Eastern Pennsylvania Bleeding Disorders Foundation

05/01/2026

There are only a few days left to register to vote if you want to cast a ballot in the upcoming primary election! May 4 is the last day to register. If you’re already registered, it’s important to verify your information is accurate, especially if you recently moved or changed your name.

Get all voting information and resources you need at vote.pa.gov or on your county's website!

05/01/2026

🏒 Final Score: WPBDF 186 | EPBDF 58

Well… the Flyers may have taken the series on the ice, but Western PA definitely took the win in our Playoff Faceoff Challenge 😅

A huge THANK YOU to everyone who registered, donated, and cheered us on along the way. This was fun, competitive, and most importantly, impactful for the bleeding disorders community across Pennsylvania.

Because of YOU, EPBDF finished strong with:

💰 $1,397.52 raised
👟 12 new walkers registered
❤️ 23 donations made

That is real support for individuals and families in our community, and we are incredibly grateful.

And yes… a wager is a wager.

📣 This Sunday at Advocacy Training, EPBDF staff will be showing up in black & gold Penguins gear. Photo proof will absolutely be shared 😬🐧

Thank you to our friends at WPBDF for making this such a fun and meaningful challenge. Friendly rivalry aside, this effort helped strengthen support for families with bleeding disorders across the entire state.

You can still register or donate to support the EPBDF Unite Walk:

🔗 https://bit.ly/EPBDF-Unite-Walk

05/01/2026

Are you experiencing challenges in your Hemophilia B care? Let’s talk about it.
Join us for a virtual program on May 27 at 6:30 pm. This program will connect
hemophilia B families and individuals from across Pennsylvania and West Virginia.
Attendees will receive a $15 DoorDash e-gift card (up to $45 per family) after attending the program.

RSVP at: https://tinyurl.com/2kexvn5r

On the registration website, click the "Register” button at the top right and select “1 General Free Admission.” From there, you will enter your name, email, phone number, chapter, and the number of people attending from your household. Then click “Complete Registration.” You should receive an email confirmation. The link to the event will be sent prior to the meeting.

04/30/2026

✨ Thank You, Cottrill’s Specialty Pharmacy! ✨

We are incredibly grateful to Cottrill’s Specialty Pharmacy for sponsoring our recent Women’s Group Spring Lunch & Learn. Your support helped create a meaningful afternoon filled with education, creativity, and connection for the women in our community.

A special thank you to Meredith Getz for sharing such valuable Medicaid and insurance insights. Participants shared how helpful and easy to understand the information was, and many walked away with new knowledge about financial support and insurance options.

And to all of the amazing women who joined us, thank you for showing up, connecting, and making the day such a success. The feedback was overwhelmingly positive, with attendees sharing how meaningful the time together was.

💬 We can’t wait to do it again!
If you would like to join us for a future Women’s Group gathering, be sure to stay connected and watch for upcoming events here:
👉 https://epbdf.org/event/

Together, we are building community, sharing knowledge, and supporting one another every step of the way.

04/29/2026

🏒 With a tough win from the Pittsburgh Penguins Monday night, our Playoff Faceoff Fundraising Challenge with Western PA continues!

But let’s take a moment to look at the incredible impact we’ve made during this playoff series. At the end of the day, this is about something much bigger than the scoreboard.

Together, across both Foundations, we’ve raised nearly $4,500 in the last week!

That means:
🩸 More support for individuals and families navigating a bleeding disorder diagnosis
🩸 More access to education, advocacy, and support programs
🩸 More moments where no one has to feel alone

So, while we’re still cheering on the Flyers (and hoping to avoid wearing any Penguins gear), we’re even more grateful for what this community has made possible!

👉 Just like the Flyers, our challenge is still going! You can donate or register for our Unite for Bleeding Disorders Walk here: https://bit.ly/EPBDF-Unite-Walk

04/29/2026

This is your reminder to get your team registered for our Unite Walk!

For more details, follow this link: https://bit.ly/EPBDF-Unite-Walk

Calling all team captains! Register your team and start fundraising for your local Unite for Bleeding Disorders Walk at www.uniteforbleedingdisorders.org.

04/27/2026

Score Update: Western 155 | Eastern 37

We’ve got work to do, Eastern PA.

