL Behring will host the 23rd annual JNC—the only national competition designed exclusively for children and teens with bleeding disorders.

Kids ages 7–18 can apply to represent EPBDF and choose their sport: baseball, basketball, golf, or swimming.

This unforgettable weekend includes:
🏅 Skills training
🤝 Friendly competition
🌟 Meeting peers from across the country
📚 Fitness & wellness education

🗓 Deadline: Friday, December 5, 2025

👉 Follow link to be considered:
https://docs.google.com/forms/d/e/1FAIpQLSdJM5sm2V2ABW6R1-WryK7fP8wYQZFOT6LKx-wFKV4fNqN0ZA/viewform

12/02/2025

As we close our gratitude series on this Giving Tuesday, we’re celebrating the heart of our community — YOU. ❤️

This year, your involvement made so much possible:
✨ statewide collaboration
✨ impactful programs and retreats
✨ advocacy work across Pennsylvania
✨ and the first-ever Pennsylvania Bleeding Disorders Conference

Your support strengthens families, builds connections, and helps our community thrive.

If you’re able, we invite you to make your Giving Tuesday gift today and help us continue this work into 2026.

👉 Make your Giving Tuesday gift here:
https://givebutter.com/adp9kL

Thank you for being part of the EPBDF family.

12/01/2025

Today is World AIDS Day — a day of remembrance, reflection, and honor for our bleeding disorders community.

In the 1980s, before HIV screening existed, contaminated blood products led to thousands of people with hemophilia and other bleeding disorders contracting HIV and AIDS. Entire families and communities were forever changed. Many were also affected by hepatitis C, and many lives were tragically lost.

We honor the loved ones we lost, the survivors who fought for safer treatments, and the advocates whose courage reshaped modern blood product safety.

Their legacy continues to guide us, ground us, and strengthen our mission.

We invite you to explore this interactive timeline, which highlights the tireless advocacy that helped strengthen the safety of our nation’s blood supply and ensure that a tragedy like this is never repeated. Learn more: bit.ly/HFATimeline

We remember. We honor. We stand with our community.

11/30/2025

Stronger together. 🤝

From advocacy work to the Couples Retreat to the first-ever Pennsylvania Bleeding Disorders Conference, the partnership between EPBDF and WPBDF continues to grow in powerful ways.

What started as a connection in 2023 has become a statewide collaboration that brings families, providers, and community members together like never before.

Here’s a look at the people behind the work — and the teamwork that made history.

One mission.
Two foundations.
Stronger for Pennsylvania.

As we approach Giving Tuesday, your support helps ensure statewide programs like these continue to grow and reach more families.

You can make an early Giving Tuesday gift here: https://givebutter.com/adp9kL

11/28/2025

This was a year of togetherness.❤️

We shared laughter at Adventure Sports.
We learned and lifted each other at the Women’s Retreat.
We celebrated families at our Annual Dinner.
We competed, connected, danced, advocated, walked, bowled, golfed — and built memories that remind us why this community is so special.

Every smile, every conversation, every moment in these photos exists because of YOU — the families, partners, volunteers, staff, and supporters who bring EPBDF to life.

Thank you for an incredible year.

As we head toward Giving Tuesday, your support helps keep programs like these strong for families across Eastern Pennsylvania.

If you’d like to contribute early, you can donate here:
https://givebutter.com/adp9kL

11/27/2025

Today, we’re reflecting on the strength, resilience, and generosity of our bleeding disorders community. 🧡

Whether you attended a program, volunteered your time, advocated, or simply stayed connected this year, you make our work possible.

From all of us at EPBDF, we’re wishing you a peaceful and meaningful Thanksgiving. 🦃💛

As we head into Giving Tuesday, we invite you to join us in supporting the programs and assistance that help families across Eastern Pennsylvania thrive.

11/27/2025

Today we’re celebrating the volunteers who bring EPBDF to life. ❤️

From event support to family outreach, from early mornings to late evenings, our volunteers show up with positivity, compassion, and a commitment to helping others.

You make our programs stronger.
You make our community brighter.
You make our mission possible.

Thank you for giving your time, your energy, and your heart. We are incredibly grateful for you.

💛 If you'd like to honor our volunteers and support the work they help make possible, you can make a Giving Tuesday gift anytime: https://givebutter.com/adp9kL

11/25/2025

Behind every program… every retreat… every conference… every hug, smile, and moment of connection… is this team. 💛

Sarah’s steady vision.
Lisa’s compassion and strength.
Keyai’s creativity and communication.

Together, they guide EPBDF with heart, humility, and purpose — building a community where families feel seen, supported, and never alone.

Here’s to the people who make EPBDF feel like family.

Address

937 Paoli Pike #1028
West Chester, PA
19380

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+16107705215

Website

https://www.epbdf.org/

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