Western PA has received over 50 individual donations since this challenge began, and that momentum has pushed them into the lead.

But this game is far from over.

💰 Every donation earns 2 points
That means donations are the fastest way for us to catch up.

We are about 59 donations away from tying the score.

Not big donations.
Just people stepping up together.

If you’ve been thinking about supporting theEPBDF Unite Walk, now is the time.

🔗 Donate or register here:
https://epbdf.org/events/unite-walk-playoff/

Let’s start the comeback, Eastern PA. 🧡🖤

04/26/2026

🍽️ Registration is now open for the 2026 EPBDF Annual Family Dinner!

Please join us for an evening of education, connection, conversation, and community.

📅 June 24, 2026
🕔 5:00 pm
📍 Sheraton Valley Forge Hotel — King of Prussia, PA

This event is free for community members and HTC staff, and the evening will include a keynote speaker, exhibitors, beverages, appetizers, and dinner.

We hope you’ll join us for this special night together.

✅ Reserve your seat today:
https://epbdf.org/events/annual-family-dinner-2026/

04/25/2026

🚨 This could be our LAST chance to secure the win!

The puck drops for Game 4 between the Philadelphia Flyers and Pittsburgh Penguins tonight at 8:00 PM, and if the series ends, so does our Playoff Faceoff battle with the Western PA Foundation!

That means right now is the moment to push Eastern PA ahead.

🔥 Here's how to help EPBDF lock in the win:

💰 Make a donation of any amount (every donation earns us 2 points!)
👟 Register for the Walk (every walker registered earns us 1 point!)
💬 Spread the word!

The Foundation with the most points by the end of the series WINS…and the losing team’s staff? They’ll be showing up to Advocacy Training in rival gear next weekend 😬

Let’s finish strong and keep the black & yellow where it belongs.
Donate & register now: https://bit.ly/EPBDF-Unite-Walk

04/24/2026

🏒 Game 4 is Saturday…The Philadelphia Flyers and the Pittsburgh Penguins face off again for what could be the END OF THE SERIES, and Eastern PA needs your help to come from behind and take the lead! 👀

We’re battling the Western PA Foundation in a Playoffs Faceoff, and every dollar and walker counts.

🔥 Help secure the win for EPBDF:
💰 Donate any amount to earn us 2 points
👟 Register for our Unite Walk. Every Walker earns us 1 more point!

The Foundation with the most points from our registered walkers and donations by the end of the series WINS. The losing team’s staff will be decked out in rival gear at Advocacy Training on May 3… Help us avoid trading in our black & orange for black & gold 😵

👉 Register & donate today! https://bit.ly/EPBDF-Unite-Walk
The series could end tomorrow (Flyers lead the series 3-0)

04/23/2026

Join Us for a National Broadcast Mystery!

Follow along as investigators work to solve a fascinating hemophilia A mystery:

Can two people with different forms of hemophilia use the same treatment and get similar results?

During this unique educational dinner program, you'll get a sneak peek at real patient case scenarios and learn how ALTUVIIIO may play a role in treatment decisions.

📅 Thursday, May 7, 2026
🕕 6:00 PM – 8:00 PM
📍 Maggiano’s – King of Prussia, PA
🍽️ Dinner will be provided

This interactive session is designed to be informative, engaging, and helpful for individuals and families living with hemophilia A.

🎟️ Reserve your seat today:
https://epbdf.org/events/understanding-altuviiio/

04/23/2026

The Philadelphia Flyers may have taken the win last night… but off the ice, Western PA is in the lead!!! 👀 We’re going head-to-head with Western PA in our Playoff Faceoff, and we need a comeback!

This competition between our two Foundations ends when this playoff series ends, and the Flyers are now up 3-0! The last game might be this Saturday!

🔥 Help us turn it around!
💰 Please donate
👟 and/or Register for our Unite Walk

The Foundation with the most participants + dollars raised by the end of the series wins. The losing team’s staff will be wearing their rival’s gear at Advocacy Training on May 3… Let’s show Western PA what Eastern PA is made of.

Register & donate: https://bit.ly/EPBDF-Unite-Walk

Help EPBDF keep the black & orange…and avoid black & gold!